April
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  • United States
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Latest Activity

turtles replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"What kind of hair piece did you get and where did you get it?"
May 16
April replied to Anne Louise's discussion Emu oil in the group Frontal Fibrosing Alopecia
"Hi! I did try emu oil. I used it for a while, I would say maybe 3-4 months every night. I didn't notice a difference, but sometimes hard to see the effects with this disease. I started adding essential oils to the emu oil, lavender, rosemary,…"
Dec 31, 2016
mc replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"PRP is very painful!  I even had doctor do it on my eyebrows...ouch!"
Nov 2, 2016
CurlyK replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"I looked into this over this past summer. Dr. Greco in Sarasota is one of the best for using PRP for hair loss. HOWEVER, HE is the one who looked at my scalp and told me to get a biopsy as he suspected FFA (he was right). He told me straight up that…"
Oct 21, 2016
April replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"Yes! A positive attitude goes a long way with hair loss. I have good days and not so good, but talking to other women who are keeping positive is so helpful. Thanks: )"
Oct 17, 2016
NatalieW replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"I  take Doxycycline to manage the itch/redness and use Regaine in an attempt to keep my eyebrows. Keeping things in perspective and having a positive attitude goes a long way, and I will look at hair pieces when it gets worse over the next few…"
Oct 17, 2016
April replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"Thank you, Natalie. Really helpful! Wow, sounds quite horrible actually. Have you found any other treatments helpful??"
Oct 16, 2016
NatalieW replied to April's discussion Platelet Rich Plasma Therapy in the group Frontal Fibrosing Alopecia
"Hi April, I did quite a few sessions of this with a cosmetic Dr when I was first diagnosed 2 years ago. I wanted to try everything that was available and the Dr I saw had had good success with some men with male pattern baldness but it was her first…"
Oct 16, 2016
April added a discussion to the group Frontal Fibrosing Alopecia
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Platelet Rich Plasma Therapy

Has anyone tried this procedure? They draw your own blood, separate out the platelets using a centrifuge, then inject the platelets back into your scalp. Apparently it is used for all sorts of things like arthritis and injuries as well. I have been reading about it as a treatment for hair loss, although there is not a lot of info. out there. There is a doctor that does this not far from me, considering going to see him. TIA!
Oct 16, 2016
April and owlie are now friends
Oct 16, 2016
April replied to Dragon&Fox's discussion Excimer Laser Treatment in the group Frontal Fibrosing Alopecia
"Yes, I know I need to find a new doctor! Wyobalance, can you tell me more about the Levia machine? How/where did you get it? How does it work??"
May 29, 2016
April replied to Dragon&Fox's discussion Excimer Laser Treatment in the group Frontal Fibrosing Alopecia
"Dragon & Fox, I had Excimer laser treatment for FFA.  When I was having the treatments twice a week, after about 3 months I started to get a little bit of regrowth in the more recently scarred areas.  I do think it works, but I wish I…"
May 21, 2016
sadandunsure left a comment for April
"Hi April, I was reading a reply of yours about the injections. I had the same reaction...increased shedding, pale skin, dent. How long did to take for that to go away? Did you hair regrow?"
Aug 30, 2015
April commented on Celia UK's group Frontal Fibrosing Alopecia
"Thanks, everyone! Thinking about trying headbands, but wasn't really sure how to wear thrm, so your comments are helpful. KarenGinny you look awesome in your headband! Would never know you had a hair issue. Also, the research involving vitamin…"
Aug 13, 2015
April commented on Celia UK's group Frontal Fibrosing Alopecia
"Ladies who wear headbands: do you feel you can completely hide your hairloss with the headbands? Also, I keep trying to figure out how a hairpiece can cover the hairline? I know some use hairpieces but I'm just having trouble picturing it."
Aug 11, 2015
April commented on Celia UK's group Frontal Fibrosing Alopecia
"Little sad eyes,it looks like you still have your widows peak. That might be a good sign that it's not FFA! I lost my widows peak area first. Also, sounds like you still have some peach fuzz on the bare areas. Mine are totally smooth and shiny.…"
Aug 11, 2015

Profile Information

About Me:
Recently diagnosed and looking for information
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 1:16am on August 30, 2015, sadandunsure said…
Hi April,

I was reading a reply of yours about the injections. I had the same reaction...increased shedding, pale skin, dent. How long did to take for that to go away? Did you hair regrow?
At 11:50am on November 10, 2013, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann

 
 
 

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