Hope4mySON
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  • New York, NY
  • United States
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  • chris_s

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Two year old with Alopecia

Started this discussion. Last reply by chris_s Nov 10. 6 Replies

My two year old has aggressive alopecia areata. I am at a loss and trying any sort of treatment possibilities.  Please let me know ANY methods that you have tried on a two year old which have worked.…Continue

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chris_s replied to Hope4mySON's discussion Two year old with Alopecia
"good luck! the best (only) advice is to try not to freak out about it. some people respond to some treatment, some respond to other, some don't respond. some kids grow out of it. we let my son get really patchy before we did narrowband uvb, in…"
Nov 10
chris_s and Hope4mySON are now friends
Nov 10
Hope4mySON replied to Hope4mySON's discussion Two year old with Alopecia
"Hi Chris is this similar to a phototherapy booth for psoriasis. We actually have one for my husbands psoriasis. The dr was concerned abt goggles that no guarantee two year old would keep it on. I actuaally proposed my husband to just go in w him?…"
Nov 10
chris_s replied to Hope4mySON's discussion Two year old with Alopecia
"My son responded well to narrowband uvb (search my posts here) when he was 5. Work on psychological treatment for now, it’s the most important and really the only thing guaranteed to help. Kids don’t notice differences in appearance, so…"
Nov 9
Return_life replied to Hope4mySON's discussion Two year old with Alopecia
"In a few years maybe there will be pediatric use for some biologics... researchers are looking into it. It's underfunded and we are missing data. The community is better than it was... 10 years ago even doctors were looking at us like we were…"
Nov 9
Hope4mySON replied to Hope4mySON's discussion Two year old with Alopecia
"Yes, I looked into it and the Form 990 for 2016 only shows $400 K in grants in medical research- in this day and age that is nothing. $400 K is not getting anyone a cure. I dont understand why this is disease is so poorly funded.  "
Nov 8
Alo-mom replied to Hope4mySON's discussion Two year old with Alopecia
"As the mother of a daughter with Alopecia I suggest you contact the National Alopecia Areata Foundation. They will provide resources and answers to the questions you are asking. Find them on the web, call them and they will be happy to share what is…"
Nov 8
Hope4mySON posted a discussion

Two year old with Alopecia

My two year old has aggressive alopecia areata. I am at a loss and trying any sort of treatment possibilities.  Please let me know ANY methods that you have tried on a two year old which have worked. We have no family history of alopecia. I do not believe there is no cure. I dont understand how everyone just accepts the easy answer that there is no cure.  there just has to be.  OR if there is no permanent cure there must be some sort of treatment that works. So, please let me know of what has…See More
Nov 8
Hope4mySON replied to Monica2016's discussion 9 month old diagnosed with alopecia areata?!?!
"hi what happened with your daughter?"
Nov 7
Hope4mySON replied to Mia's discussion New Diagnosis
"how is she doing"
Nov 7
Hope4mySON is now a member of Alopecia World
Nov 7

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