"I have been on it since Feb 2012 and I have AU: white mini's all on my legs, arms and few new eyelashes. Also have my whole head covered in white mini's... with about 30 or so that are about 10- 15 cm long. Only a couple are actually…"
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Methotrexate
Started this discussion. Last reply by Tam yesterday. 54 Replies 0 Favorites
Hi Everyone. Has anyone tried Methotrexate for AU? I have been on DPCP for almost a year and had no real success. This is something new with an apparent 50-50 chance for AU.Continue
Wigs in the Summer and Moroccan Oil question
Started this discussion. Last reply by Lori Van Decker Jan 31. 4 Replies 0 Favorites
Hi Everyone,With the summer well on its way, I am noticing that I am sweating a lot more and my wig is falling back. I try to use the tape but it will not hold to my sweaty head. Has anyone just…Continue
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"Hello all
Might I ask ..... Can we have a hands-up for anybody following this thread who is taking methotrexate and has seen any meaningful regrowth results ?
Curiously the following study has now got my interest and I will check back-in once…"
Vanessa replied to Tam's discussion Methotrexate"I have big issues with dry eyes (red and sore) and am not taking methotrexate (I wondered if methotrexate would help dry eye, but doesn't sound that way!). Dry eye is well known to be associated with auto-immune disorders. Probably many of us…"
Dana replied to Tam's discussion Methotrexate"Hey guys,
Well I'm doing okay still on 20 mg/ week my blood is good. I've had to stop injections into my eyebrows due to indents I was starting to get this has since resolved it's self but I won't be having anymore as this will…"
KimF4L replied to Tam's discussion Methotrexate"I am on my 12th dose and no hair =( little tiny tiny fuzz on my face (not where I want it) I still only take 6 pills once a week and folic acid daily. No eyebrow growth or eyelashes or hair =( My eyes are very sore, dry and red I think this is the…"
Tam replied to Tam's discussion Methotrexate"Hi Everyone,
So, how is everyone doing? I had my doc appointment and he is keeping me on the 20 mg/ week dose and said I don't need to do my bloods as often because they came back perfect. I still have my random long white hairs but nothing…"
KimF4L replied to Tam's discussion Methotrexate"how come I my doc has me take folic acid everyday if you only take it once a week? Does taking it everyday reduce hair growth ? Mine is for GI issues but thought it would help AU too."
KimF4L replied to Tam's discussion Methotrexate"how long ago did your hair fall out from the Remicade? May 2012 will make one year for me =("
BTB (John) left a comment for Tam"Awesome wig Tam my wife has worn them for 20years and they appear to look just like yours. You do pick them well it would seem."
cindy Babs replied to Tam's discussion Methotrexate"Hi Dana. My daughter did the whole MTX/ pred course (plus plaquenil!) and eyebrow injections. She got the indentations as well. The pitting went away/filled back in after she stopped the injxns so it was not permanent. Good luck. :)"
Dana replied to Tam's discussion Methotrexate"Hello Methotrexate Peeps
So I have been on metho/predno combo for 2 months and one week. I am finished the predno it was only for the first six weeks (it was a tough drug to be on mood swings,weight gain,acne and a lot more!!) Now I'm down to…"
Tam replied to Devin's discussion This is a list of people and their autoimmune diseases so someone new can quickly locate a person with their same condition. Please reply with just a list of your specific autoimmune diseases.ThankYou in the group M.A.D. (Multiple Autoimmune Diseases)"1. AU 2. +++ allergies (including food)"
Tam joined Devin's group
M.A.D. (Multiple Autoimmune Diseases)
Raise your hand if you have Multiple Autoimmune Diseases. I have noticed that a lot people here have more than just Alopecia. I myself have Alopecia Areata, Crohn’s Disease, Psoriasis, and some form of Arthritis not yet diagnosed.
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- I love to run and be active. I am right now back at school doing my PhD . My life is typically very "go go go" and I do many things at once.... this I am afraid has ignited my alopeica. I think my Alopecia protected me from something worse, like a heart attack or a mental breakdown due to school and personal life stresses.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
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Comment Wall (12 comments)
- At 11:23pm on April 12, 2012, BTB (John) said…
- At 11:23pm on April 12, 2012, BTB (John) said…
Awesome wig Tam my wife has worn them for 20years and they appear to look just like yours. You do pick them well it would seem.
- At 8:37am on March 6, 2012,
Gena said… Hi! I wanted to say you look great!! What do you use for eyebrows? Your wigs look great too! I just got a custom made lace front and back wig that I couldn`t be happier with. It was pricey (also due to the length). I bought it at Order Quality Wigs. They have 2 locations, one on cote des neiges and the other on St. Charles in Pierrefonds. They told me it would lake 6-8 weeks but it took more like 14 or 15... so that was the only problem I had. But I really love the hair and I went swimming in the ocean with it!!! I wouldn`t recommend the glue (i got it just because I was going to the beach for a week) because the tape is sufficient and much less messy!!! :) Where do you get yours?
- At 10:05pm on October 31, 2011, Nathalie27 said…
- where do you get your wigs they look so real :)
- At 1:06am on August 3, 2011,
Mary said… - Welcome to the International Alopecia Day Group, Tam! I'd love to include Quebec in this year's slide show. Mary
- At 12:33am on July 20, 2011,
Rose - shaving and wigging said… - Hi Tam, in response to your thread about tape and grip material: you could sew silicone band in your wig. You can get it from the notions store - it's usually used for strapless bras or dresses. It's the same material that is used in Follea/Peggy Knight Gripper Caps.
Moroccan oil is safe on human hair. Personally, I prefer to condition my wig for a couple of hours after washing. That way the hair will feel soft but there will be no additional product in the hair. To tighten the knots after you have used conditioner, you can add vinegar to the last rinse.
- At 1:01am on June 29, 2011,
Amy said… - Thanks for the note Tam :) Things were not good when I went back to work, but I was glad I went back for the kids. I had a horrible replacement and I felt really guilty for leaving my students with her. But we managed to get through the last month and the kids are officially on vacation. I have a few more days of work, then I will be too! Can't wait!
How are you?
- At 7:29pm on June 13, 2011,
Leonore said… - Sounds like it is too strong...
It was uncomfortable. Sometimes it blistered. It certainly itched. But... my hair all grew back and it was a successful treatment for 15 years. Then, I became immune to it. Even the strongest dosage will not produce a reaction.
If it is sending you to the er... there is definitely a problem.
- At 7:00pm on June 11, 2011, Helen said…
- I had my eyebrows and top lid of eyeliner tattooed on. I love it! I haven't heard about DPCP, but I will say that my doctors as I grew up used me as a guinea pig for some very strange treatments...I was on rogaine when they were testing it, the pharmacy had to crush the pills and mix it with alcohol I was supposed to swab my head with this mixture and then coat it with vasoline every night...it was sooo gross, it was the last straw! Now I have a good wig that I only wear when I go out. My permanent makeup makes it so I don't look sickly first thing in the morning! We make adjustments and learn to live without parts of ourself that we thought would always be there. It is doable!
- At 5:32pm on June 11, 2011, Helen said…
- no I've had alopecia since I was 2. I did all the treatments as i was growing up. None of them were worth the time. I checked in with a Dermotologist about 10 years ago to find out if there was anything new out there, he told me if there was i'd hear about it in the news! LOL
Helen
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