Rascalx2
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  • Atlantic Highlands, NJ
  • United States
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Rascalx2's Discussions

Does this ever become easier?

Started this discussion. Last reply by Bonnie Piper May 6. 23 Replies

Im just having such bad couple days, Ill do good for days then become overwhelmed that I will look this way for the rest of my life. I just want to not care what I look like! I feel so vain that Im…Continue

Fake eyebrows and hopelessness

Started this discussion. Last reply by Nicolas Feb 23. 43 Replies

I have AU since January 2016. Was looking into the false/fake eyebrows, anybody have input on positive/negative aspects of them? I feel that it really alters appearance w/ out eyebrows. So…Continue

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Latest Activity

Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think that their target audience is for natural balding from genetics. i think that is where the money is at for drug companies. That will probably be addressed before alopecia disease. But Ill try and stay optimistic!"
Tuesday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Anybody try allegra for alopecia? My derm said to try it but Im not expecting much. Wish it was that simple. Got two shots of cortisone in butt to try and stimulate some growth w xeljanz. I am startinh to see black hairs on brows, even some strays…"
Aug 8
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I noticed my appetite increased alot when I started xeljanz, Not sure if that may the reason people are having weight gain. I try to eat right/ healthy most of time and appetite did subside. I have not had weight gain."
Aug 8
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Im gonna give shots a try, I m going to derm friday to talk about it. I thought it would just fall out after few weeks.., it has stayed for you? Thats posistive ! I have a white beard and lot of white hair on sides of head, left eye has full…"
Aug 1
Rascalx2 replied to Deeann's discussion Feedback about your experiences with doctors and nurses when first being diagnosed
"I dont know if alopecia has anything to do w passing out but I had an experience of being extremely lightheaded and almost passinh out right around time when alopecia first started, which I never experienced before."
Jul 31
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
""During" alopecia? Has your alopecia gone into remission? I want to buy all the shampoo I can, I'll give you thousands!"
Jul 28
Rascalx2 replied to Deeann's discussion Feedback about your experiences with doctors and nurses when first being diagnosed
"I think the issue with getting an appt with a derm in a timely matter is impossible! When I first sfarted to have hair fall out, it was pretty much gone by the time I got in for appt."
Jul 26
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I know mine was triggered from an intense, emotional incident which happened as I was coming out of a chronic stressful 2 year journey. I know for a fact that was how mine started... not to say that is what it is for everyone, but at the time I felt…"
Jul 20
Rascalx2 replied to Deeann's discussion Feedback about your experiences with doctors and nurses when first being diagnosed
"I really relate to your experience, the worst part of finding or figuring out you have alopecia is the research states it is a hopless disease and hair is probably not going to grow back. I still cannot get used to peoples reaction when they see me,…"
Jul 20
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks, been on 20 mgs xeljanz a day for past 3-4 months and the results I have are definatley from mg increase, have 6 black hairs on my knees, which you know thats where you want it."
Jul 19
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have increased hair on beard, sides of head brows and lashes. The hair is pure white almost transparent, for past few months. Anyone have insight if hair turns back to color? I have nothing on top of head, and nowhere else on body..,, seems…"
Jul 19
ok liked Rascalx2's discussion Does this ever become easier?
Jul 11
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been living healthy lifestyle w: great diet for over 30 years, alopecia hit my system like a tornado.., then I up'd to a strict diet for a year gluten free, dairy free, corn free, nut free.. after a year of zero results i went back to…"
Jul 9
Rascalx2 replied to kevin's discussion Interleukin 2 low dose THE CURE
"The only growth I have w xeljanz is beard but its completly white, brows are slow and white, does the color come back? On 20mg a day. My choice is I either look old or like a chemo patient.Im okay with bald head, its just the bare face w out…"
Jul 2
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I also have ulcerative colitis for about 20 years, was on an immunsuppressant for long time, I stopped taking it and about 3 months later all hair fell out within 8 days. Mercaptopurine was the drug and causes hair loss, however hair loss Is a side…"
Jun 27
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Anyone here try humara, another RA drug? Or any of the other RA drugs? Since it is thought to be the same pathway as alopecia (auto immune) was wondering if anyone had RA and alopecia which was helping both?"
Jun 26

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Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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