"Wow ...that's really touched me. I'm going to write that down. How appropriate are those words.Thank you and bless you Megan. Jo x"
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Jo kelly
- Female
- United Kingdom
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Lynn replied to Jo kelly's discussion Does anyone know anything about the drug 'Ciclosporin' ..... in the group Cicatricial (scarring) Alopecia"Hi Jo,
I have cicatricial alopecia also. Mine is a slightly different type than yours although I wouldn't be surprised if I had a combo of the frontal fibrosing and what I was diagnosed with; lichen planopilaris. I still have a good amt of hair…"
Jo kelly left a comment for Megan"Hi there Megan.....Thank you for your warm welcome. It'll be nice to get to know you all. I do hope youre feeling in good spirits.
I'm from Cheshire...though originally from Liverpool. I married a Scottish man. Though were not together…"
Megan left a comment for Jo kelly"Hey
Just wanted to say a big warm welcome from the Christians with alopecia group :)
God Bless x"
Jo kelly joined Megan's group
Christians With Alopecia
Come chat about how your alopecia has affected your faith,how your faith has affected your alopecia,or just for plain old chatter.Open to questions,debates etc.But please always respect others beliefs.
Jo kelly added a discussion to the group Cicatricial (scarring) Alopecia
Does anyone know anything about the drug 'Ciclosporin' .....
I'm new here and have just been recently diagnosed with Fibrosing-Scarring alopecia. It's the slow type...meaning- i'm slowly loosing all my hair. Though i've lost quite abit now. It's been two years since i first noticed it. I seen three different dermatologist over those two years. I kept asking to go back as i knew something wasnt right....You just know dont you. but they said it was just stress...then it was my age etc ect...Eventually through my insistence i was sent for a biopsy one month…See More
Jo kelly replied to ALLY's discussion Does scarring alopecia eventually worsen or is it possible to prevent further bald stops coming in the group Cicatricial (scarring) Alopecia"Hi Ally... I'm Jo. How are you, how's things for you. Ive just recently been diagnosed with the Scarring type too. I'm also very upset all the time. I too want the answer to the same questions you asked and more......"
Jo kelly commented on Crowned Regal's group Cicatricial (scarring) Alopecia"Hi all- I'm new...I'm having difficulty finding my way around on here...I'm not even sure if this is where i'm supposed to be to asked questions? It's so frustrating it's making me feel inadequate.....
Ive just recently…"
Jo kelly joined Crowned Regal's groupCicatricial (scarring) Alopecia
Cicatricial (scarring) alopecia refers to a group of rare disorders which destroy the hair follicle and replace it with scar tissue, thereby causing permanent hair loss. Those afflicted with this type of alopecia are faced with some special needs.See More
Profile Information
- Relationship Status:
- Single
- About Me:
- Hi...I'm Jo
I'm a very young minded etc 54 year young woman.
I've Just been informed this very day...after having a biopsy 2 weeks ago, that i have ' Scarring hairloss' also known as 'Fibrosing alopecia'. It's mainly at the frontal lobe....and around tha whole hairline but not as much as front.
My emotions are scaling from between being totally devastated to numbness. I see my consultant in two weeks. Is there anyone out there with the same stuff going on....if so please HELP!.......
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Jo kelly's Photos
Comment Wall (10 comments)
- At 2:24pm on November 13, 2009,
MiNAH said…
- Remember I told you...that hair or no hair..you are Beautiful!
- At 2:23pm on November 13, 2009,
- Having a good day..is not denial..it's a good day.
I think we sometimes forget for a second and then the hell of remembering creeps back into us.
Is that what you mean?
Enjoy the good moments..because they can be far and few.
It takes years...no lie..and it's all about fighting those deamons...right!
"Smile"
- At 2:00pm on October 12, 2009, Megan said…
- Hey
Just wanted to say a big warm welcome from the Christians with alopecia group :)
God Bless x
- At 4:50pm on October 9, 2009,
LeslieAnn Butler said…
- Thank you for the compliment! That particular wig is a synthetic by Rene of Paris called Brandi; the color is Butterscotch. I cut it about 2 inches. You can get it at a discount on www.wigsalon.com.
- At 3:07pm on September 24, 2009,
- Hello and welcome, Jo --
I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com. Let me know if there's anything else I can do! I am here to help.
LeslieAnn
- At 8:22pm on September 21, 2009,
Erin Barber said… - Hi Jo, I am so confused with it all also. I have been losing hair on my head for a year. Everytime it grows back it falls out. Recently I have been losing my eyebrows, eyelashes, arm hair, well hair all over my body. I am going back to my doctor soon also. I am going to have a list of questions ready so I can have everything answered. they did give me a cortizone ? shot I saw some new growth but it fell out. I am sorry that you are having to go through this but try to remember we are not alone. I got really depressed for a while but I'm tired of it having this control over me. I have so many things to be grateful for,with or without hair. I am praying for you. Erin!!
- At 10:32am on September 20, 2009, Erin Barber said…
- Hi!! I was just diagnosed with alopecia too. How are you?
- At 11:57am on September 18, 2009,
Cheryl, Co-founder said… - Hi Jo, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Cheryl
co-founder
- At 3:35pm on September 17, 2009,
lynne said… - hello, thanks for the pic comment, very kind of u, how r u doin, i hope ur well, catch up sn x
- At 8:38pm on September 15, 2009,
Tracy and Amanda said… - Hi Jo,
How are you?
Tracy
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