There is much more to FFA than losing some hair. I believe there is a connection between a vitamin D receptor variant, oestrogen, osteoporosis, autoimmune disorders, some minor anomalies, ie. sebacious cysts and facial pigmentation…"
"Hi Ellen No. .My dermatologist has really never mentioned that FFA is an auto immune disease. I don't feel like I have anyone looking at the bigger picture of all of this for me. I see my dermatologist and she tells me to use a topical…"
I've just recently been diagnosed with FFA and I also have a mild vit D deficiency. Mild though - I was told not to worry too much.
I live in Sydney, Australia and pretty much always have sunscreen on. Anything is better than skin…"
"Hi all-I haven't posted in awhile either but I'm very interested in all of the replies. Like many of you I started losing my eyebrows a couple of years ago then last summer my scalp started itching like crazy and the texture of my hair…"
"I went to my doctor concerned about my hair loss 2 years ago. She dismissed it as 'normal' but did find a vitamin D deficiency then. A simple OTC supplement got vitamin D to normal levels. This year she could see what I was talking about…"
"When I started to lose my eyebrows (2012) they did a bunch of blood tests and the only abnormal thing I had was vitamin D deficiency. It took another two years - and a dermatologist who did the skin biopsy - to finally realize I have FFA. I've…"
"Have not posted in a quite awhile and found all of these replies to your post interesting. I have had FFA and lichen planopilaris for the last 4 years although I think there were things going on long before that . I had been treated for…"
"So many questions. OK - sunscreen. My mother is a redhead with very white skin. She always avoided the sun and covered up. I had zinc cream on my nose and cheeks when I went to the beach as a child but didn't use any product with sunscreen in…"
"I agree Maz. I just saw an article come out today that is stating that miRNAs may be involved in the pathology of FFA. The science is over my head, but miRNAs have something to do with gene expression. I suspect that there it is something from the…"
"@Maz and @PaulieGirl
What were your ANA numbers? With my last flare I had a positive ANA for Scleroderma (Scler-70: 3.5).
I went to a rheumatologist and she did more tests and those came back negative. She was s bit baffled. I found an article…"
"Maz, Fascinating! Thanks for your input. Can't wait to hear more when you're able to put more thought into it. Agreed completely that there has to be some sort of genetic predisposition. SO interesting the familial piece you all have. FYI…"
"We may be onto something. I wouldn't be surprised if Sunscreens do initiate a lack of vitamin D and cause hair loss, presumably right at the hairline. However, you have to be susceptible to this effect because it is actually fairly rare.…"
"I used Oil of Olay moisturizer most of my life (that had an SPF of 15), switching now and then to Clinique (no sunscreen, but Phenoxyethanol).
Phenoxyethanol has been called the latest "darling" in preservatives. I don't know how…"
"Is it possible that any deficiency is a possible trigger?
My last flare was brought on by a B-12 deficiency and a crash in hormones.
I do have had a long standing Vitamin D deficiency (probably a decade- from undiagnosed CKD) so that fits the…"
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