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"I'd say these women had absolutely not a clue what they were talking about.... Shame on them for not doing any research on Alopecia......"
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Jean joined rj, Co-founder's group
Non-alopecians in Alopecia World
If you're a member of Alopecia World and you do NOT have alopecia, you should join this group. Share your unique concerns as a non-alopecian who's truly supportive of alopecians. Let us learn from our shared experiences.
Jean replied to Leslie Lauren's discussion Eyebrow and Eyelash hair loss in the group Parents of Children with Hairloss"Brianna and Mary,
Question. Did you have any medical treatments on the eyebrows? My son would just love to have his eyebrows back.. eyelashes would be a plus. Thanks Matthew's Mom"
Jean replied to Jennifer's discussion Son newly diagnosed with AA - heart is broken in the group Parents of Children with Hairloss"Jennifer,
Sorry I didn't see your post earlier, better late than never!!! I understand how emotionally difficult this is for a parent. My son now 16 started with AA just at his 15th birthday. Within two months for him he lost all of his hair…"
Tracy and Amanda left a comment for Jean"Thank you Jean for your kind comments. I hope this alopecia experience will make my daughter a stronger person in the long run. How is your son doing? Please fel free to drop by my page with updates any time. We are all in this together.
Tracy"
Jean commented on Tracy and Amanda's blog post "I want to keep my alopecia""That is what it is all about... I have learned through my son Matthew when he accepted and embraced his alopecia it all fell into place. We are all as a family more at ease for him and continue to be in awe of him as he has gone through his life…"
Jean replied to Chris R's discussion A few questions about squaric acid"Hi Cindy,
Do you feel if you discontinue this treatment would the alopecia take control again and hair loss as a result?
My son Matthew has stopped all treatments with the exception of kenalog shots in his eyebrows.
Very interested in your…"
Cindy and Samantha left a comment for Jean"Hi Jean, How are you? I replied to your note to me on the discussion board. Please email if you have any questions. I am happy to share my story. I have pictures posted of various stages of Sam's regrowth. My profile pic is what she currently…"
Jean replied to Debbie Lopas's discussion squaric acid scarring in the group Parents of Children with Hairloss"Also he has had no scarring..."
Jean replied to Debbie Lopas's discussion squaric acid scarring in the group Parents of Children with Hairloss"Cindy,
My son has just started this treatment as highly recommended by Dr. Vera Price in San Francisco. At what age did your daughter develop alopecia, and how much did she loose, how long after starting DCPC did you start to see regrowth ?
My son…"
Jean joined Alopecia World's group
Alopecia Totalis
Join today to meet, support and share information and resources with others who are also living with the complete loss of scalp hair.
Profile Information
- Relationship Status:
- Choose one
- About Me:
- Mother of 15 year old son with Alopecia. I have had Alopecia as a young adult for about 1 year. I am anxious for my son as he is having a difficult time with this experience. It started July '08 lost most of his hair by September and then eyelashes eyebrows body hair AU. We live in a world of so much diversity however when it is about the exterior there are double standards. To put much more emphasis on this for me as a parent with a teen dealing with this I am in the process of selling a hair salon and am still working there.
- Do you have alopecia?
- I do not have alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (8 comments)
- At 6:04pm on November 1, 2009, Tracy and Amanda said…
- Thank you Jean for your kind comments. I hope this alopecia experience will make my daughter a stronger person in the long run. How is your son doing? Please fel free to drop by my page with updates any time. We are all in this together.
Tracy
- At 7:35pm on September 6, 2009, Cindy and Samantha said…
- Hi Jean, How are you? I replied to your note to me on the discussion board. Please email if you have any questions. I am happy to share my story. I have pictures posted of various stages of Sam's regrowth. My profile pic is what she currently looks like after a year on a regrowth cycle. Cindy
- At 10:46am on February 20, 2009,
Vicktoria (Katya's mom) said… - Hi Jean, We are practically neighbors. I live in Orange. Anyway, my daughter has been OK. She just turned 13 and has been wearing wigs almost 2 years. We are in an unusual situation because she goes to a small private school and has been able to adjust to AU without to many social issues. However, she never goes w/out the wig. I'll be glad to talk to you more on a personal level. I think if we are "friends" I can privately give you my email and phone.
- At 10:47am on February 10, 2009,
Cheryl, Co-founder said… - Hi Jean, Yes, I understand the struggle. I also know the struggle that parents have. But has you can see many of these kids grow to be well adjusted adults with careers, relationships, victories and struggles. It is just a matter of find our place of acceptance and going from there. Keep in touch! Cheryl
- At 11:44pm on February 9, 2009, Cheryl, Co-founder said…
- Hi Jean, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
- At 6:49pm on February 9, 2009,
Brittany said… - hi Jean!!
how are you?
thank you for the nice comment!=]
I have had Alopecia Areata since I was 12.
I finally accepted my alopecia after the tyra show.
I enjoy the National Alopecia Areata Foundation Confences because i met alot of people who know what i face with Alopecia.
i'm sad that i can't go the naaf Confence this year because i gradute from high school that same weekend..=[
I also find that Alopecia World is very helpful because you get to talk to people with alopecia.
thanks again
brittany <3
- At 4:01pm on February 8, 2009,
LeslieAnn Butler said…
- Hello and welcome, Jean. Nice to see you here! How are you today?
LeslieAnn
- At 3:02pm on February 7, 2009,
3wwasha said… - Hello,
Welcome to Alopecia World.
Aysha
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