"Wow ireland would def be fun!!! We haven't thought much about the honeymoon yet...but the engagement is awesome!! So far I've got my dress, the caterer, venue, and lots more meetings coming up to get everything else in order :) Im so…"
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I need someone who knows what I'm going through/been through
Started this discussion. Last reply by Sheena Nov 17, 2011. 106 Replies 1 Favorite
I've had alopecia universalis since 2006 and have been going through it with no one there to understand exactly what I'm going through. I have support, just no one who truly understands what it's…Continue
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"All I have coming in is a little bit of arm hair, nothing else.... How is the engagement going? Were wanting to go to Ireland but not sure the details yet.... Having trouble with it.... How is he reacting to the hair? I hope well!"
Chentil Changing left a comment for Jen"hey jen how is everything? Any new hair growth?? My arm hair and eyelashes are starting to grow back but they are blonde!! its different but i am so thankful to have this little bit of growth and I am also recently engaged!! How is your wedding…"
Chentil Changing left a comment for Jen"yes you never realize how ur hair is important to you until its gone! im def trying the natural look more often. the eyelash thing is what drives me crzy though everything gets in my eyes including the hair from my wigs which is a pain but just…"
"Kathleen- I've had it most of my life as well, but never lost all of it until this year when about 80% is gone as well. I'm worried it won't grow back like it used to since I did lose so much this time around. Has yours started to…"
kelli morrison replied to Jen's discussion I need someone who knows what I'm going through/been through"Hi my name is kelli i have alopechia totalitis im 24 i lost all my hair all over 3 years ago,i would love to talk to u , i myself am trying to find someone to talk to that can better understand what im going through and feeling, i also have support…"
ROSE WOSE replied to Jen's discussion I need someone who knows what I'm going through/been through"cool dude!!!! for calling it like it is . congrats"
Dom replied to Jen's discussion I need someone who knows what I'm going through/been through"The only cure for Alopecia is remission which happens with NO outside parameters. It can't be bought or even found. It just happens! Happened to me four times and my hair lasted for years; and of course I did nothing! Remission happens mostly…"
JeffreySF replied to Jen's discussion I need someone who knows what I'm going through/been through"Really? How stupid do you think we are?"
ROSE WOSE replied to Jen's discussion I need someone who knows what I'm going through/been through"HELLO ALL, not to shed a cloud over all this discussion however after having alopecia universalis for 33 years i find it hard to read "its cureable " without having someone write the cure in the discussion........ lots of us have been…"
"Hello, Jen. I´ve had alopecia universalis since 2007 (it started with small patches )I tried lots of treatments (rogaine, diphenciprone, corticoids, ayurvedic medicine) with no answer. I felt like a monster when I looked myself at the mirror,…"
Brittany R. replied to Jen's discussion I need someone who knows what I'm going through/been through"Please let me know if you need anyone to talk to! I've had universalis for sixteen years now. I definitely know what it's like."
Liz replied to Jen's discussion I need someone who knows what I'm going through/been through"I'm glad you joined us. Although no one can understand exactly how another person feels, at least there are people here who can relate. I am 52 years old and have had a hair loss problem since I was in my 20s. I enjoy wearing wigs and have fun…"
"Hi! I can totally understand your feelings.I lost all my hair when I was in 2nd year of college.From having a healthy head of glossy black hair I went on to a bald scalp.I wore a scarf having decided not to hide that fact! But I was in India and a…"
chareng left a comment for Jen"Hi Jen, I understand what you're going through..My daughter had it at age 8, she lost all her hair and as a mum It really hurt to see your daughter suffer..I took her to several doctors and gave her all sort of medications which didn't…"
Jessie replied to Jen's discussion I need someone who knows what I'm going through/been through"HI Jen, people don't understand and never will unless they personally have it. I have had alopecia since I was 5, now 42. It progressively worsened as I got older adn had children. I remind myslef that this is nothing I have control over and…"
Profile Information
- Relationship Status:
- Engaged
- About Me:
- I have had alopecia universalis since 2006. I have been completely bald since with exception of two time due to prednison, which was a struggle. I am engaged to the best most supportive man in the world and share a beautiful lil girl with him.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (7 comments)
- At 11:30am on February 23, 2012, Chentil Changing said…
Wow ireland would def be fun!!! We haven't thought much about the honeymoon yet...but the engagement is awesome!! So far I've got my dress, the caterer, venue, and lots more meetings coming up to get everything else in order :) Im so excited! My fiance is very supportive, he is glad about my new growth but like me is not focusing on it just letting it happen. I usually go bald around him unless we're in public (i am still self conscious although getting better). I also noticed some peach fuzz on top of my head so i am praying and hopeful. I think now that I've stopped focusing on the hair loss and ways to get it back that its just doing its natural thing!
- At 10:39am on February 22, 2012, Chentil Changing said…
hey jen how is everything? Any new hair growth?? My arm hair and eyelashes are starting to grow back but they are blonde!! its different but i am so thankful to have this little bit of growth and I am also recently engaged!! How is your wedding planning going?!
- At 12:52pm on December 12, 2011, Chentil Changing said…
yes you never realize how ur hair is important to you until its gone! im def trying the natural look more often. the eyelash thing is what drives me crzy though everything gets in my eyes including the hair from my wigs which is a pain but just something we have 2 deal with i guess :)
- At 3:24pm on November 19, 2011,
LeslieAnn Butler said…
Hello and welcome, Jen!
How are you today? I have AU, to0.
Leslie Ann
- At 4:26am on November 11, 2011,
shaila said…
Hi! I can totally understand your feelings.I lost all my hair when I was in 2nd year of college.From having a healthy head of glossy black hair I went on to a bald scalp.I wore a scarf having decided not to hide that fact! But I was in India and a rarity. So I guess I stood out.
Now 30 years later my hair has come and gone like the seasons. And I have got a kind of thick skin.If I have any advice it is just that do not let hairlessness prevent you from doing anything.Life is still exciting!!
- At 1:04am on November 11, 2011, chareng said…
Hi Jen, I understand what you're going through..My daughter had it at age 8, she lost all her hair and as a mum It really hurt to see your daughter suffer..I took her to several doctors and gave her all sort of medications which didn't help her at all.. a year later, I saw this Calosol website..I read through their review and thought I have to give it a try..It's really expensive, but I was willing to pay anything for my daughter..We continously used Calosol product till she was 13 and took a photo every 3mos...The result was just amazing..Now my daughter is 14 and got all her hair back..Worth all the penny I spent on that product..
- At 5:01pm on November 8, 2011, Chentil Changing said…
- hey Jen, i was diagnosed at the beginning of this year with AU. my hair started falling out in Nov 2009 and i lost all body hair within the next 6 mos. Most recently my eyebrows and eyelashes fell out so i am no hairless :/. it has def been a struggle for me i got a few shots in my scalp with no real results and am now just taking hair vitamins. im glad you have a supportive guy thank god that mine has stuck through me with this and also helps me day to day in trying to regain my self-confidence. it gets a little easier everyday but it's still hard! keep confident & enjoy your loving family :)
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