"I myself am I mother with a son who was just recently diagnosed with alopecia. I wnat to know if Hair up is legit as well. I will try anything at this point."
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Louise (Jeremy's mom)
- Female
- Philadelphia, PA
- United States
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Leenda replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss
Keri's Mommy replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Hi Louise, My name is Constance Burts and my daughter was just recently diagnosed. I know that this post is really old, but I was wondering if Hair up is legit, and if you are still having success with the product. Also, how expensive was it?"
Gaurav Batra replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Hello Louise, I have a 16 month old son who just got diagnosed with Alopecia with most of his head bald at this point. Would you please summarize your whole experience, all the sterioids, hair up and other treatments that you may have used in…"
MotherofM replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Hi, How is your son doing now? Has been able to keep his hair? Are you still using the Hair Up?How did you get the medication? My 15 month old son is going through the same thing. Any advice is appreciated.
Thanks!!"
"I agree, I will try ANYTHING to get my daughter's hair to grow back! There has to be something that will work :( I will never give up :("
Fizza replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"I also used Hair Up for my son who was 17months old when we started. By this point he was actually almost universalis. All that was left was eyebrows and eyelashes and they had thinned. We didn't even realise the hair on his body was gone until…"
Louise (Jeremy's mom) replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"I just wanted to give everyone an update on our experience with the Hair Up treatment. We began using the treatment in September 2009, and Jeremy has since kept all of the hair that regrew. I still occasionally use the treatment, but only once or…"
Jeanette Andrescavage replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"AMEN SISTER!!!! My son Michael has been bald since he was eight months old. We went to a dermatologist at Cardinal Glennon Childrens Hospital in St. Louis who explained that AU is severe and autoimmune. If autoimmune disorders could be reversed,…"
Alia Ingerslev replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"I admire you on your confidence and acceptance of the situation. I feel the same way about my son. He is great, he is confident and funny. He has lots of friends and the few times with teasing we have dealt with without scars to his soul. If his…"
Alia Ingerslev replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Hello Rocio
I felt I needed to share our experience in using Hair Up on our 7 year old son. His story short: As a toddler he had parts behind his ears where the hair didn’t grow. We thought it would grow with age which it did. 2 years ago we…"
Rocio Del Cueto replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"I am interested in knowing if the Hair up treatment gave you lasting results... i just recently contacted Mr. Gonen and he said that he didn't guarantee any growth but that I could try it for my 11 year old daughter. She also goes to a…"
Evelyn (Amanda's Mom) replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Hi my name is Evelyn, my daughter Amanda has AA she's lost about 30% of her hair. Can you give me some more info on this "Hair Up" treatment. I've tried a few things and nothing seems to work. Is Hair Up a shampoo? ointment? Does…"
Sharon Szeto replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"Are there any side-effects of using Hair Up in long run? My girl is 2 1/2 and she was 1 1/2 when she first has AA. Shall we get more info. about Hair Up? As we are not in US. ,can it be ordered and used without doctors' perscription?"
rach replied to Louise (Jeremy's mom)'s discussion Hair Up treatment in the group Parents of Children with Hairloss"i know how you feel reading your post sounds just like how i feel my son is six and has alopecia , he has had it since he was two and a half and the most of that time he has had no hair, no eyelashes and no eyebrows his hair finally regrew last year…"
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- Relationship Status:
- In a Relationship
- About Me:
- I am the mother of a four year old boy named Jeremy who developed alopecia last May 2009. At first we thought he had a fungus, but then he was diagnosed with alopecia areata. Within a few months he had lost all of the hair on his head (thankfully his eyelashes and eyebrows were not affected). It was an extremely difficult thing to go through, feeling helpless as I watched more and more hair disappear. I researched relentlessly and found a product called "Hair Up" made by a scientist in Israel named Shmuel Gonen. I started using his products on Jeremy back in September and noticed hair growing within a couple of weeks. Jeremy now has more than 90% of his hair back (Thank God!). I am hopeful that he will keep his hair, but I know that alopecia is so unpredictable... However I am confident that this will only make him stronger in the long run if he continues to lose and grow back hair. Anyway I'm just on here looking to connect with other parents who have gone through this same situation and hope to meet some in the area!
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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Comment Wall (4 comments)
- At 7:23am on February 22, 2010,
Cindy and Samantha said… - Hi Louise, Nice to hear back from you. It is really hard to deal with the initial shock of Alopecia. It is almost like the world is over. But, it is our kids that matter most and helping them to accept and live with it. They will be the ones having to face the world and the questions as time goes by. The first things I went to was hard and I cried. I am not sure if we can make it this summer, but we are going to try. With CAP based out of PA there is a big network of families. I am sure Betsy can find someone near you if you can't make it to one of their meetings. I do know it would be worth the drive to go to one if you can. It will help you to talk to other parents and it will help; your son to know he is not alone. Are you trying any treatments?
- At 2:22pm on February 20, 2010, Cindy and Samantha said…
- Hi Louise, I am mom to an 8 yr old with Alopecia. You have a handsome looking young man. How are you? I see Thea suggested contacted CAP. They are a great organization and have support group meetings in Reading PA. CAP also just started a pen pal program and we can find Jeremy a pen pal. I am assisting Betsy the executive director with this. Last summer was the first Alopeciapalooza in Philly. There were kids activities and parent workshops. My daughter had a blast. This summer they are holding the conference at a camp site in the Poconos. Both you and your son will meet so many people. Cindy
- At 8:30pm on February 17, 2010,
Aimee said… - Your son is just too CUTE! What aromatherapy are you referring to, that people in other countries used with success?
- At 11:52pm on February 16, 2010,
BaldGirlsDoLunch.org said… - Hi Louise and welcome,
There's a parents group here on AW and many many mothers and fathers sharing information and experiences throughout the discussion sections.
The CAP conference this summer would be ideal...not too far from Philly.
The info for it is at ChildrensAlopeciaProject.org
Thea
www.BaldGirlsDoLunch.org
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