Tanya (Ash's mom)
  • Female
  • Wesley Chapel, FL
  • United States
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has anyone tried virtuesse hair bonding system?

Started this discussion. Last reply by Paula Lowry Jul 16, 2009. 1 Reply

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Latest Activity

Evalyne Cambron left a comment for Tanya (Ash's mom)
"Hi Tonya, my daughter is a competitIve cheerleader in Arizona. She is 12 and almost completely bald at this point. I got her a wig and the wig place is putting me in touch with someone who does hair bonding. I'm trying to find the best solution…"
May 13
Gabby and Tanya (Ash's mom) are now friends
Feb 16
KWM left a comment for Tanya (Ash's mom)
"Hi Tanya, I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the…"
Jun 18, 2011
KWM replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"Hi Tanya, I have a 12 year old daughter with a type of ectodermal dysplasia. Her hair is very thin, brittle and breaks easily. I am considering the Virtuesse system and I am wondering if you and your daughter are still happy with it. I called our…"
Jun 8, 2011
Hannah Trudeau left a comment for Tanya (Ash's mom)
"hi! i'm 15 and i saw you have a daughter close to my age. i do competition cheerleading and i wear a vacuum sealed wig. i was looking at your pictures of your daughter and i was thinking about looking into the virtuesse system. when i cheer, i…"
Apr 15, 2011
Tanya (Ash's mom) replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"My daughter only had about 20% of her hair. It is not painful, when they remove it of course they do it slowly and use a solution that makes it easier. It does allow hair to grow, but every month (thats the plan we have) she gets a new hair piece…"
Apr 4, 2011
Supportive Mom replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"Just wondering about this system. How much hair loss does your daughter have, and does it block new growth from coming in if she has any? How does that work and is it hard to take the glue off. I heard it can be painful at times."
Apr 4, 2011
Karen Smith commented on Tanya (Ash's mom)'s photo
Thumbnail

Ashton getting makeup done

"Her hair is great!!! What a pretty girl."
Jan 10, 2011
Tanya (Ash's mom) replied to Tanya Stone's discussion Hair bonding advice - going tomorrow!
"My daughter uses a bonded hair piece and we go monthly for it to be removed and her head cleaned and new hair growth shaved. She hated it when she 1st got it. But now would not have it anyother way. It is a big change for you and nothing is better…"
Jan 10, 2011
Tanya (Ash's mom) posted photos
Nov 12, 2010
Tanya (Ash's mom) and Tiffany B are now friends
Nov 12, 2010
Tanya (Ash's mom) replied to Kathy De La Cerda's discussion New to group and am feeling upset about my daughter! in the group Parents of Children with Hairloss
"Kathy, My daughter was diagnosed with AA when she was 4yrs old, but we were always pretty lucky in tht the short bob hair style parted to one side seemed to always cover her spots. However our luck ran out when she was 12 1/2 she lost 85% of her…"
Nov 12, 2010
Tanya (Ash's mom) replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"Sara, Not sure how Hair Club works, but with my daughters system we cant take it off. It stays on pretty well. Our hair specialist gives us glue for around the edges in case we need it and Ashton does have to touch it up around the front nd sides…"
Nov 12, 2010
Tanya (Ash's mom) replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"Hi Tanya, Sorry for the delay in my response. I pay almost $7000 a year for Ashton's system that gives her a new hair piece a month. We did have cheaper options but Ashton is very active and a teenager so she is constantly straightening her…"
Nov 12, 2010
Tanya Stone replied to Tanya (Ash's mom)'s discussion Any experience with Virtuesse Hair Bonding? in the group Parents of Children with Hairloss
"HI-my name is Tanya also. I am looking into virtuesse also but they cant seem to give me an exact cost it would be-after the initial $450 they told me. Seems strange-what did they tell you?"
Oct 17, 2010
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Jun 18, 2010

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About Me:
I am the parent of a 14 yr old girl with Alopecia Areata. My daughter's name is Ashton, she will be going into 9th grade and is a level 5 competitive cheerleader. My daughter has struggled with alopecia areata since she was about 4, but we have always managed to hide her spots with her haircut, until late 2008 early 2009. She loves to cheer and her cheer friends are amazing. Her 7th grade yr was her worst with her schoolmates but in 2009 i purchased the virtuesse hair .
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (17 comments)

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At 7:09pm on May 13, 2012, Evalyne Cambron said…
Hi Tonya, my daughter is a competitIve cheerleader in Arizona. She is 12 and almost completely bald at this point. I got her a wig and the wig place is putting me in touch with someone who does hair bonding. I'm trying to find the best solution for her because she wants to make sure that she doesn't have issues at cheer. She just found out that she made a level 5 team and ow has this hair worry. Any advice would be appreciated. You can also call me if you like. It may be easier than typing it all out. My cell is 602-540-2890.
Thanks,
Evalyne
At 11:42am on June 18, 2011, KWM said…
Hi Tanya,
I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the system and if you have any thoughts. My daughter's hair is short but she has a good bit on the sides with the top being very thin. They are suggesting that we shave the top of her head and leave her natural hair on the sides to blend in. Having used the system, what are your thoughts about that? Does your daughter say it is hot or itchy? We are very nervous. Thanks for sharing your thoughts.
Kelli
At 5:44pm on April 15, 2011, Hannah Trudeau said…
hi!
i'm 15 and i saw you have a daughter close to my age. i do competition cheerleading and i wear a vacuum sealed wig. i was looking at your pictures of your daughter and i was thinking about looking into the virtuesse system. when i cheer, i don't really feel scared about my hair falling off but i can't pull it back all the way. so, i had a few questions about the system. is the back high or does it look natural? on my wig the back is very high so that you can really tell it's a wig. also does it stay on really well? i know it's expensive but it sounds really worth it!

Thanks!
hannah
At 10:21am on June 18, 2010, someone gave Tanya (Ash's mom) a giftAnonymous
At 8:01pm on July 23, 2009, Tanya (Ash's mom) said…
Long time since I've visited alopecia world, but wanted to update everyone on my daughter. She is doing amazing. We have been doing the virtuesse hair system since March and it has changed her life. Every 6 weeks she gets new hair and is now more confident in herself that she is having fun with them changing colors and lengths. She is able to do all the normal activities kids do over summer. I'll post more pics soon.
At 1:04pm on April 13, 2009, Lauren said…
Thanks so much Tanya. How long do you think the Virtuesse looks good before you need to put another one on. Does it really stay on well? Thanks again--I really appreciate your advice!! Lauren
At 10:46pm on April 6, 2009, Jamie said…
Hi Tanya, I was wondering how the system is working for your daughter? I had looked this system myself, but was afraid of if. How often does she get it changed, does it look natural? I need to do something soon.
At 4:00pm on March 3, 2009, Rose Marie' said…
Hi

Your piccies are beautiful. What gorgeous kiddies you have.

Rosy
At 10:14am on March 3, 2009, Sheila Burton said…
Hi Tanya
I'm so sorry that you and Ashton are having such a horrible time. I fully understand what you mean about feeling helpless, it made me feel very guilty that I couldn't make her alopecia better. Hayley's now 21 and coping very well with alopecia , I hope that gives you some encouragement although I know it doesn't solve your current problems. Its so upsetting that these bullies think its ok to behave in the way that they do, by targetting vulnerable people. Rose Marie has some good advice and I hope that things improve for you both very soon. I'm glad that Ashton has the support of her cheer friends and of course yourself because understanding people can make all the difference even if they can't make difficulties disappear. Take care
Sheila
At 11:16pm on March 2, 2009, Rose Marie' said…
Hi Tanya

I just read your post on Sheila's blog. I had to answer you, I've copied the answer here as well. Just in case you didn't go back and read that blog. My intention is to try and help. Take care

Sheila's blog answer.

Oh heck - that's just horrible for your daughter. I'm going to tell you what helped with my daughter and maybe it will help you a little. My heart goes out to both of you. Middle school can be so very difficult for our children.

From what I understand your daughter doesn't feel safe in her school environment and you feel at a loss on how to make her safe.

The first thing I did with my daughter was talk to her about how she wanted to handle her alopecia. I see your daughter is prefering to wear a wig (which was also the choice of my daughter). As you can see her choice has not made the situation or alopecia areata go away. It still needs to be dealt with whether a wig is worn or not. After a lot of discussion we decided that we would educate her class and teacher about what was going on with her. No secrets - she had alopecia. I was helped by a lovely lady in NZ that had been dealing with hairloss for 60 years. She talked to my daughter's class explaining alopecia in a very matter of fact factual way. Then she went on to talk in terms of my daughter being everything she ever was and that she didn't want people to feel sorry for her or make fun of her - she was just the same but sadly had this condition.

This didn't stop all bullying , but it was clear to all involved that bullying on this subject was a very low thing to do and all the children became united in understandig the condition and just getting on with everyday school activities. They forgot that Libby wore a wig and she became her again.

If anyone did bully Libby under the teachers radar she was given permission to talk to the teacher and the children were talked to quickly. No fuss or fanfare just how it was to be.

What I believe about bullies is they usually run in packs - the good people feel intimidated and don't want to also become victimised - so eveything goes the way of the bully. So, that has to be stopped. Your daughter has to be told that she is not a tattle tale for getting help when people are cruel or underhanded. She needs to feel empowered to be able to look after herself and with the help of an adult this is possible to do. You both have the power to change this dynamic at her school and for her. School should be a safe environment for her to learn wonderful things - not a place to fear because she has alopecia.

I see you are a wonderful mum dealing with a really difficult situation. My comments here are in no way a judgement on what you have to do but just things that worked for me. Hugs for you both I understand how hard this is.

Rosy
 
 
 
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