Dena
  • Female
  • La Vernia, TX
  • United States
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Dena's Discussions

Immunizations

Started this discussion. Last reply by Jason Oct 7, 2013. 4 Replies

My soon to be 7 year old daughter has had AA for about 1 1/2 years. She lost all hair, eyelashes and eyebrows at the start of this year. When she was first diagnosed she was due for her…Continue

Tags: children, immunize, immunizations

Dance recitals

Started this discussion. Last reply by MaddiiBoo Apr 14, 2013. 5 Replies

My 6 year old daughter has her first dance recital since losing her hair, eyelashes, and eyebrows. She is an extremely confident kid, but she did ask for a wig for the recital. She said since it was…Continue

Kids games

Started this discussion. Last reply by Dorothy G. Jan 27, 2013. 4 Replies

I know this may sound weird, but do your young children with AA hate Duck, Duck, Goose? My daughter is 6 and is totally bald. They play this game a lot at her dance and gymnastic classes. I noticed…Continue

Tags: school, children

Kids and wigs

Started this discussion. Last reply by Elliebeauty Feb 7, 2013. 16 Replies

I have a very active 6 year old daughter who has lost all her hair. I would love for her to be able to find a wig that she would be able to wear in gymnastics and dance, but have concerns on what…Continue

Tags: gymnastics, dance, children, wigs

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Latest Activity

Dena replied to Sandy K.'s discussion Tears, Fears and uncertainty
"My daughter is 11 and has Alopecia Universalis since the age of 6. I know the struggle of trying to reassure you daughter that she is just as beautiful as always, but they are at a really hard age to be going through this. I am sure you know how…"
Nov 8, 2017

Profile Information

Relationship Status:
Married
About Me:
I am the mother of a beautiful little girl with AU.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Dena's Blog

The Last 5 Years

Posted on October 11, 2016 at 2:52pm 2 Comments

I remember when we first saw that quarter sized bald spot on my 5 year old daughter's head. I was terrified and determined to make sure I found a way to stop the inevitable. Trust me we tried everything, thinking the solution was one experimental treatment away. Finally my daughter said she was done with the painful injections, irritating treatments and crazy diets. There was a big fear of the unknown, but I knew ultimately it was her decision whether she wanted to continue. She just wanted…

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At 8:03am on June 5, 2013, Matica said…

Thank you so much for your comment. It`s an inspiration to see how young girls cope with this diagnosis. Maybe much better than the parents. I just hope people treat her ok in the future. Do you have any advice on how to answer people who ask? I want to be open about it, but what if she wants to be private about it when she gets older? The everybody knows...I dont want her to wear a wig before she wants it her self..She is so beautiful your daughter!! Such an inspiration!

At 11:48pm on May 21, 2013, kdeff said…
Thanks, you have a beautiful daughter also. I love seeing older children doing so well with Alopecia. Lucy is only 3, but she is very aware of her hairloss.
At 6:48pm on December 13, 2012, LeslieAnn Butler said…

Hello and welcome, Dena!
How are you today?
Leslie Ann

 
 
 

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