NAAF 27th Annual Conference at Hyatt Regency Washington on Capitol Hill
July 19, 2012 at 8am to July 22, 2012 at 6pm
Alopecia World
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Andrea L.
- Female
- West Hollywood, CA
- United States
- Blog Posts
- Discussions (57)
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- Groups (1)
- Photos (1)
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Andrea L.'s Discussions
Looking for non-toxic hair dye for my fuzzy white hair
Started Nov 29, 2011 0 Replies 0 Favorites
Is intestinal bacteria also the cause for alopecia?
Started this discussion. Last reply by Sinead Nov 15, 2011. 18 Replies 0 Favorites
Get Growing - Tea
Started this discussion. Last reply by JeffreySF Mar 12, 2011. 3 Replies 0 Favorites
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Andrea L.'s Page
Latest Activity
Nick replied to Andrea L.'s discussion 'Is intestinal bacteria also the cause for alopecia?'
laura replied to Andrea L.'s discussion 'Is intestinal bacteria also the cause for alopecia?'
S Uy replied to Andrea L.'s discussion 'Is intestinal bacteria also the cause for alopecia?'
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- Discovered my first spot in the fall of 2008. I was 38. Since then it's just been falling out and getting thinner every week/month. For a while I got steroid injections from my dermatologist but decided to go a more alternative route and did 3 months of acupuncture and Chinese herbs. Didn't make it stop though but seemed to balance me out a bit. Bought a wig the other day, but I don't like wearing it. Also bought a hair piece which I might try out soon. Right now I can still get by with powdering the spots and somewhat disguising them but I am not sure for how much longer. :-(
Update: Been using squaric acid, prescribed by my dermatologist. Hair was growing back, scalp pain was less, then suddenly one day, it started falling out again, scalp pain came back. Serious shedding made me loose almost all the hair within 3 weeks.... Will continue w. squaric acid. Round two. I've also decided to wear a wig now since I got tired of wearing caps for almost 2 years. Have to get used to the wiggie still but it's not as bad as I thought. Update: Started loosing hair on legs and arms now, I guess it's turning into Alopecia Universalis now. Also experiencing some eyebrow thinning and lashes are falling out. Grrrr.
Another update: Eyebrows fell out and I got them tattooed now. White fuzz growing very slowly for the last 6 months but it's starting to look like a full head of hair again even so it's white. I am super scared it might fall out again, but it's hanging in there for now.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Andrea L.'s Photos
Latest Activity
btflbaldgrrl replied to btflbaldgrrl's discussion 'useful links for those new to an alopecia support group' in the group Vancouver Alopecia Support Group
btflbaldgrrl added 2 discussions to the group Vancouver Alopecia Support Group
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Thanks for the friend request. I'll look froward to getting to know you.
Rosy
Back to my wiggie permanently until I'm brave enough to bear all. Must say I'm grateful for it. Good luck.
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn