Joey
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  • Beach Haven, NJ
  • United States
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Joey's Discussions

Ruxolitinib

Started this discussion. Last reply by Nykodym Nov 5. 22 Replies

I have been on Ruxolitinib (Jakafi) for 1 month now and have seen some small white hairs on scalp and arms. I have been universalis for about 12 years, I am 22. Dr. King prescribed it on a whim…Continue

Tags: jakafi, ruxolitinib

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Nykodym replied to Joey's discussion Ruxolitinib
"I don't know rules of this forum but ... Maybe someone have used (open) box Ruxolitinib for sale. I am from Ukraine, but have post adress in US. Thanks."
Nov 5
Carlie replied to Joey's discussion Ruxolitinib
"Are you still taking the Ruxolitinib and how is the hair coming?"
Oct 15
singh replied to Joey's discussion Ruxolitinib
"Hi joey could you show dr King this article Chris has postered and see what his opinion is on it ? I personally think looking at it there a lot of factors such as there all 5 patients of age, and they seem to have had high dosage of other treatment…"
Jul 26
Patchesforlife replied to Joey's discussion Ruxolitinib
"Hi Joey. Can you please ask Dr. King when doe he think fda will approve drugs for alopecia?"
Jul 26
Patchesforlife replied to Joey's discussion Ruxolitinib
"Hi gra. Why dont u start a thread a new one with details? Lets haave our voices heard!"
Jul 26
Patchesforlife replied to Joey's discussion Ruxolitinib
"Please keep us posted!"
Jul 26
ChrisPowers replied to Joey's discussion Ruxolitinib
"Here you go."
Jul 25
LIU CHUNXIU replied to Joey's discussion Ruxolitinib
"could you please post the full paper?"
Jul 24
ChrisPowers replied to Joey's discussion Ruxolitinib
"My dermatologist was willing to prescribe it until this article was published: https://www.ncbi.nlm.nih.gov/pubmed/28628689 "Aggressive Skin Cancers Occurring in Patients Treated With the Janus Kinase Inhibitor Ruxolitinib" As a result,…"
Jul 24
Joey replied to Joey's discussion Ruxolitinib
"I guess it is only some dermatologists that are willing or aware of the medications"
Jul 24
Joey replied to Joey's discussion Ruxolitinib
"Search Dr. King Yale dermatology. You should be able to find him that way"
Jul 24
Joey is now friends with Return_life and singh
Jul 24
eleven11 replied to Joey's discussion Ruxolitinib
"What kind of doctor prescribes Jakafi or Xeljanz?  My dermatologist isn't on board, and, at this rate, I'm a month away from a completely bald head."
Jul 18
singh replied to Joey's discussion Ruxolitinib
"Thanks joey"
Jul 18
Joey replied to Joey's discussion Ruxolitinib
"I'll ask him when I see him in 2 weeks On week 5 now and my head is filled with vellus hairs. Vellus hairs on my body and some thickening of fashial hair I had before treatment. Hoping the vellus hairs go dark soon. I will keep you all updated"
Jul 18
gra replied to Joey's discussion Ruxolitinib
"Also, I'm not sure if you all are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.” The public meeting is intended to allow FDA to obtain…"
Jul 18

Profile Information

Relationship Status:
Single
About Me:
From NJ I like to surf, listen to reggae music and be with my friends and family. Please talk to me!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 5:18pm on March 5, 2014, LeslieAnn Butler said…

Hello and welcome, Joey!

How are you today? I have AU, too.

Leslie Ann

 
 
 

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