SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Discussions

Xeljanz Question

Started this discussion. Last reply by SabineTawni May 16. 4 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

SabineTawni joined Chris Jeffer's group
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Natural Treatment For Alopecia

Join a group that disregards the severity of hair loss and the allopathic (medical) prognosis of alopecia. The focus is a willingness to share experiences and an ability to be open to new approaches to healing.See More
Jun 27
SabineTawni commented on Pat's blog post Having a tantrum and feel like a 2 year old
"Pat, Stop being so hard on yourself!  I don't know why some people think it is supposed to get easier as time goes by.  Actually, in some ways it gets hard.  Think about it--the more time that goes by with this condition, the…"
May 24
SabineTawni replied to SabineTawni's discussion Xeljanz Question
"Thank you so very much for your response, Bibby.  Makes complete sense, since Xeljanz appears to be a much more refined version of an inhibitor than prednisone.  We don't want to solving one problem and creating another one (sometimes…"
May 16
bibby replied to SabineTawni's discussion Xeljanz Question
"Hi Sabine. Xeljanz and prednisone are both inhibitors however prednisone operates in a broader effect on the bodies system. Xeljanz is targeted to suppress only the enzyme Janus kinase ONE. It is this enzyme that is presumably causing our immune…"
May 16
SabineTawni replied to SabineTawni's discussion Xeljanz Question
"Nicolas, I am not sure I understand your response.  I am saying that I have heard that having an overactive immune system does make you less susceptible to infections and cancers.  However, I have also heard that sometimes people with…"
May 15
Nicolas replied to SabineTawni's discussion Xeljanz Question
"So who has alopecia areata would not have cancer...it would be wonderful but i think it's no correct."
May 15
SabineTawni posted a discussion

Xeljanz Question

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know nothing about Xeljanz, but I wonder why doctors would give someone a drug that suppresses the immune system and could cause a host of other problems.  It appears that people with alopecia areata have an overactive immune system, which mistakes the hair as a foreign invader and suppresses the follicle…See More
May 15
SabineTawni replied to Rascalx2's discussion Does this ever become easier?
"I agree that you can make choices about how you handle your feelings,Tom.  But I don't believe that you can pick and choice your feelings.  I have also tried to "refuse" to feel a certain way, and all I ended up doing was…"
Apr 22
SabineTawni replied to Rascalx2's discussion Does this ever become easier?
"Sorry, Tom, but feelings are not a "choice"; they are a given.  I am a 68-year- old female with AU.  Do I feel "sorry for myself"?  Of course, I do!  I am glad that I feel that way because that is the way that…"
Apr 20
SabineTawni replied to Maurice's discussion Time to face the truth (loneliness)
"Sorry, Maurice, but your comment about a "lot of self-pity" sounds really snarky to me.  Of course, I have negative attitude about my AU.  It's a negative situation, so what am I suppose to feel--happy for myself??  I…"
Apr 18
SabineTawni replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"I agree, Star-r-Aligned. Currently, I am 68, and I went AU at age 64. This condition is very difficult at ANY age, but it is especially devastating for young children, teens, and 20-something's. My heart breaks for them."
Apr 2
SabineTawni replied to Sierra's discussion Alopecia Hair Loss vs. Cancer Hair loss
"Your post is right on! Of course, I feel sympathetic towards people with cancer. But their hair loss issue is totally different. The hair grows back after cancer treatment. Our hair loss is much more unpredictable and could even be permanent. The…"
Mar 3
SabineTawni replied to kasbury's discussion HELP!!! I am so depressed...
"Your doctor is an a$$!! You have every right to ask questions and request blood work. And, NO, your doctor does not "know what she/he is doing". The healthcare industry keeps trying to treat Alopecia externally when it is most likely an…"
Feb 27
SabineTawni replied to Deejay's discussion Baldness Cure could be on shelves in 2 years?
"I cannot understand why insurance companies can get away with not covering Alopecia Areata hair loss. Alopecia Areata is an autoimmune disease. Insurance companies have always covered appearance-related problems if they were caused by injury,…"
Feb 23
SabineTawni replied to Patchylatchy's discussion When did you develop AU? Is the highest probabilities during childhood?
"I first developed AA at age 24.  I noticed just one quarter-sized spot.  It filled in without any treatment after about 3 or 4 months.  After that, I would get one spot (always just one) about every 5 or 6 years or so.  Again,…"
Dec 17, 2016
SabineTawni replied to Leanne ☺'s discussion University project - life lessons and positives of having alopecia
"Lauren, Forgot about the no-shaving advantage.  It really is nice, as I can be ready for the pool in the summer in just seconds (LOL!)"
Nov 9, 2016

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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