EmJay417
  • Female
  • Chicago, IL
  • United States
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EmJay417's Friends

  • Photolic
  • Cheryl, Co-founder

EmJay417's Discussions

Telling others

Started this discussion. Last reply by MJ on Friday. 9 Replies

Hey - My name is MJ and Ive had AU for 2 years now. Those closest to me know that i don't have any hair, but I'm having trouble with having those outside of my close circle know about my condition.…Continue

EYEBROWS!!!!

Started this discussion. Last reply by EmJay417 Jul 6. 2 Replies

Hey everyoneAnyone in the Chicagoland area have any suggestions on where to get eyebrow tattoos? I've tried the human hair ones that you glue on, I've tried the temporary tattoos ones, but man oh…Continue

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EmJay417's Page

Latest Activity

MJ replied to EmJay417's discussion Telling others
"The day before shaving my head the first time, someone took a picture of me from the side.  I looked at it and just decided I'd be better off just shaving it.  Now, I rarely shave my head, as it just doesn't grow at all. And…"
Friday
EmJay417 replied to EmJay417's discussion Telling others
"MJ... that is crazy! bc my name is also MJ, and i shaved my head August 14th, 2015! what are the odds?! that was very brave of you to do right off the bat. I hope that i can muster up the same strength that you did!"
Friday
EmJay417 replied to EmJay417's discussion Telling others
"that's a great idea, Amanda! thanks! I didn't know the 1st was alopecia awareness day. Good to know!"
Friday
EmJay417 replied to EmJay417's discussion Telling others
"thanks, Kathi! I'll do my best :) "
Friday
MJ replied to EmJay417's discussion Telling others
"The day I shaved my head (August 14, 2014), I posted a picture of me to my Facebook feed.  People knew I'd been dealing with Alopecia but Id been doing what I could to cover it up, color my hair, etc.  I got nothing but positive…"
Friday
Amanda Banana replied to EmJay417's discussion Telling others
"I would like to suggest posting a picture you are proud of if you want to go the Facebook route. But instead of exposing your alopecia outright in the post. Say something along the lines of "August 1st is alopecia awareness day today..."…"
Jul 16
Kathi replied to EmJay417's discussion Telling others
"Hi EmJay, I completely understand how you feel but I think we put this on ourselves since I came out everyone I have met has been amazing about it. The key for me was to stop caring what other people thought of me, this freed me up to feel like if…"
Jul 16
EmJay417 replied to the Diarminator lol's discussion Examine and remove foreign body's from eye ball wit out eye lashes?
"Hey Diarminator I have found that washing my face/eyelids with baby wash every night to be pretty helpful in reducing some shitty eye infections. its gentle enough to use on your eyes that it doesn't sting. You're right though, shit does…"
Jul 12
EmJay417 replied to EmJay417's discussion Telling others
"Hey Coleen.  thanks for the tip. Work and professional aspects of my places were the areas i was most concerned about. That feels like it could work.  appreciate it! Peace"
Jul 12
Coleen replied to EmJay417's discussion Telling others
"I sent an email to everyone at work explaining what was happening which made that part very easy.  For the rest I have just been willing to talk/educate anyone who asks. I have found that people are very curious and have a lot of…"
Jul 12
EmJay417 posted a discussion

Telling others

Hey - My name is MJ and Ive had AU for 2 years now. Those closest to me know that i don't have any hair, but I'm having trouble with having those outside of my close circle know about my condition. But recently I've been thinking about being more publicly open about my AU. I guess i was just looking for advice on how you told people in your life about your hair loss. I thought about just making a post of Facebook or something. But that felt odd and overly exposing. But at the same time, Im just…See More
Jul 11
Photolic and EmJay417 are now friends
Jul 8
EmJay417 commented on Alopecia World's group Alopecia Universalis
"Michael - sweating with no eyebrows is the WORST!!!! the first time i went for a run after losing mine was awful! i had to keep wiping my eyes and couldn't see a damn thing! Not to mention the stinging! yes. I feel ya, brother. I feel ya"
Jul 8
EmJay417 joined Alopecia World's group
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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.See More
Jul 8
EmJay417 posted a status
"Summer time... beanies and wigs, too hot. Baseball caps get sweaty. Free scalping it? Sunburn! #BaldKidProblems"
Jul 8
EmJay417 commented on Mandy's group Chicagoland Alopecians
"Hey everyone! Im in the chicagoland area and have AU. Looking for people to talk to who are going through the same thing locally and have any resources to share. thanks!!"
Jul 8

Profile Information

About Me:
I'm just trying to figure all of this out
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

EmJay417's Blog

Help, please

Posted on October 13, 2016 at 10:30pm 3 Comments

I'm really having a hard day today. I just feel like I'm drowning and i have no one in my life that understands what I'm going through. I just wish I had someone that I could talk to. 

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