Carma Harper
  • Female
  • Germantown, TN
  • United States
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Carma Harper's Discussions

auto immune disease

Started this discussion. Last reply by Patchesforlife on Monday. 17 Replies

Has anyone else been told Alopecia is an auto immune disorder? I have been tested for it and nothing comes back positive!Continue

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Latest Activity

Patchesforlife replied to Carma Harper's discussion auto immune disease
"Xeljanz is proven to be best treatment"
Monday
Theresa replied to Carma Harper's discussion auto immune disease
"Peach fuzz is a good sign.  I started taking Viviscal a few months back, it won't help with new hair growth, but the hair that I've had grow is much stronger, not brittle and weak, but it took about 2 months before the little hair…"
Jun 18
Jo replied to Carma Harper's discussion auto immune disease
"Like u I thought I might wear a wig. I'm age 57 and going through menopause too. I tried on a couple wigs someone gave me but thought my head was going to melt down it got so hot and sweaty. I've decided to go bald and next Friday am…"
Jun 18
Theresa replied to Carma Harper's discussion auto immune disease
"Your story is the same as mine.  I had a few patches in September, the first week of Feb I decided to get the steroid injection - within 4 weeks, my hair fell out in handfuls, by mid-April it was gone, mid-May lost all my body hair, I'm…"
Jun 17
Carma Harper replied to Kay ♡'s discussion Stress & Alopecia
"My hair loss first started as stress related 2 years ago. then in Nov. 2016 all of my hair on head fell out and I had to start wearing wig. I was doing this acid type treatment and it was growing back a little then all of a sudden in Feb. 2017 all…"
Jun 17
Carma Harper liked AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
Jun 17
Carma Harper replied to Carma Harper's discussion auto immune disease
"The only test that has back positive in a FANA but when they do further test from that everything is negative. I have been tested for lupus, thyroid, and just about everything else. I have had alopecia just in spots in the back of my scalp for 2…"
Jun 17
Carma Harper replied to Carma Harper's discussion auto immune disease
"I have alopecia universalis. All over no hair anywhere on body since Feb. I started out 2 years ago and with alopecia areata just in the back of my head. then in Nov. 2016, I lost all of hair on scalp, then in Feb.2017  Have lost all body…"
Jun 17
Sue replied to Carma Harper's discussion auto immune disease
"Hi Crma, it is really auto immune. There is no remedy, in my case it is due to stress. I began with AA 38 years ago, now I am 55. It is getting worse and worse. For the 3 last years I lost great part of my eyebrows and lashes. Part of it came back…"
Jun 16
Stacie replied to Carma Harper's discussion auto immune disease
"I did not say that AA is always accompanied by other autoimmune diseases.  I said that it is typically accompanied by other autoimmune diseases.  This does not mean that they appear together at the same time.  But if you have one…"
Jun 15
Patchesforlife replied to Carma Harper's discussion auto immune disease
"Seems to me that biologics are good treatments for AA. Also if yiu have AA it doesnt always mean you have other autoimmune diseases."
Jun 14
Return_life replied to Carma Harper's discussion auto immune disease
"try xeljanz if u want"
Jun 14
Jo replied to Carma Harper's discussion auto immune disease
"I was told I have alopecia areata by 3 doctors who saw me one time only and no tests were done. They told me it is an autoimmune disorder. The last doc. Derm, who saw me advised me to take a multivitamin with biotin and zinc in it. Has anyone else…"
Jun 14
Stacie replied to Carma Harper's discussion auto immune disease
"Because androgenic alopecia is not typically accompanied by other auto-immune conditions - areata is.  Other auto-immune conditions include lupus, celiac disease, etc.  They can be very serious.  The potential for re-growth with…"
Jun 14
Patchesforlife replied to Carma Harper's discussion auto immune disease
"Why would she be lucky if its androgenic and not areata. In latter case we might have our hair back. While with androgenic there is no chance of having it back"
Jun 14
Return_life replied to Carma Harper's discussion auto immune disease
"how can they test you for something they don't understand? lol... just lol they checked your c reactive protein to asses inflammation? they checked your white cell to see if immune system was fighting? u didn't specify what kind of…"
Jun 13

Profile Information

Relationship Status:
Married
About Me:
I work at St. Jude Children's hospital part-time weekender shift. I have been married 35 years and have 2 children which are the joy of my life! I have been suffering with alopecia about 2 years and in Nov. 2016 lost all of my hair. now waiting to see a specialist in Cleveland Ohio!!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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