Debbie
  • Female
  • Jackson, nj
  • United States
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Bummed out!!

Started this discussion. Last reply by Erica Jan 12, 2009. 1 Reply

Have you seen this new laser machine!

Started this discussion. Last reply by Zoey May 10, 2009. 5 Replies

How often do you get sick compared to before alopecia?

Started this discussion. Last reply by Carol Oct 23, 2008. 2 Replies

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Relationship Status:
Married
About Me:
About 8 years ago I started to get some bald spots. Two years later I lost it all on my head. A year later I got pregnant with my daughter and my hair came back. I didn't need a wig for a few months. A month before I had her, it all fell out again. Six months later I got pregnant with my son and I lost everything. A few years later I got my eyelashes back, one full eyebrow, part of the other. A few months ago my hair on my head started to grow back. It's spotty, but what is there is a nice amount. If it was like this all over my head, I wouldn't need the wig anymore.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes

Comment Wall (12 comments)

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At 2:03pm on January 16, 2009, LeslieAnn Butler said…
Hey Debbie, I'm so glad you are enjoying my book! Hooray that you got it on Amazon. Big hugs!
At 7:22am on October 30, 2008, Shannon said…
Hi Debbie!

I am in Monroe, NY. 10950
I am looking to start a support group. Would you be interested in joining?
Take good care!
At 8:23pm on October 23, 2008, Garden Girl said…
Debbie,
Haven't heard from you in a while. How are things going?
Cate from Moorestown, NJ
At 8:29pm on October 15, 2008, Esther said…
hi debbie, i'm in clifton and i know what you're going through. It's tough but i know this is something i have no control over. i haven't fully accepted it yet, i struggle with this everything but i'm trying. the support from everyone here is great.
At 7:57am on October 1, 2008, Garden Girl said…
Debbie,
Hi Neighbor!!! I have never met anyone with A either. I have had AU since I was 15. I am now 49. It has certainly become easier in terms of emotional adustment though I really wish I had eyebrows and eyelashes for practical as well as cosmetic reasons.
I am a psychologist and colege professor. I choose to wear hair at this moment although that is a decision that is evolving. When my kids were young, I was afraid other kids would make fun of them so I wore hair to protect them. Now that they are older, they support me in whatever decision I make. I am not so sure about my husband. He says he would support me but I sense it would take some adjusting on his part. That's ok, the adjustment, I just want to be sensitive to the timing of any transition I would make.
I check my e-mail regularly psysuz@hotmail.com. Let's "talk."
At 12:41am on September 30, 2008, Garden Girl said…
Moorestown! Not far from you!
At 11:41pm on September 16, 2008, Cheryl, Co-founder said…
Hi Debbie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 6:46pm on September 16, 2008, LeslieAnn Butler said…
Yes, you're right, the vacuum ones are hot. Did you check Amy Gibson's swim wig? It's made of cyberhair, which is supposed to be better than other synthetics because it doesn't frizz. I don't have one, but it sounds interesting.
At 6:34pm on September 16, 2008, LeslieAnn Butler said…
To be specific about a couple of the things you asked, as far as swimming goes, there are options -- you can get a vacuum-based wig which will stay on in the water, you can get a swim wig from Amy Gibson (google her), you can wear a scarf or a hat and not put your head under! I love to do the sidestroke, breast stroke or tread water and I can do them without putting my head under the water. I wear a synthetic wig because then I don't have to worry about restyling it!
At 6:30pm on September 16, 2008, LeslieAnn Butler said…
I don't let it stop me from doing the things I love. That's one reason I wrote the book, "If Your Hair Falls Out, Keep Dancing!" A lot of people, especially women, have a hard time getting their footing because alopecia can wipe out self esteem in one fell swoop. It may take a little time, but you can get back to feeling normal and doing the things you love. You might want to get a copy of the book -- you can order it by clicking the link on my page, or going to Amazon.com or the naaf.org marketplace! I'll be it will make you feel lots better...
Hugs!

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