Donna
  • Female
  • Seattle, WA
  • United States
Share

Donna's Discussions

Using rogaine

Started Oct 30 0 Replies

With frontal fibrosing Alopecia I am only using the rogaine on the temples & hair line area. Not all over. What are other doing

FFA how much hair loss will happen

Started this discussion. Last reply by chris for hair Nov 13. 1 Reply

How much hair loss is average for FFA? I’m so worried I’m going to lose half my head of hair. I saw a woman that was almost bald except for the back half of her head.

I’ve read some that Tramadol can cause hair loss

Started this discussion. Last reply by Return_life Oct 10. 3 Replies

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA

Gifts Received

Gift

Donna has not received any gifts yet

Give a Gift

 

Donna's Page

Latest Activity

Halfbakedwho liked Donna's discussion Clobestatol
Dec 4
Airam-FFA liked Donna's discussion Clobestatol
Dec 2
Donna added a discussion to the group Frontal Fibrosing Alopecia
Thumbnail

Clobestatol

Just got back from my visit to dermatologist. I have been on clobestaol for 7 1/2 weeks & she said it has worked on stopping the inflammation. She was very happy with the outcome. So as far as I understand. No inflammation of hair follicles no more hair loss. I had not been putting it behind my ear where there is hair so that was still a little inflamed. She says to keep on using it now 3 times week instead of every day & come see her back in 6 months. I came in to see her early on she…See More
Nov 29
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Thank you Annie May. I’m glad to have found this site also. Happy Thanksgiving to all."
Nov 23
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Thank you so much @YummyMummy for all the knowledge you have shared. Sounds very hopeful.I have often wondered if the Premarin creme I started using could’ve triggered this disease. My hair seemed fine before I started using that. You say the…"
Nov 20
illustr8r left a comment for Donna
"Hi Donna, This is the thread where the essential oils were listed: http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils It was posted by "April" Here is the recipe: 4 tsp. grapeseed oil + 1/2 tsp jojoba…"
Nov 14
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Yes I have overall thinning AnnieMay It’s best not to wash your hair every day. I’ve also started using dry shampoos. They give a lot of body & fluff. I like Batiste it’s only about $5-6.00 Walmart. then I’ve tried…"
Nov 14
chris for hair replied to Donna's discussion FFA how much hair loss will happen
"I don't think this question can be answered. The condition varies so much and giving an average does not mean that you will be the average person with FFA. I know this is not the answer you want, but it is true for many chronic conditions.…"
Nov 13
Donna replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"Hi Erika, I was just diagnosed about a month ago. I’m 60 years old. Prior to going to the Dr. I started using Rogaine on my own. Minioxidil 2% twice a day. Then the foam 5% once a day. The Dr. said that was good I had started doing that &…"
Nov 11
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I have not noticed any change in that regard but I am not sexually active due to lack of a partner. I think the sexual side effects are more for men as they can become impotent."
Nov 11
Erika B replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"hi Nancy Thank you so much for all your info. I have a question for you about the medication. I hope its ok to ask. The number one side effect is low libido. Have you seen a change on that? "
Nov 10
Erika B replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I would love to hear more about your diet!! "
Nov 10
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"AnnieMay, I have been losing my hair since I’m otmreally sure when. But in June really noticed how bad it was getting. Went to Dr. in early Oct. & she prescribed topical corticosteroid (Clobetasol). It is suppose to help with the…"
Nov 4
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"I have been using dry shampoos now for a couple weeks. I like that it give my hair more body. Also the rogaine give more texture. But it makes my hair dry I’ve noticed. So last night I rubbed castor oil through my hair as a conditioner &…"
Nov 4
Donna liked Celia UK's group Frontal Fibrosing Alopecia
Nov 4
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Annie, my Dr. also diagnosed me visually with FFA but did not mention doing a biopsy.i have my eyelashes, but eyebrows are almost gone. Right side temple & right side eyebrows much less hair than right side. I haven’t noticed an unusual…"
Nov 1

Profile Information

Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 7:56pm on November 14, 2017, illustr8r said…

Hi Donna,

This is the thread where the essential oils were listed:

http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils

It was posted by "April"

Here is the recipe:

4 tsp. grapeseed oil + 1/2 tsp jojoba oil

2 drops cedarwood EO

2 drops thyme EO

3 drops lavender EO

3 drops rosemary oil

Here is  a link to the study

http://www.ncbi.nlm.nih.gov/pubmed/9828867

I have a friend who has always had thin hair. She hasn't been diagnosed with anything- just unlucky in the hair dept. She started using essential oils and had some success. She used something call Ylang Ylang along with lavender and cedarwood. I'll try this concoction since it was a scientific study. I have been using cod liver oil and it's soothed my itchy scalp. Dr. says to stop with Clobetasol for awhile...*sigh* It's always something isn't it! :)

 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service