Joey
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  • Beach Haven, NJ
  • United States
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Joey's Discussions

Ruxolitinib

Started this discussion. Last reply by eleven11 on Tuesday. 11 Replies

I have been on Ruxolitinib (Jakafi) for 1 month now and have seen some small white hairs on scalp and arms. I have been universalis for about 12 years, I am 22. Dr. King prescribed it on a whim…Continue

Tags: jakafi, ruxolitinib

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Latest Activity

eleven11 replied to Joey's discussion Ruxolitinib
"What kind of doctor prescribes Jakafi or Xeljanz?  My dermatologist isn't on board, and, at this rate, I'm a month away from a completely bald head."
Tuesday
singh replied to Joey's discussion Ruxolitinib
"Thanks joey"
Tuesday
Joey replied to Joey's discussion Ruxolitinib
"I'll ask him when I see him in 2 weeks On week 5 now and my head is filled with vellus hairs. Vellus hairs on my body and some thickening of fashial hair I had before treatment. Hoping the vellus hairs go dark soon. I will keep you all updated"
Tuesday
gra replied to Joey's discussion Ruxolitinib
"Also, I'm not sure if you all are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.” The public meeting is intended to allow FDA to obtain…"
Tuesday
JB replied to Joey's discussion Ruxolitinib
"A possibility of a new medical solution for Alopecia Areata. Hcell has filed Orphan Drug Application at US FDA for Extensive Alopecia Areata in the pediatric population.…"
Jul 17
singh replied to Joey's discussion Ruxolitinib
"Hey joey, keep us updated with your progress bud, it be interesting as you also took xeljanz to compare your results for non-responders. Any update from Dr King if anything is getting approved by FDA for alopecia? Kind regards"
Jul 14
Return_life replied to Joey's discussion Ruxolitinib
"I had regrowth after 2 months"
Jul 14
Joey replied to Joey's discussion Ruxolitinib
"Yeah I couldn't find much on here about jakafi, I seemed to have slipped through the insurance cracks. Growth has came much quicker than when taking xeljanz. I'll keep you guys updated. Tag me/ connect me with anyone on here taking jakafi…"
Jul 13
Joey replied to Joey's discussion Ruxolitinib
"I was on it about 7 months. Saw growth around 4 then stalled out and faded after that"
Jul 13
Theresa replied to Joey's discussion Ruxolitinib
"How long were you on Xeljanz before you started to see regrowth? I just started taking Xeljanz a few weeks ago.  Since you've been taking it for 6 months, have you experienced any side effects?  "
Jul 13
Return_life replied to Joey's discussion Ruxolitinib
"Joey you are one of the very few on ruxolitinib... here everybody I talked to is on xeljanz. 50% are responding well and 50% so so I would say. it is very important that u keep us posted on your regrowth. am on xeljanz for 6 months with good…"
Jul 13
Joey posted a discussion

Ruxolitinib

I have been on Ruxolitinib (Jakafi) for 1 month now and have seen some small white hairs on scalp and arms. I have been universalis for about 12 years, I am 22. Dr. King prescribed it on a whim thinking it would not get covered but they did it. My dad is a doctor so I think his health insurance is just good like that. It is called Amerihealth.I tried xeljanz for 8 months, saw a little regrowth but then it kind of stalled out and faded away. Jakafi seems to be responding much quicker. I am very…See More
Jul 13
Joey replied to Sabri's discussion Ruxolitinib Medication
"I have been on it for a month now. Was lucky enough to have insurance (AmeriHealth) cover it + a copay assistance card. I have seen small white hair growth on scalp face and arms so far. I will keep you all posted."
Jul 13
Joey updated their profile photo
Mar 6, 2014
Joey updated their profile
Mar 6, 2014
Joey is now a member of Alopecia World
Mar 5, 2014

Profile Information

Relationship Status:
Single
About Me:
From NJ I like to surf, listen to reggae music and be with my friends and family. Please talk to me!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 5:18pm on March 5, 2014, LeslieAnn Butler said…

Hello and welcome, Joey!

How are you today? I have AU, too.

Leslie Ann

 
 
 

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