I have had alopecia for 9 years. My hair has fallen out (and grown back) 5 times (3 times AT, twice AA). My alopecia ALWAYS flares up in the fall. Usually October to November (this time of year :( ) and the grows back in the summer months. I also…
Hey girl! found out some info from the group on here for a support meeting:
National Alopecia Areata Support Group Meeting
It's Been a While Meeting
Dec 20, 2009 from 1 pm to 3 pm
Location:
Mary Anne Studio
411 E. Lancaster Ave. Suite…
I am 25 years old and have had some type of alopecia since I was 19. At first I was diagnosed with Alopecia Areata in 2002 and after about 1 year of patchy baldness all of my hair grew back. It then fell out again completely in 2004, but totally grew back in the beginning of 2006. I had a full head of hair for a few months before but before I knew it I was Alopecia Universalis again! It finally grew back in the beginning of this year and I really thought my hair was back to stay but is falling out again pretty rapidly now.
Hey girl! found out some info from the group on here for a support meeting:
National Alopecia Areata Support Group Meeting
It's Been a While Meeting
Dec 20, 2009 from 1 pm to 3 pm
Location:
Mary Anne Studio
411 E. Lancaster Ave. Suite 100
Wayne, PA 19087
Phone: (610) 687-5700
would you be interested in going? im going to arrange my work schedule so that i can go. i think it'll be fun to meet some people!
Yup, the dance party at Viva is the 27th. Congrats to your sister! the meeting for this month was on the 15th, which i had to work. i tried looking at the calendar on the CAP website but there isn't a date set yet for the Dec meeting. but i'll let ya know as soon as i do. or if you're interested at lookin around on the site it is www.childrensalopeciaproject.org it's a pretty nice site and has some merch too, i might actually get myself a hoodie =) i love love LOVE hoodies! well, i must work on an essay due for class tonight. haha. and hey, if meeting up at a meeting or event doesn't work out, we can definitely try to figure something out on our own. either way it would be nice to know someone else in person with this. do you know anyone else? okay well, i'll ttyl! have a great night!
Hey girl! haven't heard from ya in a while, thought i'd drop by and say hello! ...HELLO! =) went to the Sweet Street CAP fundraiser last week and met Jeff Woytovic who founded it in this area and his daughter who has universalis. what sweet people. anyway, he informed me that there are monthly meetings and that we are more than welcome to join them. and also there is an event coming up at Viva with the band Burning House playing. it's $10 but the profits go to CAP. so there's a few things that if you're interested in going to but don't want to go alone, i'd be more than happy to meet up and make a friend and go together! Well i hope this finds you well and that you have a great weekend!
i believe this saturday and sunday CAP is going to be doing their sweet streets fundraiser in the target parking lot (if it's the same as before). i'll be stopping by to pick up a goody for thanksgiving dinner and hopefully meet a few people. do you have facebook? CAP is on there and I've been sent a few invitations to events coming up. There is a benefit dance at Viva at the end of the month too i think. sorry, i dont have my calendar in front of me lol so im not exact on the date. but i'd definitely be up for going to meet people and someone local!
i believe that's the one. it's right off the mount penn exit off 422. So we don't live far apart, that's really cool. Do you know about the CAP program in the area? i believe they're having a fundraiser Nov.14th in the target parking lot in Wyomissing, or at least that's where they had it two years ago (wasn't living in this state last year for it so i missed out). i'm hoping to drop by there and buy a few snacks for Thanksgiving dinner and hopefully meet some people. and i just learned on facebook that there is a benefit jan.31st at the reading country club. they're benefits for CAP but i'm going to try to attend these things to meet others and if i can make any little girls feel better that would be awesome too. sorry for rambling, just got excited that someone lives near me lol
Wow that's awesome that someone's nearby! that kinda just made my day.... lol. i go to family dermatology in exeter. are you looking for a dermatologist or do you already have one? have you been treated for your alopecia before?
hello! I just joined this site and so happy i found it. i live in fleetwood not far away at all. would love to chat!! i want to help out with Children's Alopecia Project as well did you go to the fundraiser if so would love to hear all about it. look forward to hearing from you.
We would love to have you anytime! Go to www.childrensalopeciaproject.org and check out the calendar and show up! We would love to know if you are coming though!
Put on your calendar Saturday, March 28th. That is the biggest fundraisier we have and it's called the Spring Spectacular. Email me you and your husbands name and address and we will get you on the invitation list, include others too if you want them invited. I will email you some info I am sending to potential spnsors and donors of silent auction items. We will have 350 people attend and hopfully will raise $40 - $50,000.
Look forward to hearing from you jefferywoytovich@yahoo.com
yes...I agree. I think some people have dealt with this for so long though, that they are tired of fighting. I'm already tired and it's only been a year!! lol but I am always interested in finding the common link between us ; ) I just wish I knew a long time ago how bad it could get...so i could have ordered a freedom wig back then....and I ALWAYS wonder why did it get so bad this time? Im similar to you...I had AA like 5 times...never thought nothing of it...and then, out of no where...AU. Couldnt have been stress...so Im not sure what triggered it ; ) Im here to talk anytime!
hey kelli, thanks for the warm welcome! so i see the nittany lion behind u in your default pic - penn state? my older sister graduated psu and my lil brother currently attends hehe small world, huh? anywho, yeah, this site really does help me feel less alone. i was just diagnosed last month but it's really getting easier to deal with as long as i focus on the world around me instead of obsessing over my hair! well ttyl & thanks again
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.