"I think you have a legitimate complaint. It is likely you don't want that to happen in the future to you or any other person suffering from Alopecia. The mention of your condition being a medical problem is worth reporting to management…"
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Eve
- Female
- Carlsbad, CA
- United States
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"Eve, if by burn-out, they mean no flare-ups and no hair loss, then maybe I am at that point. I was diagnosed with FFA when I was 50. I had one flare-up at about 60. I was able to get that under control very quickly and haven't had a flare-up…"
Remission or Burn-out with FFA. Anyone?
In 2017 members were asked if they had entered the end phase or burn-out phase of FFA.It is 2020 and I have not seen any confirmation of this being possible. My Derm said it was possible by my mid 60's. I was diagnosed at age 57. Anyone?See More
Frontal Fibrosing Sucess and Burnout Stories
A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
"Alopecia is an autoimmune disease. Studies show it is genetic. It has to be treated with immunosuppressant topical cream daily like Elidel. Plaquenil is an oral immunosuppressant. Plaquenil requires a baseline eye test before you start it. Scarring…"
"https://en.wikipedia.org/wiki/TofacitinibNote side effects"
"Cybergirl
Here is what my creation looks like. It is not hot like a wig or topper.0410190011.jpg0410190009.jpg"
"Hi Cybergirl
I have a trick that I use it is because I have frontal fibrosing alopecia that it works for me. I'm not sure that it will cover your bald spots but it is very easy to do and it's not a full wig. I take a cotton stretchy…"
Profile Information
- Relationship Status:
- Married
- About Me:
- Frontal Fibrosing alopecia
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
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