Jess
  • Female
  • Stillwater, OK
  • United States
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Latest Activity

Beez replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"I am convinced it is connected to a hormonal thing. Mine began right around menopause...as did so many other issues. "
1 hour ago
pauliegirl replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"Very interesting, Jess—thanks for sharing! FYI I took BCPs for a couple months only back about age 20 and had pretty regular periods; am just officially menopausal. I have autoimmune conditions in the form of Raynauds and a “light”…"
21 hours ago
illustr8r replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"I lingered as premenopausal for about 5 years (I'm 53). Last February, I was having horrible hot flashes, night sweats, brain fog and fatigued. My annual check up labs showed my estrogen levels were...gone. Almost non existent. My dr. was a bit…"
21 hours ago
Jess replied to LVL's discussion Has anyone had/tried cortisone shots to scalp? in the group Frontal Fibrosing Alopecia
"I'm also 34 and have been dealing with this for a couple of years, so I know how bad it sucks. I also had reservations about the Plaxonil and Doxycycline. For me, it's not worth risking my sight. Fortunately, I haven't had any side…"
21 hours ago
Jess added a discussion to the group Frontal Fibrosing Alopecia
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Low Estrogen and Tamoxifen as Risk Factors

Hi All,I mentioned before that I get alerts when new research about FFA is published. I found this interesting, as when I was in my mid-20s, I had about 3-year period during which my period would never really stop. I was always at least spotting and often had a light to medium flow with very heavy clotting at times. Anyway, when I was finally able to get this addressed, I was prescribed a large dose of Premarin, which is used to treat menopause and low estrogen, and then put on Ortho-Tricyclen.…See More
21 hours ago
Jess replied to LVL's discussion Has anyone had/tried cortisone shots to scalp? in the group Frontal Fibrosing Alopecia
"Hi, I'm currently taking Dutasteride and using Minoxidil, which I believe has stopped or at least slowed my loss. I've had some success with Elidel, which is an immunosuppressant cream, in helping with the burning sensation. I also…"
23 hours ago
pauliegirl and Jess are now friends
Dec 6
Jess replied to CurlyK's discussion Has anyone lost their eyelashes? in the group Frontal Fibrosing Alopecia
"I also have lost all of my eyebrows. Last March, when I was still trying to figure out what was going on, my eyelashes seemed to be thinning, as well. I started using Latisse and it made a huge difference. I recently started cutting back its use in…"
Nov 30
AnnieMay replied to Jess's discussion Changes in Hair from Rogaine? in the group Frontal Fibrosing Alopecia
"Hi Jess- I've been using Rogaine but I stopped using it on my hairline. I have some baby hairs too. Some are coarse, some are very fine, some are all by themselves and none of them lay in the same direction. Lovely. . But my hairline has also…"
Nov 18
Adie503 replied to Jess's discussion Changes in Hair from Rogaine? in the group Frontal Fibrosing Alopecia
"Hi, I was using Rogaine once a day and I noticed my hairline receded even more. I stopped using the Rogaine. My dermatologist said that might happen. This disease is so frustrating!"
Nov 13
Jess added a discussion to the group Frontal Fibrosing Alopecia
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Changes in Hair from Rogaine?

Hi All,In addition to taking Dutasteride, I also use 5% minoxidil/Rogaine. At first I was using it twice a day, then once a day, and now I'm getting bad about even doing it daily. Not only was I using it on my hairline, but on the top of my head where I think there is some androgenic alopecia, which isn't very bad and may just be typical with increased age.Anyway, I have noticed that a couple of baby hairs that have come in around my temples are thick, coarse, and dark. Dare I say pubic…See More
Nov 13
Desei replied to Jess's discussion New Treatment Options in the group Frontal Fibrosing Alopecia
"Awesome, many thanks Jess.  Done! Now that I'm up to speed with 'alerts', I've also signed up for 'google scholar' alerts, but I would imagine that the 'google' alerts would cover that…"
Nov 10
Desei replied to Jess's discussion New Treatment Options in the group Frontal Fibrosing Alopecia
"Hi Pauliegirl, I have also been on Finasteride 2.5 for the last six months (plus topical Minoxidil), having been diagnosed about 12 months ago.  I actually stopped both for six weeks or so until recently, just in case it was affecting another…"
Nov 10
Desei replied to Jess's discussion New Treatment Options in the group Frontal Fibrosing Alopecia
"Thanks Leni!  "
Nov 10
Jess replied to Jess's discussion New Treatment Options in the group Frontal Fibrosing Alopecia
"I'm checking out some of the side effects, and they do make me a little wary. I realize most of them are pretty rare, but the excessive bone growth, particularly of the face freaks me out. I also read that dryness of the skin, lips, and eyes is…"
Nov 8
pauliegirl replied to Jess's discussion New Treatment Options in the group Frontal Fibrosing Alopecia
"Jess, I started the accutane 20 last Friday. No dryness issues but I already take good care of my body skin with EO’s and drink plenty of water. Anyways, it seems that things are pretty quiet at the top of my forehead which is where I’ve…"
Nov 8

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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