Alopecia World
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Hannah
- 16, Female
- United States
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Hannah's Discussions
Has anyone tried this?
Started this discussion. Last reply by KimF4L May 23. 1 Reply 0 Favorites
I was wondering if anyone has tried this product:It's called Calosol http://calosol.com/If you or you know someone else that has, can you send me your opinion?Continue
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Hey, I'm Hannah!
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Profile Information
- Relationship Status:
- Single
- About Me:
- Where to start!!!
So I have had mild AA throughout my life, usually brought on by stress, but the real story started during last summer...the summer before my Freshman year (of all the luck).
I progressed from AA in June to AT in September to AU in December.
For treatments, i've tried the steroid cream, but it's pretty weak. It did work when I was little and had small AA spots, but we stopped using it after a while. For a few months I got the injections all over my head. I swear I would get at least 50 shots or more per visit, but I gave up on those. I only got a slight regrowth then it would fall out again. So, no treatment has actually worked and I have experienced no REAL re-growth since I lost all my hair...it's been over a year now.
It's been difficult, but I think it's been harder for my parents (mom especially) than me.
I have been playing competitive Volleyball for years, and I still play, I just wear a skull cap instead of a headband.
I used to think it was pretty annoying when someone would ask my parents how I was doing going through chemo, but now I just laugh; some of them are pretty hilarious! Apparently I am an "Inspiration" as one parent said!
My pet peeve: People who just assume I have cancer! COME ON PEOPLE! I wouldn't be playing volleyball if I did have cancer!
Anyway, I survived Freshman year! Surprisingly, no one even commented about me wearing a hat to school; although I'm sure they talked to my friends when I wasn't there. I wish SOMEONE would've just asked! I know they are dying to know what's going on!
Overall, I'm doing good...I still wear a hat to school, not a wig. I find a wig kind-of a hassle when it comes to school. I wear it when I go out though.
I guess from what I've been talking about, you may think I'm not devastated I don't have hair, but really, I wish I did. It is hard with all the staring and questioning looks, but it could be worse. Having a good and realistic attitude really can go a long way.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- No - I am not 18 or older
Hannah's Photos
About the pix :)
So, yes I am wearing my wig in the pics above. My eyebrows are drawn on, and sometimes you can see them, sometimes you don't. Also have fake lashes. These pics are from Decemberish? Anyway, I don't wear my wig that often, I just wear my hat/skull cap. Don't have the balls yet to go out and around with nothing on. More pics to come from Volleyball and just me...TO BE CONTINUED! :D So I just added some volleyball pics today...Guess who I am ;) I'll make sure to add some pics from when we go to nationals in Atlanta. And also some regular pics of me. TO BE CONTINUED! :D
Comment Wall (10 comments)
- At 3:30pm on May 24, 2012,
Justin Dawson said… - Thank you! I'm happy to be here! :)
- At 6:30pm on May 19, 2012,
Denise said… I love Volleyball :-)!!
- At 5:10pm on May 19, 2012,
Jax said… - Great thanks!
- At 5:09pm on May 19, 2012, Jax said…
- Great thanks!
- At 8:59pm on April 11, 2012,
Kayleigh said… Wow, you play volleyball that's awesome! Do you play in college or is it a high school/club team? I think it's amazing that you wear a cap while playing, I wore a wig during my games when I played and stuff and it was so irritating but I was to worried about what people would think I love that you just be yourself.
- At 4:00pm on June 9, 2011,
LeslieAnn Butler said…
- HEY, that's great that you want to get my book. Let me know how you like it, okay?
Hugs!
- At 10:58am on June 7, 2011,
Malcolm Walker said… - hi how are you today sorry it took me so long to comment back
- At 6:07pm on June 3, 2011,
- P.S. I have universalis, too.
- At 6:06pm on June 3, 2011,
- Hello and welcome, Hannah!
You know, if you go to the National Alopecia Areata Foundation web site (www.naaf.org), you can ask them to send you a free "school pack" which includes a video you can play for the teachers and student body. It will educate everyone about your alopecia which is a GOOD thing!
Leslie Ann
- At 12:37am on May 30, 2011,
Cheryl, Co-founder said… - Hi Hannah, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Cheryl, co-founder
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