SCS
  • Female
  • Los Angeles, CA
  • United States
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Latest Activity

Razors R Stupid replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Yes, that is my son. Thank you. Latisse side effects are scary. I will look into Rodan and Fields. Thanks"
Jan 18
SCS replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"if that's your son in the picture, he is certainly a cutie!  Rodan+Fileds now have a good thing that works well for lashes and brows, called Lash Boost. If you know a consultant, you should look into it. Latisse should work too, but it…"
Jan 18
Razors R Stupid replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"I think I need a new computer so I can do more on this awesome site. My son, Nathan, has alopecia. He started losing his hair in patches as a small child. In forth grade his kitten got hit by a car. He was devasted. That's when ALL of his hair…"
Jan 18
Kathy in Denver replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Leni, I am only a couple months into this too. Not sure when it started but became very apparent late this summer around forehead. Now I realize my hair all over is thinner/texture changed. I think I lost the hair on my hairs but it is coming back a…"
Jan 16
SCS replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"How does one know if they've reached burnout stage? (Did I even say it right?) since the hair loss is slow progression, sometimes I feel like I might be done, and then I think my hairline has receded another few milinieters... do we require…"
Jan 16
Leni replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Shachar- please consider making a diet change. I've been doing the AIP diet for 3 months and the itchy scalp and the papules have diminished/decreased. Before this AIP , I was gluten free for about 5 years with some improvement. Additionally I…"
Jan 12
SCS replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"hahaha with the autocorrect! Please feel free to email me shacharlavi7 at gmail dot com. I'm 42 now but yes the hairloss started at 38 or so. I know by my 40h bday I had no eyebrows and was probably already losing hair. My mom lost her eyebrows…"
Jan 11
Christi Q. replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Finasteride and Dutesteride are the two most common drugs (at least where I live) to help halt the existing hair loss. I have a co-worker on Finasteride, but Dutesteride has shown to be a bit more aggressive at fighting so my DERM put me on that. I…"
Jan 11
Alopecia612 replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Mama sea??! OMG auto correct. It was supposed to say massive clumps ..."
Jan 10
Alopecia612 replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"I am also 37 and I have lost almost all of my hair in the last 3 weeks. It is continuing to fall out in mama sea and I'm just having the hardest time trying to handle all of this. Let's talk, I haven't found anyone else our age yet,…"
Jan 10
SCS replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"hi, thanks for your reply! I am in Los Angeles and have not heard of any research or trials being done locally.  I have lost ALL my eyebrows, which used to be so thick and pretty! I have about 5-10 whispy hairs now that grow in random…"
Jan 10
SCS replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"hi, thanks for your reply! I am in Los Angeles and have not heard of any research or trials being done locally.  I have lost ALL my eyebrows, which used to be so thick and pretty! I have about 5-10 whispy hairs now that grow in random…"
Jan 10
SCS replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Hi Christi, thank you for replying.  Why has your doctor started you on Dutasteride? how is that one suppose to contribute or help with FFA? I'm very curious to hear.   I personally have decided to not take any medications…"
Jan 10
Minter replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Hi Shachar, I am sorry about the loss of your dad, that is a lot to go through. I haven't done anything dramatic, just do my best to eat healthy and get myself to the gym, get enough sleep and take vitamins/supplements. My doctor injects me…"
Jan 10
Airam-FFA replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Hi Shachar I have just been diagnosed with FFA a few weeks ago. I am looking into the AIP - auto-immune protocol diet but not started it yet as Christmas happened along and I want to cut down gradually rather than all of a sudden. Not too keen on…"
Jan 10
Christi Q. replied to SCS's discussion New member - seeking support in the group Frontal Fibrosing Alopecia
"Most of us are trying anything and everything Shachar.  I live in terror every morning looking in the mirror and am desperate for answers and help.  My diagnosis is also FFA.  I have had MOUNDS of thick hair all my life.  My…"
Jan 10

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Relationship Status:
Married
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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