Gon
  • Female
  • Groningen
  • Netherlands
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Gon's Discussions

AU and Hyperpigmentation after months of using DCP, does it go away?

Started this discussion. Last reply by Beth Sep 19, 2017. 2 Replies

Hi AU's,I have AU since 2015 and I have done DCP treatments every week (squaric acid) for 5 months.Sadly with minimal effect and the right side of scalp is now darker.I was wondering, are there more…Continue

Tags: ACID, SQUARIC, DCP, AU

Question for the AU's who tried DCP: Did it work and with 100% growth?

Started this discussion. Last reply by mattia r Sep 30, 2016. 4 Replies

Dear AU's,I am planning to start DCP in December this year. I was thinking to also order medicine and creams to use if I get nasty side effects like hives and all.I was wondering, the people who had…Continue

For the people with AU/ AT:

Started this discussion. Last reply by Tallgirl Sep 5, 2016. 6 Replies

A few questions to the AT/ AU's: Did you experience regrowth at some point in life? if so: after how many months, years did your hair return? What where the symptoms when it happened (itchy scalp or…Continue

AU: Does your skin become more sensitive or dry when you have AU?

Started this discussion. Last reply by Gon Jul 21, 2016. 20 Replies

I discovered that my skin became more sensitive when I got AU. Also, my skin became more dry and more sensitive for hot showers and sauna and hot weather. I use body oils and I do not want to use…Continue

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Gon's Page

Latest Activity

babashanti left a comment for Gon
"Thanks for the friendship and the information ."
Feb 2, 2023
babashanti and Gon are now friends
Feb 2, 2023
Gon replied to babashanti's discussion Olumiant and what to ask my doctor?
"Super. I do a trial in Germany and I am from Holland. I email all the questions I have. For me it’s hard because I do not speak German that well either. I use Google translate to mail them. "
Feb 1, 2023
Gon replied to babashanti's discussion Olumiant and what to ask my doctor?
"There is a Facebook group called Jak inhibitors fro alopecia. Very rich source to get all the info about the effects of different JAK inhibitors/ the ones who are on trials/ and Alopecians who are on JAKi for a long time. You can find everything you…"
Feb 1, 2023

Profile Information

About Me:
In September 2015 I started losing my hair suddenly, and it developed to AU. I never had experienced hairloss before.
The internist and derma did not find a trigger. Still trying to cope and find a way to live with this strange disease..
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (2 comments)

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At 5:50am on February 2, 2023, babashanti said…

Thanks for the friendship and the information .

At 10:04pm on March 19, 2017, dreamscometrue said…

Thank you for your friendship Gon.  I still have AU and no, my hair didnt all come back.  In fact, I wound up developing another auto-immune disorder Rheumatitis/Rheumatoid Arthritis. I think its all connected.  I'm trying the natural route before I do meds.  Right now I just started on Calaguala 500mg 2x per day.  I'l  see how it goes in a few months.  Thanks again for the friendship!

 
 
 

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