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Heather
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- Canada
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Heather's Groups
Heather's Discussions
How do I tell my boyfriend?
Started this discussion. Last reply by T.J.R. Jan 18, 2011. 16 Replies 0 Favorites
Some Positive Sides!
Started this discussion. Last reply by asdf234 Apr 9. 5 Replies 0 Favorites
Sneezing issue?
Started this discussion. Last reply by Eva Aug 8, 2009. 3 Replies 0 Favorites
Gifts Received
Heather has not received any gifts yet
"All will improve, and hair or no hair, people will see the beauty you possess." -Paul Byrom
Latest Activity
Heather replied to Tiaira Hall's discussion Mentally and emotionally a wreck"Hi Tiaira! My name is Heather and I'm in grade 12. I lost my hair in grade 5, so a bit different, but I hope I can maybe help you out a bit. I'm not sure how much of your hair has fallen out, but depending on how much is left I would…"
BTB (John) left a comment for Heather"Thanks for adding me your journey is very inspirational, hope we can catch up sometime, Pat and I have found the whole Alopecia thing a real pain but like you accept for what it is."
asdf234 replied to Heather's discussion Some Positive Sides!"Never having to shave my legs. My husband loves how soft my skin is. :-) Throwing on a hair do like a hat-and no longer being limited by the hair God gave me.
Knowing that my partner is more attached to who I am, than what I look like.
Closer…"
Profile Information
- Relationship Status:
- Single
- About Me:
- Hi everyone! :) My name is Heather, and I am 17, however I have had Alopecia since I was 11. I'm sure I've gone through all the different stages of Alopecia - bald spots, covering everything with bandanas, prednosone drug, cordozone injections... Now my hair is completely gone, and I have been bald like this for years now.
I wear an incredible wig made of human hair. I love my wig to bits, and actually just refer to it as hair usually, and not a wig, because that's what it is like for me!
As for coping and accepting, well, I feel like I accept it. It's one of those things that is just a part of who I am now, and I feel like I am the person I am today because of my Alopecia. I feel like acceptance is totally up to you, and if you have a positive attitude about the whole thing, then it isn't so bad. Obviously, I'd love to have hair, but I don't spend hours and hours wishing for it. Clearly, I'm stuck like this, and there's no point dwelling on it. Instead, I feel like using that energy to be positive about it all really helps. It sounds corny, I know, but it's really how I feel.
A while back, my sister's grade 6/5 class read a book called 'Because of Anya', which is about a girl who's growing up with Alopecia and the different events that happen. Once they finished the book, I got the chance to go into the class and talk about Alopecia and answer questions. While it was great for the kids, I feel like it was even more rewarding for me. Talking about it and raising awareness almost makes it seem easier. Especially since all these little 11 and 12-year-olds thought it was cool that I was bald, rather than weird! Sometimes, Alopecia is harder for those who don't have it, I find. While I've had time to accept and understand it as best I can, they're still confused and don't really get it. In a way, I have to help them with it in order to help myself, if that makes any sense at all! Anyway, I'm so glad to have found this site. It's so great to talk with people who understand!
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- No - I am not 18 or older
Heather's Blog
Optimism counts :)
Posted on September 30, 2011 at 1:30am 1 Comment 2 Favorites
Back in May, I had an incredible experience. I was selected as a representative of my school to apply to the Minerva Learn to Lead conference for 24 girls from around BC. I applied, and got it!
At the conference, we engaged in numerous leadership activities, but on the first night we were made to say one thing that had shaped us in the past ten years. We went around my table, and I honestly completely forgot about Alopecia. I came up with some other random thing I'd done, and didn't even… Continue
At the conference, we engaged in numerous leadership activities, but on the first night we were made to say one thing that had shaped us in the past ten years. We went around my table, and I honestly completely forgot about Alopecia. I came up with some other random thing I'd done, and didn't even… Continue
My experience with Paul Byrom
Posted on May 9, 2009 at 1:32am 4 Comments 1 Favorite
So, I just wanted to share my little experience... I don't know if anyone else knows the group Celtic Thunder, but I'm really obsessed with them! They're a group of five solo singers from Ireland and Scotland. I promise all of you, I'm going to marry the 16 year old, Damian McGinty. He hugged me twice! ...But that's off topic.. Anyway, there's a guy in the group named… Continue
Comment Wall (31 comments)
- At 6:02pm on April 14, 2012, BTB (John) said…
Thanks for adding me your journey is very inspirational, hope we can catch up sometime, Pat and I have found the whole Alopecia thing a real pain but like you accept for what it is.
- At 4:03am on April 1, 2012, BTB (John) said…
What Pat said I agree very awesome what you have done.
- At 4:02am on April 1, 2012, BTB (John) said…
- At 8:54pm on October 6, 2011,
Pat said… - You're an inspiration Heather, What a great experience for you. Well done!
- At 7:05pm on November 13, 2010,
Vin said… - I love your quote. "There are only so many perfect heads in the world. The rest are covered with hair :)"
Keeps me optimistic... with or without hair.
- At 1:54am on September 3, 2010,
Rose Marie' said… - Hi Heather
I just wanted to pop in and say what an insightful young woman you are. I have just read your reply on 'alopecia and teenage boys'. It really is so lovely to see such kindness and knowledge. Good on you.
Rosy
- At 5:41pm on August 23, 2010, Nikki said…
- Hey Heather: just wanted to let you know that I am trying to get some in the Vancouver area to a meet and greet. So.... it's going to be at Artigiano's in Park Royal South Side on Sunday Aug 29 at 3pm. I hope you can make it. Let me know what you think. Thanks!
- At 12:00am on February 15, 2010,
Chris Jeffrey said… - Hi
I just returned to Vancouver after living in Australia and want to know if you belong to an Alopecia support group in the Lower Mainland. If so which one and if not are you interested in joining one?
Chris
- At 7:42pm on April 7, 2009,
Ashleigh said… - Hey I was reading your about me and I was diagnosed with alopecia areata when I was 13 and now I am 15 and I loose like 50% of my hair then it comes back and then goes away again and I was just wondering about your wig what kind is it? I can never find a comfertable one, and I just wanted to say your so pretty, and your wig looks really nice in your picture
- At 5:03pm on March 4, 2009,
Meme said… - oh thats cool...ill think about it....im not sure which one is better for me, the one youre talking about or a freedom wig. how much was yours?
Latest Activity
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