Montrealer1976
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Relationship Status:
Single
About Me:
On and off AA,AT and AU since i'm 10.

10 years old - AA patches became bigger and bigger and turned into AU within 6 months and lost all body hair including eyebrows and lashes. cortisone shots brought back eyebrows. Wore a cap to school.

12 years old - All hair suddenly came back.

13 years old - Almost all hair fell out again. just a bit was left here and there. Eyebrows did not fall. Wore a wig til I was 18.

16 - Diagnosed with Crohn's Disease

18 years old- All hair came back ... new life.

18 to 31 - Had all my hair + body hair all these years. would on and off have a little small round patch here and there on head or beard but just ignored and came back.

21 year old - had first crohn's surgery ... felt great for next 10 years

31 years old - Crohn's symptoms was put on REMICADE, immune modifying drug. 3 months later in march LOST ALL MY HAIR... AU. Remicade was not helping. stopped remicade.

31 years old - 6 months after stopping remicade ALL HAIR CAME BACK and then had 2nd crohn's surgery

37 year old - Crohns symptoms again. Doc puts me back on Remicade not believing it was cause on my Alopecia 6 years ago. 3 months later Lost all my hair again including eyebrows and lashes.

38 year old TODAY - Stopped remicade 6 months ago ... eyebrows growing back and peach fuzz on head which was always initial sign of regrowth in the past.

Remicade definitely retriggers AA or AU in people who have previous history of Alopecia. Something about how it regulates the immune system.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 11:34am on November 23, 2014, Morgan said…
Hello. Welcome. Your story is interesting to me. I've had alopecia universalis since I was 32 when it started as a small patch on my beard. Nice to meet you. Morgan
At 3:05pm on November 17, 2014, JeffreySF said…

Welcome to Alopecia World.

Jeff

 
 
 

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