Where acceptance is all there is!
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- Events (5)
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BaldGirlsDoLunch.org's Groups
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Long Islanders with Alop…
10 members
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Baby Let Your Hair Hang…
47 members
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Carolina Alopecians
19 members
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Philadelphians with Alop…
29 members
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alopecians who have a fr…
55 members
BaldGirlsDoLunch.org's Events
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Rhode Island Launch and Lunch!
March 20, 2010 from 11:30am to 3:30pm – Twin River Casino
Thea's page for Bald Girls Do Lunch
Gifts Received (2)
Latest Activity
I'm not a wig expert but it can't be too many things. I hope the wig makers will weigh in on this so we can all learn.
Might it be:
1) poor knotting at the factory
2) too much conditioner
3) or conditioner in contact too long on the knots
The hai…
So many valuable insights and perspectives posted by all the women below especially in regard to people close to use being "worried" on our behalf. So I will add this thought.
For many people, regardless of the specifics of the situation, change is…
Friends and family are wonderful, but there's a limit and they can max out pretty quickly on listening to alopecia stuff.
Other places to ask wig questions are at heralopecia.com ( not sure how many from AUS there) or wigsupport.com. Many women tur…
Best wishes to you and Ariana. Keep us posted!
Thea
Hi Dee,
See if one of these stretch liners ( like fishnet) will help. It keeps the inside of the wig off your scalp.If you can't find any in Australia I can pop one in the mail to you.
If there are any places in the wig that are especially annoying…
Are you using silk wraps, tips or gel for your nails? Have you had any increased peeling or weakness when fake nails are changed?
Thea
www.baldgirlsdolunch.org
Join our List
We talk! We inspire! We get women going like no traditional meeting can. Let others know if you've been to BGDL. Need info about our events? Our brow products? Just ask here.
Posted: March 9, 2010
Join the Seattle team!
Need not have alopecia. Need not show a bald head.
Seattle and surrounding area,Washington state
Suggest your city if other parts of the state.
Women with Alopecia Month 2010
Interviews, photos, or ass…
Great idea, Thea. Spreading our image of women living well with alopecia will help us all.
You can use it on a lace wig. Be sure you have the glue release product that will dissolve the glue without harming the lace....the more times you glue and unglue the more wear and tear on the lace.
Though you can shampoo and rinse through the wig,…
Yes, the lace mesh is there so the frontal baby hairs could be knotted into it. Take a pair of sharp, tiny pointed scissors and cut the lace back to the baby hairs. Some people like to glue that mesh down to their skin, but depending on your hair st…
I don't now if this is true of all states in the USA ( Pat I know you're in the UK, but worth finding out)..but in New York state by law every cosmetic is returnable no questions asked. Stores may try to wiggle out of it but it's the law here. It be…
Profile Information
- Relationship Status:
- Married
- About Me:
- Twitter @alopecia
My blog is at baldgirlsdolunch.org
This is Thea's page, as founder of baldgirlsdounch.org . The page was here at the start of AW before the Groups were set up. Sorry for any confusion. So please Join our Group too! We're the only not-for-profit organization specifically created for women with alopecia areata. While you're at our site, take a look at our fundraising products in the BGDL logo store, testimonials to see what women are saying about our events in various states across the US, and leave us contact info. Love to hear from you.
UPCOMING: "Alopecia Style Event" Baltimore/Wash DC NOVEMBER 1
Details at www.baldgirlsdolunch.org. Check back here or at the website for other additions. The quickest way is to sign up at our "Let Us Help" or "Join Our List" page and we'll notify you of events in your area.Or just send a message via AW messaging.
Luxury Wig Raffle ENDS October 31, 2009..drawing on November 1st
November 1, 2009...Alopecia Style Event, Silver Spring, Maryland
rsvp@baldgirlsdolunch.org to learn more!
All events require reservations. You'll find details in the blog and in the Upcoming List at www.baldgirlsdolunch.org
I look forward to meeting you!
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
- Website:
- http://www.baldgirlsdolunch.org
BaldGirlsDoLunch.org's Photos
BaldGirlsDoLunch.org's Blog
When you think hair loss is unbearable......
Watch and listen to Katie Piper and what she says about
1)setting goals and
2)just simply moving forward.
http://www.cnn.com/2010/WORLD/europe/01/12/uk.katie.piper.acid.attack/index.html
1)setting goals and
2)just simply moving forward.
http://www.cnn.com/2010/WORLD/europe/01/12/uk.katie.piper.acid.attack/index.html
Posted on January 12, 2010 at 11:00pm — 3 Comments
Songs from Bald, The Hairless Musical
Words and music by Carl Carlyle
Songs are playing on the Bald Girls Do Lunch page here.
Bald & Beautiful - some lyric lines are Queen Nefertiti's call to the world to clear our minds and see the beauty of bald women.
21st Century Girl - Sung by the girl with alopecia because hair's so last century
Glad to be Bald - the bald women show off their pride to rally a… Continue
Songs are playing on the Bald Girls Do Lunch page here.
Bald & Beautiful - some lyric lines are Queen Nefertiti's call to the world to clear our minds and see the beauty of bald women.
21st Century Girl - Sung by the girl with alopecia because hair's so last century
Glad to be Bald - the bald women show off their pride to rally a… Continue
Posted on October 15, 2009 at 5:00pm — 1 Comment
Life is not over
Alopecia hits us with a changed self-image or an altered self-image since childhood. It's a loss. We may grieve. It's a journey as is all of life. Normal is in there....it may not always feel that way.
Today's paper has the obituary for Nan Roberston, Pulitzer Prize winning Times journalist. Her life story resonates.
“I went dancing the night before in a black velvet Paris gown, on one of those evenings t… Continue
Today's paper has the obituary for Nan Roberston, Pulitzer Prize winning Times journalist. Her life story resonates.
“I went dancing the night before in a black velvet Paris gown, on one of those evenings t… Continue
Posted on October 15, 2009 at 1:30pm — 2 Comments
Fall 2009 Research Update from the BGDL Blog
The open label, non-randomized efficacy study using Plaquenil (hydrochloroquine) lead by Drs. Hordinsky (University of Minnesota) and Kalish (State University of New York at Stony Brook) was completed back in January, 2008.
The clinical trial used 16 patients of both sexes ages 18 and over with severe scalp alopecia areata ( >75%) with and without loss of body hair. Statistical analysis was performed on sections of the scalp to determine if there was any significant regrowth compared to pre-… Continue
The clinical trial used 16 patients of both sexes ages 18 and over with severe scalp alopecia areata ( >75%) with and without loss of body hair. Statistical analysis was performed on sections of the scalp to determine if there was any significant regrowth compared to pre-… Continue
Posted on October 10, 2009 at 5:30pm —
The BGDL Research Update - Another Treatment Dead End
The future dims further for treatments - another reason why BGDL educates the alopecia areata community on research, treatments and especially helps women live beautifully and successfully today.
Link to the full review of Dr. Strober's results from my blog post of 6/3/09
With the usual hoopla in 2006, it was announced that a $200,000 n a a f grant along with a $1 million donation of alefacept (Amevive) from Biogen would study… Continue
Link to the full review of Dr. Strober's results from my blog post of 6/3/09
With the usual hoopla in 2006, it was announced that a $200,000 n a a f grant along with a $1 million donation of alefacept (Amevive) from Biogen would study… Continue
Posted on June 3, 2009 at 7:30pm — 1 Comment
Comment Wall (242 comments)
- At 12:34pm on March 9, 2010,
Lilly Lady said…
- Hello! Such a fun idea. Your lunch looks like so much fun. If I can come let my bald self out of the closet it would be so great to find or start something like this in Dallas. Thank you for welcoming me so quickly.,
- At 6:34pm on March 2, 2010,
deanjones said…
- Thanks, I will pass along the word to my friends and loved ones.
- At 12:48pm on February 24, 2010,
Stephanie said… - Egad!!
- At 12:13pm on February 24, 2010,
Stephanie said…
- The funny thing is, I thought I WAS a member of BGDL!
- At 12:05pm on February 24, 2010,
Ilia Reed said… - Just to say hello; you friended me some time ago. I like your initiatives. Now I'm bald and proudly so knowing this fine company. But Im not a girl and too far away to even remotely think about lunch. Just know that I support you and enjoy your bold baldness! Enjoy and take care all of you.
- At 1:02pm on February 21, 2010,
sg x said… - Heyy...thanks for the friend reguest :) xx
- At 12:47pm on February 20, 2010,
myem said… - Hi Thea,
Just want to say Hi and thank you for the lovely chat. Emily loves the brows powder. It stays the whole day even without the sealer. I am checking your site frequently, hoping for a break thru., just for my info. - Emily has no intention of trying any treatments at this time. Come and visit us soon.
Take care,
Quynh
- At 5:03pm on February 17, 2010,
Louise (Jeremy's mom) said… - Thanks so much for the info and warm welcome! I will surely check it out!
- At 9:40pm on February 16, 2010,
Sandy said… - HI Thea!
Just wanted to stop in and say hello, as I've been away for a while. I miss you and think of you often. I hope you're doing well! Sending hugs and happy vibes your way today!!!! -Sandy
- At 6:54pm on February 16, 2010,
Michael Gutwein said… - Thanks for the welcome. I never really thought about my situation till within the last 6 months or so. So maybe you will see alot of me on here.
Michael
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