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Latest Activity

Anna replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"PUVA is a combination treatment which consists of Psoralens (P) and then exposing the skin to UVA (long wave ultraviolet radiation). For oral PUVA, methoxsalen capsules are taken two hours before the appointment for treatment. For bathwater PUVA,…"
Mar 30
De-nise replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"Hi. "So I am just a little curious" :D I feel a 100 percent the same. I never had hair on my arms but my eyebrown and lashes look so strange... patches in my face. The hair on my head, never really wants to be where it is. When i was a…"
Mar 27
Dorothy G. replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"Hi Danielle, I've lost about 30% scalp and about 1/3 one one eyebrow."
Mar 18
Dorothy G. replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"Can you tell us anything more about the PUVA? I'm glad it's worked for you."
Mar 18
Anna replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"Hi I have AA for 15 years. My hair fell and grew again during this time but 2,5 years ago I lost my hair and my eyebrows & eyelashes. It was never as bed as last time. I got PUVA therapy and I got my all hair back. It is over 2 years since this…"
Mar 16
Carl replied to Danielle's discussion How many with AA have lost their facial hair as well? in the group Alopecia Areata
"Hey Danielle. Im a new alopecian, Mine started around 4 months ago on my chin. Since then Iv lost all my facial hair and around 50% of the hair on my head. I still have my eyebrows and lashes at the moment. And yeah. I have to shave my head almost…"
Jan 19
Danielle updated their profile
Nov 14, 2011
Danielle and JoJo are now friends
Nov 14, 2011
Danielle gave a gift to Santi
Jul 22, 2011
Tamara and Danielle are now friends
Apr 27, 2011
Heather L left a comment for Danielle
"Hello Danielle! Thank you for the gift!! :) Made my day! It's been a while.... how are you? Hailey is beautiful!!! Heather"
Apr 26, 2011
Trish commented on Danielle's blog post And I wonder why my hair keeps falling out
"Amanda, I'm sure of it too. I actually have had no need to go to a doctor in almost over 25yrs. The last time i saw one, I was pregnant with my daughter. Although, I'm thinking, its about time for at least a check up...lol"
Apr 26, 2011
Amanda Carter commented on Danielle's blog post And I wonder why my hair keeps falling out
"For approx 3 years I was totally AU, I hadn't a single hair on my body, and I never got a cold or even a sore throat (which was my weak point before) Then a year ago I started getting regrowth, not much, but a bit of hair on my head, a few…"
Apr 26, 2011
Trish commented on Danielle's blog post And I wonder why my hair keeps falling out
"Yes, I too regrew almost a full head of hair while I was pregnant only to lose it again when my child was born. My dad is convinced that the hormonal change in my body is what caused it to regrow, since it never did again. and Lisa-Lynn....because…"
Apr 25, 2011
Amanda Carter commented on Danielle's blog post And I wonder why my hair keeps falling out
"My hair fell out 7 years after my last son was born, I actually had a full head of hair until I was 35 years old, and then I had a big shock, I found out my dad wasn't my real dad, my real dad lived 7 miles up the road. I decided to meet him,…"
Apr 23, 2011
Lisa-Lynn Marini commented on Danielle's photo
Thumbnail

WIGGING OUT LOL :-)

"hey I like this look on you"
Apr 23, 2011

Profile Information

Relationship Status:
Single
About Me:
I was diagnosed with alopecia at the age of 20 and have been trying to deal with it for the past 6 years. Everyday as hard as the last but some how I wake up every morning put on a wig and a smile and go!!!! I have great family and friends that are here to support me but I am thankful for them everyday.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Danielle's Blog

And I wonder why my hair keeps falling out

Posted on April 21, 2011 at 11:00pm 9 Comments

So the last time I blogged I was 3 months pregnant and my hair had started to fall out again. Well it decided to do that wonderful thing that alopecia areata does and grow back and give me hope. At one point it actually started to get really full and thick and i had no spots. Then my little pumpkin was born (Hailey Darlene Burley-Heslop Oct 31st, 2010 thats why we call her our pumpkin 8lbs 13oz she was a big pumpkin lol) and then i noticed the back of my hair line started to creep up and up and… Continue

Pregnant and losing it all over again

Posted on March 17, 2010 at 9:04pm 4 Comments

So i found out not too long ago that i am pregnant and as much as it is a wonderful thing it is stressful and stress is not my best friend lol. I have only been with my boyfriend for two months and our relationship is still very new and this is a big unexpected surprise. We are both very happy and cant wait but there are still the concerns and worries of being first time parents at such a young age and in a very fresh relationship. Since i found out i have noticed my hair is falling out more… Continue

It's been too long

Posted on January 4, 2010 at 12:36am 1 Comment

Alot has changed for me in the past little while. When i first started on this site I was dealing with alot of emotions linked to my alopecia. I was debating on whether or not to go talk to a therapist and i finally did. I had a couple of appointments but found that talking to her didnt really help much (to each their own right) but I did it for my mom. I actually found writting in a journal helped alot more then anything, it was almost like taking all of it out of my soul and leaving it on the… Continue

And the stress keeps coming

Posted on May 13, 2009 at 11:16pm 0 Comments

So since the last time i wrote on here i was starting to deal with all my insecurities of my alopecia. Since then I have met a wonderful guy named John and we started dating each other. I still have not showed him my shaved head and i sleep with my wig on which can be annoying at some times. He knows about my condition and said when i am ready to show him he will be there for me. I just need some more time.



About 2 weeks into our relationship he started complaining about back pains.… Continue

Today was a VERY bad day

Posted on April 7, 2009 at 4:12pm 8 Comments

As i explained in my other blog I have been dealing with this for 4 years and just recently came clean to my mom about my true feelings about my alopecia. When we had discussed it further she asked if I would talk to someone about this. Today I went and saw my doctor about talking to someone about my feelings and that was really hard for me. My mom went with me and afterwards i felt really crumby. I feel like I have given up that i am too weak to deal with it on my own and that everyone i have… Continue

Comment Wall (15 comments)

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At 8:09am on May 12, 2011, Santi said…
Hey Danielle,
Thanks a lot for the red ribbon gift! Sorry if I'm not online very often, I'm pretty busy again and I have not much free time. How have are you doin'? Hope everything's fine with you, greetz from BCN
At 10:04am on April 26, 2011, Heather L said…
Hello Danielle!

Thank you for the gift!! :) Made my day! It's been a while.... how are you? Hailey is beautiful!!!

Heather
At 8:09pm on April 22, 2011, Lisa-Lynn Marini said…
Danielle, what a pleasure it is ot meet you :) thank-you for the add,,this song from pink is my absolutely favorite, it has so much meaning doesn't it" WE ARE PERFECT"
At 6:36pm on January 4, 2010, Stephanie said…
Hi Danielle
Thanks for the comment! I did my crying and while I am not eager at all to get back out in the dating scene any time soon I know that I have to keep my spirits up and keep trying!! Thanks again
At 4:08pm on September 4, 2009, Heather L said…
Hello Danielle,

HAPPY BIRTHDAY! HOPE YOU HAVE A GREAT DAY!!

Heather
At 11:54pm on September 3, 2009, JeffreySF said…
Happy Birthday!!!

Jeffrey
At 11:08am on May 31, 2009, Heather L said…
Hi Danielle,

I just read about your post about your boyfriend. So sorry you are both going through soooo much! How are you both doing?

I'll say a prayer for you!
Heather
At 11:29pm on May 14, 2009, Lois said…
.You're a blessing by John's side now...he's in no-mans land with emotions simmering just under the surface (sound familiar?) and possibly this difficult time with medical visits/tests and him baring himself (heart/body/mind) will help you do the same{ like in baring your head minus the wig}. You are a huge support for him....let him u>u>give back to you and support you & your beautiful baldness *when you are ready*.
At 10:27pm on April 7, 2009, Heather L said…
Hey Danielle
Thank you for inviting me to be friends! I look forward to getting to know you better too!!

Heather
At 5:54pm on April 6, 2009, Heather L said…
Hi Danielle!

It is a pleasure to "meet" you! I read your story and think you are one strong inspiring beautiful woman! I also had my first spot at age 20! Fortunately I have not lost all my hair- but often wonder if and fear that will happen. (currently have multiple spots)

Even now with just spots my mother will look at them- and tears will run down her face. She always says " If I could trade places with you I would in heartbeat just to spare you any sadness" It's a helpless feeling for our mom's to love us so much and not be able to change anything! But how lucky we are to have them love us so much! :)

my two year old nephews kisses them (calls them hair- boo boos) - I figure if that doesn't heal them nothing will!

I think Jeffrey's idea to join a support group is a good idea- any in your area?

Heather
 
 
 
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