Jess
  • Female
  • Stillwater, OK
  • United States
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Latest Activity

illustr8r replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Joy- ANA is a lab test for AutoImmune diseases. It checks for Lupus, scleroderma, rheumatoid arthritis etc...gives you results if you have antibodies but it's not detailed enough for a specific diagnosis. So, off to the rheumatologist for more…"
Aug 25
Joy replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Also if not sunscreen usage - mineral make up by chance - and even if you did not use mineral makeup there is an amazing amount of mica, titanium and zinc in the vast majority of makeups - the osteoporosis issue for some of us is interesting as well…"
Aug 25
Maz replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Hi again, There is much more to FFA than losing some hair. I believe there is a connection between a vitamin D receptor variant, oestrogen, osteoporosis, autoimmune disorders, some minor anomalies, ie. sebacious cysts and facial pigmentation…"
Aug 14
AnnieMay replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Hi Ellen  No. .My dermatologist has really never mentioned that FFA is an auto immune disease. I don't feel like I have anyone looking at the bigger picture of all of this for me. I see my dermatologist and she tells me to use a topical…"
Aug 14
Sam Carter replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Hi Jess, I've just recently been diagnosed with FFA and I also have a mild vit D deficiency. Mild though - I was told not to worry too much. I live in Sydney, Australia and pretty much always have sunscreen on. Anything is better than skin…"
Aug 13
Ellen replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Did your doctor mention to you that you had an autoimmune disease?"
Aug 13
AnnieMay replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Hi all-I haven't posted in awhile either but I'm very interested in all of the replies. Like many of you I started losing my eyebrows a couple of years ago then last summer my scalp started itching like crazy and the texture of my hair…"
Aug 12
JRT replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"I went to my doctor concerned about my hair loss 2 years ago. She dismissed it as 'normal' but did find a vitamin D deficiency then. A simple OTC supplement got vitamin D to normal levels. This year she could see what I was talking about…"
Aug 12
SCS replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"When I started to lose my eyebrows (2012) they did a bunch of blood tests and the only abnormal thing I had was vitamin D deficiency. It took another two years - and a dermatologist who did the skin biopsy - to finally realize I have FFA. I've…"
Aug 7
Joy replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Have not posted in a quite awhile and found all of these replies to your post interesting.  I have had FFA and lichen planopilaris for the last 4 years although I think there were things going on long before that .  I had been treated for…"
Aug 6
Maz replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"So many questions. OK - sunscreen. My mother is a redhead with very white skin. She always avoided the sun and covered up. I had zinc cream on my nose and cheeks when I went to the beach as a child but didn't use any product with sunscreen in…"
Aug 6
Ellen replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"I have switched my face foundation makeup in the last year, I had been wearing Clinique. I have to check next time I go to the mall if it had sunscreen or Phenoxyethanol."
Aug 5
Jess replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"I agree Maz. I just saw an article come out today that is stating that miRNAs may be involved in the pathology of FFA. The science is over my head, but miRNAs have something to do with gene expression. I suspect that there it is something from the…"
Aug 5
illustr8r replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"@Maz and @PaulieGirl What were your ANA numbers? With my last flare I had a positive ANA for Scleroderma (Scler-70: 3.5). I went to a rheumatologist and she did more tests and those came back negative. She was s bit baffled. I found an article…"
Aug 4
pauliegirl replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Maz, Fascinating! Thanks for your input. Can't wait to hear more when you're able to put more thought into it. Agreed completely that there has to be some sort of genetic predisposition. SO interesting the familial piece you all have. FYI…"
Aug 4
Maz replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"We may be onto something. I wouldn't be surprised if Sunscreens do initiate a lack of vitamin D and cause hair loss, presumably right at the hairline. However, you have to be susceptible to this effect because it is actually fairly rare.…"
Aug 4

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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