Susan McAdams
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  • Pacific Palisades, CA
  • United States
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Susan McAdams's Discussions

Xeljanz and Looking Ahead to the Future...

Started this discussion. Last reply by Return_life Nov 22, 2017. 82 Replies

Hi Everyone--I decided to start a new discussion group for those of us who are taking, have taken, or are thinking about trying Xeljanz.  As we all know by now, the medical trials that took place at…Continue

Tags: Trial, cure, treatment, Stanford, insurance

Xeljanz Users...Let's Stay Connected Here in 2016!

Started this discussion. Last reply by Patchesforlife Nov 22, 2017. 189 Replies

Hi Friends--I want to thank so many for following my discussion link, "My Stanford trial experience, Part 2 (Xeljanz)" throughout the bulk of 2015. I began participation in the trial in late January,…Continue

Tags: Columbia, Yale, Stanford, treatments, Xeljanz

Xeljanz options...Mexico? Compounding pharmacy? Please share!

Started this discussion. Last reply by singh Dec 27, 2015. 13 Replies

Hi Everyone--I have been posting on another discussion my progress on Xeljanz. I did the trial up in Stanford, and after 3 months, continued on as a post-patient. I purchase the drug out-of-pocket…Continue

Tags: pharmacies, compounding, Mexico

My Stanford trial experience, part 2 (Xeljanz)

Started this discussion. Last reply by Alma Jan 21, 2017. 179 Replies

My first post on this topic got buried somewhere in "Discussion" purgatory, so I am providing an update on my experience as a participant in the Stanford trial for Xeljanz...After contacting Dr. King…Continue

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Latest Activity

Patchesforlife replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"return life. did you have full regrowth? thank you"
Nov 22, 2017
Return_life replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Salesforce is the major expense for a pharmaceutical company. Setting up the sales rep team in usa would cost millions..."
Nov 22, 2017
Return_life replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Well u will see few challenges but it's possible. 1. Find a Dr who will prescribe it to you even if he won't do ur bloodwork, follow up etc... 2. Once u get the script go to a Canadian pharmacy and pay... should take 2 days till they…"
Nov 22, 2017
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Well just got some biopsy results back from the doc and I have psoriasis - woohoo! Kind of excited. Maybe that means I can get Xeljanz since the FDA just approved it for psoriasis in August. If not, there are other possibilities from that article I…"
Nov 22, 2017
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"I'm sorry to hear this :( Hopefully the current trials Pfizer is conducting will be successful, and the FDA will finally approve a drug for alopecia, that our insurance companies will cover. :/"
Nov 22, 2017
Rascalx2 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Suz, how long you been on xeljanz and what is stomach issue?"
Nov 22, 2017
Suzie replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Update....the Xeljanz helped my AA, but after my scalp biopsy, I was just diagnosed with Androgenic Alopecia and I'm afraid the Xeljanz will not help with that.  I'm not sure if I am going to continue the Xeljanz or not.  I also…"
Nov 22, 2017
chris_s replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"I'm sorry to hear about your troubles why do you think that marketing xeljanz to both RA and Alopecia patients would not be more profitable than simply marketing to RA patients? Maybe I'm taking a simple approach to thinking about this,…"
Nov 22, 2017
Patchesforlife replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"that wud be awesome"
Nov 22, 2017
LIU CHUNXIU replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"maybe i am wrong. we need jak1.2 Ruxo not jak3"
Nov 21, 2017
Susan McAdams replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Hey Folks— A couple updates related to some of what’s been written on the past month on this discussion page... First, my wonderful doctor here in Los Angeles had her team of assistants take on Blue Shield of CA to make an appeal for…"
Nov 21, 2017
Newjack replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Does anyone know what the European regulations are for xeljanz in Europe is (Greece)"
Nov 21, 2017
Susan McAdams replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Hey there— I didn’t know Xeljanz was available in Canada and for so much less. I never had any interest in pursuing it in Turkey or Mexico because frankly, I don’t trust the regulations, or lack thereof, in those countries. Are…"
Nov 21, 2017
Newjack replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"No, not currently. It's too expensive I wouldn't be able to live."
Nov 21, 2017
Halina Svetana replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"are you yourself on it ?"
Nov 21, 2017
Newjack replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"My doctor said it has worked with all her patients. So it seems that we will have a Jak inhibitor for AA sometime soon"
Nov 21, 2017

Profile Information

Relationship Status:
Single
About Me:
I'm a divorced mother of three daughters. I am currently working on an interior design certificate at UCLA Extension. Looking to meet new friends in the LA area.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Susan McAdams's Blog

My AA and mercury poisoning?

Posted on February 26, 2014 at 7:00pm 3 Comments

I have been reading some recent posts of members of this site who are watching their hair grow back--congratulations! It is a great feeling to see progress. I had my first major attack of AA in 2007 and lost about 70% of my hair. I wore a wig for a few months, and then it grew back pretty rapidly, and I was able to ditch the wig and add in extensions to even out the short areas.

During the summer/fall of 2007, I went to every doctor I could think of and had all sorts of blood work…

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At 8:20pm on January 14, 2016, Tracy said…
I have had JRA since the age of 5, am now 40. In 2011 my hair rapidly fell out and it left me completely hairless. In summer of 2014 I heard about the xeljanz story. Being that I had RA I talked to my doctor about trying. With some hesitation she agreed. I seen immediate results with eyelashes and eyebrows. In 1 year all my hair was back. However I just recently started methotrexate in addition to the xeljanz and now my hair is falling out again. I am not sure if it has anything to do with the methotrexate or just a relapse as I am still taking the xeljanz. I don't see a Dr. For alopecia just my RA which I will be seeing on the 20th. Not sure if I can handle loosing my hair again...
At 10:59pm on January 4, 2015, RICHARD said…

My hair won't coe back and Im cool with DAT!   like my page if you are too-

At 1:12am on July 21, 2014, Rose Marie' said…

Hello Susan

I just wanted to thank you for your dating insights.  My daughter is 23 and recently finished a long term relationship.  Being able to read what you have written has been helpful for me (the mum who hopes her quiet guidance is helpful).  I will show my daughter what you have written as I believe it will give her that little extra boost she may need. 

Thanks

Rosy

At 5:01pm on July 5, 2014, LindaSue said…

Hi Susan- looking forward to hearing from you. Linda

At 1:08am on January 12, 2014, LeslieAnn Butler said…

Hello and welcome, Susan!

How are you today?

Leslie Ann

 
 
 

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