BrianH1972
  • Male
  • Tomball, TX
  • United States
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Dr. Hina commented on BrianH1972's blog post Off the Xelganz
"Everyone is free to express their opinion so be it .... continue the defamation."
40 minutes ago
Shannon commented on BrianH1972's blog post Off the Xelganz
"Dear Brian, I know how difficult that it can be to lose even our eyebrows and eyelashes.  I am sorry you're going through that and having to make the difficult choices about medication.  Probably when you look back one day you will…"
Sep 13
Patchesforlife commented on BrianH1972's blog post Off the Xelganz
"what has your doctor said?"
Sep 13
AloPapa commented on BrianH1972's blog post Off the Xelganz
"Who are you trying to impress at this point? Xelganz is a crazy dangerous drug for the non life threatening illness of hair loss. You’ll get better outcomes with healthy eating, living and relaxed life style anyway."
Sep 13
lea commented on BrianH1972's blog post Off the Xelganz
"PS I did microblading and really happy with the results. Have a friend who uses water proof liner on her husband when he like to have brows (he has alocpeia too) and says no one notices."
Sep 13
lea commented on BrianH1972's blog post Off the Xelganz
"Thanks for sharing Brian. I can't speak for you but when I took meds that were hard on my liver and had grandma die of liver cancer I had to stop. I feel like it would be really hard if I better results with drugs too, but am sensitive and have…"
Sep 13
Alo-mom commented on BrianH1972's blog post Off the Xelganz
"You bring up a very important issue, risk vs. reward. Yesterday the FDA listened to many voices of those with alopecia in Maryland. As the move forward to approving drugs this process has become part of the analysis. NAAF most likely will have this…"
Sep 13
Rascalx2 commented on BrianH1972's blog post Off the Xelganz
"So, anyway, I feel so much better having the hair I have. I am AU and it feels good to not stand out as the freak in the crowd but to blend in with the crowd. I am continuing with xeljanz at this time but I do think about side effects constantly."
Sep 13
Frrankie commented on BrianH1972's blog post Off the Xelganz
"Your are the problem with America. Role back 44 years DPCP is showing results with Alopecia but can't pass FDA guidlinee. Kids are told the problem is stress with the only real treatment is steroidal. Thousands of suffers suffer from snake oil…"
Sep 13
femmemuscle commented on BrianH1972's blog post Off the Xelganz
"I learned a lot about this whole situation. Not regarding the drug, but the human condition. In WWII, people were herded in concentration camps, and used as medical experiments.  They knew, as well as the doctors who were performing experiments…"
Sep 13
Frrankie commented on BrianH1972's blog post Off the Xelganz
"Over 40 years with Alopecia. The mirror never changed. I was called a skinhead at maybe 7. At 46 I am just called white. Ya I am giving Xeljanz a true shot. No side effects. I fear Alopecia related autoimmune complications more than any Xeljanz side…"
Sep 13
Return_life commented on BrianH1972's blog post Off the Xelganz
"skin cancer? wow that did escalated quickly. it's 2017 my friend. we have no idea what causes cancer. my brother in law died of cancer 2 years ago, he was 35, he never smoked didn't touch alcohol and was slim. millions of people worldwide…"
Sep 13
Lynda commented on BrianH1972's blog post Off the Xelganz
"I am leery of all the medications prescribed so freely. I don't necessarily think adding all of the chemicals to the already stressed body makes any sense. I'm considering going drug free for my condition and just living with the results."
Sep 13
Rascalx2 commented on BrianH1972's blog post Off the Xelganz
"I have been in the exact spot you are in the past few days. I have been on xeljnz for year but had increased dose and past months have had full eyebrows, full beard, full sides temple area on head. Its all white turning dark looks salt and pepper, I…"
Sep 13
Terri commented on BrianH1972's blog post Off the Xelganz
"I also am losing hair and have lost my eyebrows.  When 1st diagnosed Dermatologist put me on meds.  The side effects so bad, wound up in the emergency room,  that I'd rather lose hair than put my body at risk.  After a visit…"
Sep 13
Sunflower commented on BrianH1972's blog post Off the Xelganz
"Stop the drug! Have your eyebrows microbladed -- it's awesome. I have NO real eyebrows -- and had them microbladed -- they look real  and natural -- no one ever said a word -- which is a GOOD thing! Good luck!"
Sep 13

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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BrianH1972's Blog

Off the Xelganz

Posted on July 25, 2017 at 1:00am 48 Comments

I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.

My dilemma is I have a two year old beautiful baby girl. I love the way this drug…

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Decisions

Posted on August 8, 2016 at 11:00pm 3 Comments

Not sure what to do. Should I give up the eyebrow fight and the injections and let nature run with it or should I continue to spend the money on shots with reasonable results? Also I am being told Latisse works on brows and lashes. I already shave me head due to male pattern baldness. I teach so it is a bit scary when you have 200 eyes on for hours a day each week.

I often received compliments about my brows and lashes pre alopecia and now the lashes are gone and brows take…

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