Hi Annie & Klara, I hope this finds you well & happy. Just wanted to touch base & say hi.
Oh my niece wanted to know if the volcano or its ash has bothered you at all. If you can see it? She is quite interested, were making her look up where it is but asked, Aunti could you write & ask your friend(s) who live in Sweden, I told her I would, as she will get extra credit in her Science class for doing this.
I thank you in advance for both of us. Its like we always tell her, ask the questions, the only stupid question(s) is the one that is not asked.
You & yours take care. Talk to you soon.
XO
Pam

Hey my names lacey
i would just like to tell you how adorable your daughter is :)
I wrote a kids book about a princess with alopecia i think your daughter may like it I will try to out it on here.
Best of luck with this struggle i know you and your daughter will make it through!
I know its hard to see but hair is really just fuzz something to keep our heads warm

Hugs
xx

Signe does speak quite a lot of Swedish, we lived there from August 2008 - July 2009 and our girls attended Swedish school...so they had to learn! I thought that might be a fun connection! We lived in Kullavik.

wow you can tell ur daughter shes the prettiest little girl =)

Hi Annie, oh my gosh little Klara continues to amaze me with her fabulous & wonderful attitude. She may not realize it but she knows the true meaning of beauty is inner & she glows.
I am so happy for her, I met to ask if under the Christmas Tree or in the stocking she found a Liv Doll. She got Sophie, as said before she is my nieces favorite.
I am sorry to hear she is losing her eyebrows & lashes, bummer but good on her for not paying attention again she is a tough little cookie, little sister-friend rocks.
Now for you my sister-friend, as Mom, you hang in there, you are there for your daughter & that is such gift for her, little do you know you feed her strength. Have you thought about seeing a therapist? I see one, I needed help, tools to help me out. I love my therapist, Kathleen, she besides AW has really been my saving grace. It's helpful. In finding AW you have also found a support network & use it so good on you.
Because of you my friend your daughter(s) will know their worth.
Oh, before I forget you guys have a ball in April at camp, that should be so much fun.
Take care Annie & hang in there.

Pam

Hi Annie,
Lovely to hear from you. I read your blogs. I know exactly how you feel though Jon is a boy I have the same fears as he has progress to AU and has lost his eyebrows and just about all of his eyelashes. He talked about wearing sunglasses all the time so we are looking for some cool light coloured sunglasses.
To me he is beautiful. He does look different with no eyebrows and that but to me people with AU looks special.
I am happy for you that Klara is accepting her situation. It bodes well for how she will deal with this throughout her life. I think the best thing that a person can learn is to not worry about people that won't accept you for who you are - that they don't matter. That you are just as good as the next person. Not matter if you have AA or not this is a good lesson in life. If you can get to that point then I think nothing will prevent you from doing what you want in life.
Is the Alopecia camp in Sweden? You are so lucky to have that opportunity. Wish that we did here in Australia.
Jon is coping ok at the moment. He started a new small Christian School at the end of January - a close friend of his goes there. He seems to be fitting in well. Still has a way to go though in feeling totally comfortable.
It is sad that Jon is growing up in some ways. He is my youngest child. My eldest is 21 and for her and my next child who's 20 I have felt excitement for them as they have had plans and a direct to go in. I guess for Jon, like you with Klara, it is a different thing and I worry for him as to what the future holds. At the same time I am trying to stay positive for him. That he can do the things he wants to do in life.
Anyway, sorry I have gone on a bit.
Enjoyed reading your blog and thanks for getting in touch.
Take care

Hi Annie
I was just stopping in to say hi & see how you & Klara were/are doing?
As I said before Klara is so blessed to have you & she is so pretty.
I look at the pictures you posted & I see a beautiful young lady, one who will know the difference between inner & outer beauty, one who will have inner strength that will & is seeing her through much diversity.
Hang in there Annie.

Hi Annie, thanks a lot for your nice words. It must be hard watching your daughter go through this but from what you have written on your page you are a huge support to her and that will help her a lot. She is a beautiful little girl. I am hoping my hair will grow back. I don't want to get my hopes up because I would be extremely disappointed if it didn't but then I hear stories about people with terminal illness etc and that makes me realise I have a horrible condition but I am still alive. I am learning to deal with this but I will always have a little bit of hope :)

Awh, thank you. :) And actually both have them have finally grown back, after using this steroid cream.I was pretty worried,they were getting really big. Luckily they couldn't be seen unless my hair flipped up which i had to worry about alot :/ but basically i just put eyeshadow on it. But they're grown back & i'm just praying i don't get anymore. But it's possible..