Jess
  • Female
  • Stillwater, OK
  • United States
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Latest Activity

illustr8r replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"I've had a general shed of hair I think as I have lost a cowlick I had on the left side of my head. I used to be able to get some volume and bounce with my round brush when I dried my hair but it won't do it anymore. There is a big…"
17 hours ago
illustr8r replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"When I had a major flare a few months ago I started taking Benadryl. I itched all over and couldn't rest. I know that sweating doesn't help this stuff. When I work out it can trigger my scalp. I have a "chill" towel that retains…"
19 hours ago
Eve liked Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil
yesterday
Jess replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"I've wondered the same thing. From what I've gathered, it seems the disease is unpredictable. Some may have mild symptoms and slow progression, others may experience it as more severe. I do wonder how many people actually progress to the…"
yesterday
Jess replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Thanks, AnnieMay. I am taking dutasteride, and using a topical cream called Elidel. It's supposed to suppress the immune system. I also use Rogaine. It does seem like if you have one autoimmune disorder you're more likely to have others.…"
yesterday
Jess replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Not very long. I started everything at the beginning of June. I haven't had any side effects so far. I've read it can take 3 months to start seeing effects, and it can take 6 to 12 months to see the full effects. I also read that there is…"
yesterday
Halfbakedwho liked Jess's discussion Advocating for Yourself
yesterday
AnnieMay replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Hi Jess-I'm SO sorry that this has hit you so young. Not fair. I'm sure it's an earlier thread but are you taking any medications? And thank you for your thoughts. Yes my daughters are so supportive. I'm just more of a private…"
yesterday
Ellen replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"I can deal with the hair loss, but I don't know how to handle what might happen to my face.  Hair loss you can hid.  I can't hid my face! All we can do is pray for God to take this from us.  I'm open to a…"
yesterday
Ellen replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"I just quit taking the drug.  Last night.  And I'm still itching.  It probably takes a few days to get out of your system. I will start again in a few days to see if I get the itching again.  I take a pill twice a day.…"
yesterday
Ellen replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Will we all get atrophy?!  Those pictures are pretty shocking! Is there a world-renown doctor who specializes in FFA. Ellen"
yesterday
Ellen replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"I'm in the sun most days too. To my knowledge, I've only recently begun on this trip.  I am not happy.  Seems like its going to rock my world!"
yesterday
Ellen replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"How long have you been taking Dutasteride?"
yesterday
AnnieMay replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Maybe it's the heat or it's more active I don't know but the tingling and itching on my scalp is driving me crazy! What do you that helps??"
yesterday
Jess replied to Jess's discussion Advocating for Yourself in the group Frontal Fibrosing Alopecia
"That's great that you think it's working! My fingers are crossed for both of us."
Thursday
Jess replied to Jess's discussion FFA confirmed by hair loss specialist; prescribed: Dutasteride, Doxycycline, and Clobetasol w/ Minoxidil in the group Frontal Fibrosing Alopecia
"Hi illustr8r, I requested Dutasteride, which is basically a more potent form of Finasteride. They both block DHT, the hormone that leads to hair loss, but there are two types, and Dustasteride blocks them both, whereas Finasteride blocks one. Both…"
Thursday

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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