Alopecia World
www.alopeciaworld.com
-
Amber
- Female
- Sioux City, Iowa
- United States
- Blog Posts (5)
- Discussions (15)
- Events
- Groups (6)
- Photos (75)
- Photo Albums (2)
- Videos (1)
Amber's Groups
Gifts Received
Amber has not received any gifts yet
Bald headed girl trapped in a hair filled world
Amber's Photos
Profile Information
- Relationship Status:
- Married
- About Me:
- I am a Follower of Jesus who has had alopecia since i was 12. It started on the back of my neck and my hairline in the front receded. Then I noticed spots on my legs and arms. Within a year all my facial hair was gone starting with the right side of my face and then the left side. I was continually mocked at school and my hair loss was the object of everybody's fun growing up.
For 4 years i had medication shots injected into my face and scalp and i hated it. I was passed from one doctor to another and nobody knew what was causing my hair loss. When i was 16 I had enough of the injections and of doctors and decided that i didn't want to go anymore.
It took another five years for all of the rest of my hair to fall out. It rapidly fell out when i got to college. I went from having 60% head hair to 0% in a year. There was hair everywhere. I was shedding like a dog. I hid in a hat and beanies for the majority of my college life until it no longer hid the fact that i was loosing my hair. I would get in trouble at work for not wearing my hair up and in trouble in class for wearing a hat. Not knowing what else to do i finally broke down and bought a wig. It was so emotional for me. I hid away in my room for months only coming out for class. Three weeks after i bought my first wig the rest of my hair fell out. I felt very alone and like nobody understood what i was going through.
People would ask me all the time if I had cancer, I hated meeting new people because they would just stare at me and then the dreaded question "Can I ask you a question?" haha. i would tell them i had alopecia and then have to explain what it was. I was in nursing school and when we went over autoimmune disorders my teacher pulled me to the side and asked me if I would stand up and talk about my alopecia to the class. Um....no. I most definitely will not. I had never been more embarrassed in my life.
My boss once told me that the way i did my makeup made me look Egyptian. I thought that was hilarious since I'm as white as Casper. Having Alopecia has definitely not been easy. Its been harder since I have never had a support system and have always had to deal with my alopecia alone. I honestly thought i was the only one who had alopecia because i had never met another person with it or even knew what it was. I have come a long ways in the last 3 years. I can actually talk about it now. I am no where near the point of being seen without a wig on. I still have trouble looking at myself in mirror and seeing a bald woman looking back at me. For years i clung on to God and asked why he chose to make me this way and to take it from me. I have now accepted the fact that my hair will never grow back. My prayer now is that God will be glorified through it. I am much stronger now that I have ever been.
My first wig I wore until it literally was falling to pieces. It was a fitted wig that i had to use double sided tape and stick it to my head. It was the worst thing ever. I hated it. lol. I laugh about it now. What was i thinking?
I married Richard in October of 2010. I am now a bald-head, wig-wearing preacher's wife. I couldn't be happier. My biggest fear is having kids with alopecia. I can cope with it and it has made me stronger but i desperately pray for my kids to be spared.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://accrowson.blogspot.com
RSS
Loading feed
Amber's Discussions
Alopecia Community
Started this discussion. Last reply by Rose Marie' Oct 24, 2008. 4 Replies 0 Likes
Amber's Blog
Where can I get Blinkies
Posted on June 5, 2010 at 1:49am 0 Comments 0 Likes
i also need some advice for artificial eyebrows. anyone tried them. which are the best.
25 Truths About Me.
Posted on January 31, 2009 at 10:30am 1 Comment 0 Likes
1. I am the biggest crybaby. I cry over everything and about everything. A leaf falls and I cry.
2. I am a people pleaser and will run myself into the ground just to make somebody happy. I commit to things i cannot do and struggle with telling people the… Continue
The Memory Remains
Posted on December 5, 2008 at 1:34am 0 Comments 1 Like
Have I mentioned God convicting me of myself and transforming me into himself? Just in case I haven't here it goes.
Since this whole nightmare began. hhmm let's see how long has it been now? it will be 6 months tomorrow. I keep telling myself everything's gonna be ok. God is in control. for five of those months i had no job sending my credit and financial status down, down, down, to the center of the earth. where i am slowly starting to crawl towards the… Continue
need advice about an itchy scalp
Posted on October 26, 2008 at 11:50pm 2 Comments 0 Likes
i already have dry skin pretty bad so i'm not sure if thats just all it is or what the deal is. I absolutely hate washing my head because it itches so bad afterwards when i put my wig back on. My scalp cannot handle anything on it. lotion makes me itch like crazy, any type of hat or scarf. every wig i have ever tried has made me itch like mad. I wear three head caps under my wig just to protect my head… Continue
A new leaf
Posted on October 22, 2008 at 11:33pm 3 Comments 1 Like
© 2024 Created by Alopecia World.
Powered by
Comment Wall (24 comments)
You need to be a member of Alopecia World to add comments!
Join Alopecia World
Hello Amber! As you read, I've included. I saw the same thing alone ... And I have to put a wig. I have no choice ... I start work soon and I do not know about you .. but it bothers me to make me look .... I even I find it odd. How to deal with people ... I tjrs been proud of my hair before. And I do not hardly. I bit on the arms and legs very little. It makes me really Malagasy life .... Is this disease remain strong! :)
thx
Taylor
Sorry i'm so late on getting back to the comment you left me on the 25th, I've been so busy lately I haven't had time to get on. Thankyou though! That completely made my night, haha. I get my eyelashes at Walmart or any drugstore really, they sell them most places like that. Depending on how dark you do your makeup, you get different lengths and thinkness. I do mine really dark so I always get number 33's or 61's...i think, haha. But i've been doing them every single day since I was 12, so i've had a little practice :p
You're beautiful too, though! The color of your eyes is gorgeous, i'm stuck with crappy brown eyes, haha. But how was your Halloween, how are you?
View All Comments