Marytee
  • Female
  • Worcester
  • United Kingdom
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Airam-FFA replied to Marytee's discussion Results of Research at Guys Hospital for FFA, any results?? in the group Frontal Fibrosing Alopecia
"Hi Mary I understand that they are presently working to validate the results of the research. Like you I am very eager to learn of their findings. Hopefully, it will not be too much longer. xOx"
Oct 15, 2017
illustr8r replied to Marytee's discussion Results of Research at Guys Hospital for FFA, any results?? in the group Frontal Fibrosing Alopecia
"I did Google searches but the results were nothing current. You’ll have to keep asking your doctor about it and let us know what you find out."
Oct 15, 2017
Marytee added a discussion to the group Frontal Fibrosing Alopecia
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Results of Research at Guys Hospital for FFA, any results??

Hello EveryoneI saw my Consultant last week, she said that the dermatology community were looking forward to the FFA results at Guys as something has been found. She didn't know any detail as yetDoes anyone know how the results will be disseminated?I made a decision to stop the Hydroxychloriquine as well. Looking back at photos I have had FFA for a couple of years prior to diagnosis and hope it has burned out, at least for nowHope everyone is wellMary See More
Oct 15, 2017
Marytee liked Jacq's discussion Medication Break
Oct 14, 2017

Profile Information

Relationship Status:
Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 9:59pm on March 27, 2016, LeslieAnn Butler said…

Hello and welcome!

How are you today?

 
 
 

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