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Return_life's Discussions

Canadian doctor prescribing xeljanz???

Started this discussion. Last reply by sammy Jan 9, 2016. 1 Reply

Hi,Can anyone let me know if they are aware of a doctor in Canada who prescribes xeljanz? Needs to be Canadian so the pharmacy sell it to me.Pm me or write it on the thread, it could helpany…Continue

Tags: doctor, Canada, Xeljanz

Canadian doctor prescribing xeljanz?'

Started Jan 8, 2016 0 Replies

Hi, am sure most of you are aware of the news drugs that could help treating alopecia. All the xeljanz friendly doctors I know are located in the US. Because I am in Canada, I need my medications…Continue

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Return_life's Page

Latest Activity

Return_life replied to ac's discussion How Close Are We To Actually Finding a Cure?
"Google fecal microbiota transplant alopecia...  You will have some info. Obviously we need to have more clinical trials so we collect more data..."
2 hours ago
Return_life replied to ac's discussion How Close Are We To Actually Finding a Cure?
"Sma is a neurological disease... not an autoimmune disease like RA/Crohns/Psoriasis etc...  Autoimmune disease have no cure for the moment, only treatment. Unless you live on another planet."
2 hours ago
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"We are all in this together. You will respond. There are a few treatments, at least one of them will give you something."
Thursday
Return_life replied to gldean1988's discussion Xeljanz and scary side effects
"U nailed it. IL2 was in the past used for cancer. We know today for a fact it has an impact on alopecia. How good of an impact, well this we will know in the future but could this be an option for you? Maybe. Now if you are in North America low dose…"
Thursday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sides depend from person to person. He stopped due to acne. Very severe acne and he was on high dose"
Thursday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well I did 2 treatments of xeljanz. First time I followed the product monograph. My only improvement was my nails. Lol. Doctors told me I was a non responder. But am way too stubborn. Basically I saw some of the best doctors of USA Europe and…"
Thursday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I got 100% facial hair and body hair back. My head is around 40% but I don't have patches. It's just overall less density than what I had. On the other hand  some is due to male pattern balding hehehe."
Thursday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I personally know someone AU for 30 years. He stopped xeljanz after 1 year of taking it. I told him 'hey u might lose it all...'  5 months since he stopped and guess what? He lost some the first month he stopped but he suddenly had…"
Thursday
Return_life replied to gldean1988's discussion Xeljanz and scary side effects
"Immunosuppresor are nothing new. It's been prescribed for autoimmune disease for a long time.  I have been 10 years AU and I have been taking the medicine for a few months... i choose to continue taking it. No hair isn't everything. I…"
Thursday
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"2 things u gotta be careful with higher dosage cause it can make u stop the treatment. Acne ( don't take this one lightly. I've seen some case of extreme acne with very high dosage.) Awesome regrowth but severe acne is a big No. Remember I…"
Dec 6
Return_life replied to Mscilla's discussion PRP for AA anyone try it?
"Prp gave some results to the son of deveze marc. Not a complete regrowth but a little bit. So we were thinking it could give a boost for the one not having full regrowth by combining to Interleukin 2 or xeljanz."
Dec 6
Return_life replied to Mscilla's discussion PRP for AA anyone try it?
"Bonne nouvelle si tu dis que le prp  a eu un resultat.  Peut etre en le combinant a il2 ou xeljanz ca aiderait"
Dec 5
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You just started therapy... for the next month try not to think too much about it (it's impossible I know) You will go how many times in front of the mirror. Personally I think the responders rate of xeljanz is very very high... Even in cases…"
Dec 5
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's nornal. As soon as I start an immunosuppresor I have a cold the same week. Often I have symptoms the next day!"
Dec 5
Return_life replied to Kdh's discussion Xeljanz and methotrexate together to improve efficacy
"Exactly. I think we are in a phase where physician need to try combinations for non responders"
Dec 5
Return_life replied to Kdh's discussion Xeljanz and methotrexate together to improve efficacy
"C est une bonne nouvelle Kevin. Bcp de gens meme avec xeljanz ont une repousse extremement lente... cheveux par cheveux. Dans mon cas mes ongles aussi ont eu une tres bonne amelioration assez vite. "
Dec 5

Profile Information

Relationship Status:
Single
About Me:
30 years old male checking in...
Great career, good life. I am not depress by this at all but it was tough as hell in the beginning. Just curious to meet other people like me!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:15am on October 17, 2017, Frida Rupert said…

Hi return to life,

thanks for answering my questions and befriending me. Tough times with this stupid condition. As I said in the comments- I'm well into month 3 (week 11) on xeljanz and the results are so far a bit depressing. I think i am a responder as body hair and eye lashes are beginning to come back but my scalp is only showing   little improvement.

I am from Sydney Australia and unless you have arthritis then Xeljanz is somewhat expensive ($1300 AU  a month). I am lucky because my sister is a diplomat and worked for a while in India, so I was able to import some in (I have scripts from both an Aussie doctor and an Indian doctor) with her contacts that is still expensive but less then Australian prices ($US460 for 60 (5 mgs). I'm currently getting 3 months worth sent over and then get 8 months (of 10 mg a day) over in December as my brother in law does aid work there so is going to bring me the balance of 12 months worth (after the stuff I've used). If i go up to 20 mgs I kind-of have to wait til January when my BIL gets back but I've upped myself to 15 mgs and will subsidize my India load with some bought in Australia. I am going to plan on returning to India in 2018 to resupply and then I hope like hell the generics come to market.  

I've only been AT/AU for 6-7 months before I started and have had two very minor spotty episodes in my early twenties (am 35 now). I'm just so hopeful this will work. For me, yes some of it is vanity- when my hair is "normal" its thick and brown and I've always worn it long so this truely sucks but what people who don't have AU/AT don't realise is that its a pain in your ass- you get stuff in your eyes, your head gets hot/cold, you get massive anxiety...so for me finding a solution is my number one aim (after being a good mummy- which is hard to do when you feel so crap). Anyhow thanks so much for your advice.

I'm hoping one the patent expires we get flooded with cheap generics and then we can all go to a optimal dosage based on our bodies needs as opposed to be dictated by our bank balance..

Again Thanks for responding. Its hard at the beginning not knowing if its gonna work or not (I tried Methotrexate, Cyclosporine and prednisone and topical steroids prior to started on xeljanz - they didn't work hence my shift to xeljanz, luckily my bloods are continuing to be perfect but the roller coaster of ups and downs is getting hard to ride....).

Frida (Deb)

At 4:07pm on June 16, 2017, Sara said…
Shomare telephon man dar telegram
09107427390
At 4:05pm on June 16, 2017, Sara said…
Salam
Barname telgram darid?
Baray sohbat?
At 9:39pm on February 12, 2017, Stars-r-Aligned said…
Hey, I saw your message...however....I have androgenetic alopecia...the kind that's genetic pattern baldness...I don't think anything will help my hair.
At 12:21am on February 10, 2017, ejeffw said…

Hi, nice to meet you. 

At 4:48pm on December 1, 2016, 2ed6qhl69eh4n2ed6qhl69eh4n said…

Hi, nice to meet you!

 
 
 

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