Alopecia World
It's Hair Loss Support At Its Best™
-
Janine Fisher Mota
- 33, Female
- Sacavem
- Portugal
- Blog Posts
- Discussions (6)
- Events
- Groups (3)
- Photos (8)
- Photo Albums
- Videos
Music
Janine Fisher Mota's Groups
Gifts Received
Janine Fisher Mota has not received any gifts yet
Blessed!
Latest Activity
Janine Fisher Mota replied to alicia's discussion 'Thank my great alopecia family'
the Rapunzel in SHrek was actually bald. LOL. I laughed at that but felt comforted a bit. Alopecia isolates you in a way-u think that you are the only one with the problem. And then you come on here and find all kinds of people, all colours from…
Janine Fisher Mota updated their profile
Janine Fisher Mota updated their profile photo
Deneene left a comment for Janine Fisher Mota
Hi Janine! It has been so long, how are you doing in South Africa?? I hope all is well with you!
Profile Information
- Relationship Status:
- Married
- About Me:
- Hi
I first discovered a patch the size of a small coin or the circumference of my fingertip on my head at age 16. I was horrified but thought it would grow back. It never did. I have been battling this misunderstood disease since then. After my son was born 6 years ago, it was like the condition became worse. I consulted a dermatologist who confirmed that I have Alopecia Areata but that there was no tissue scarring. I forgot to mention to him that my head pains around the areas where the bald patches are. That was in 2004. He gave me some cortizone shots and sent me on my way. i asked him if there was anything I could take to help with hair growth. He responded that there was no cure for Alopecia. That crushed me. I havent seen a doctor since then.
I am a Christian so have been trusting GOd for total restoration of my hair to the point where I would beg and plead. I think over the past year or so, I have been more at ease with it. Not really wanting to accept that this is my life. People in the society in which i live dont seem to understand the disease. They say its just 'Bad hair' or 'hair that cant grow' . And i never wanted to be in either category.
This disease has affected my faith a lot. Because I would think to myself that since I am not healed, I don't have enough faith or there is something wrong with my life
So the years since 2004 have been with hair pieces to cover up the patches. I hated it. Last year, I just wanted to shave all my hair off. I was so sick and tired of covering up the patches. Brushing my hair in all directions to cover up. I got so tired of putting these pieces with clips into my head so tightly so as to give the appearance of hair. I would have headaches and my scalp would burn and itch and hurt, but I had no alternatives. I hated even walking into wig shops. It was such an embarrassment.
Been in bad relationships, I wondered if I could ever find love because well, men like hair. I didn't have any. Would I be able to find a man that will accept me for the wonderful person I am without hair? That questions gradually stopped bothering me. Because I learned that I love myself and GOd knows why he allowed that I have this particulare disease. It was my 'thorn in my flesh' And nobody can accuse me of not having enough faith. Trust me when I say this, I would LOVE my own hair back. So those issues are sorted now-kinda...
So on Saturday,the 27th September 2008, I shaved all my hair off and bought myself a nice wig. Surprisingly, I can say it was LIBERATING shaving my hair off. it was like a dead weight was lifted off my shoulders. Only my close family know that Ii am totally bald under this wig-other thinks it just weave.
People at church complimented my wig saying it looked 'so real'. Well that was the effect I wanted. But at night I go to bed bald, not with a scarf on or anything-just natural, feeling good with no throbbing pain.
Why I didn't do this long ago, is besides me.
Sometimes when depression tries to take over me, I just adjust my mind set to look on the bright side of things. Wearing wigs are not totally ideal but they do offer versatility and change . And they can do things that my own hair could never. I am just loving it.
God grant me the serenity (the peace, tranquility)
To accept the things I cannot change (oh this was hard especially when you want it to change, and you think it should change)
Courage to change the things I CAN (I can, yes I can!)
And the wisdom to know the difference.
I know now that Janine is more than whats on the outside.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes
Janine Fisher Mota's Photos
Comment Wall (25 comments)
- At 3:09pm on April 15, 2009,
Deneene said…
- Hi Janine! It has been so long, how are you doing in South Africa?? I hope all is well with you!
- At 10:51pm on January 9, 2009,
Royalty said… - Hi sweetie, I love this song!
- At 12:14am on December 10, 2008,
Deneene said…
- I just wanted to say hello. I hoped you enjoyed your holidays!
- At 11:13pm on November 26, 2008,
Royalty said…
- AAAAAWWW THANKS SWEETIE!! HAVE A HAPPY THANKSGIVING!
- At 11:03pm on November 26, 2008,
Leon Johnson said… - You're beautiful without your hair. Keep your head up sister. God bless.
- At 9:52am on November 26, 2008,
Adrian Coe said… - everyone is different Janine....trust me!...so never say never!...but please dont spend the days looking for regrowth...focus more making yourself healthy in other ways....and the rest will look after itself..also i must add for years my hair kept coming and going..which can be a bit of bummer...but now iv had a full head for about 7 years....although thinning a bit with age now..haha!
- At 6:12am on November 26, 2008,
Adrian Coe said…
- janine,
very sad story..but very true..well done for being so honest....stay safe x
- At 6:50pm on November 25, 2008,
Royalty said…
- I just wanted to say that I love your story and your strong faith and believe in GOD. It is very inspiring, GOD has already healed you. You just have to keep doing what you are doing now, that is encouraging others with your story. Let people know that you have been in their position and GOD has delivered and healed you emotionally. Stay strong!
- At 6:40pm on November 25, 2008,
Royalty said…
- Hi Janine, just stopping by to say hi!
- At 2:28pm on November 25, 2008,
Deneene said…
- I admire your courage to be REAL with your feelings and thoughts!! I appreciate your rawness and your relationship with God. You are saying what some people think!
Stay Blessed!
Latest Activity
JeffreySF left a comment for Benjamin Tyson Lainhart
Susan Innes commented on Alopecia World's group 'Alopecia Universalis'
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2012 Created by Alopecia World.
