Liz L
  • Female
  • Surrey
  • United Kingdom
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Liz L replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Hi Diana,I brought the 'Thyroid Healing' book by Anthony William on holiday with me.It's REALLY interesting. Most of the 'healing' protocol I'm already following, gluten free, dairy free, vegan diet.  So…"
1 hour ago
Minter liked Liz L's discussion Counselling?! We are our own!
Friday
diana replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"yes, i'm thinking of also getting the med medium book since he does refer back to it in the thyroid healing copy.  i have thyroid nodules also, not sure if i mentioned that, so i think the thyroid imbalance is also causing my hair loss.…"
Friday
Minter replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Interesting- I was/am very low on both vitamin D and iron also- my doctor has me taking supplements for both and I am back to normal with iron but the vitamin D is still on the low side & need to be checked again in 3 months-  "
Thursday
Liz L replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Hi Diana,Thanks for your reply. Super interesting on leaky gut, your food intolerances and deficiencies are SO similar to mine. I had NO vitamin C and REALLY low vitamin D. I'm allergic to most sun creams so the only way for Vat D to get into…"
Thursday
diana replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"hi liz...  i'm happy to see someone else talking about leaky gut.  i have scarring alopecia along with leaky gut, food intolerances, i was B12 deficient, low iron, magnesium deficient.  have been doing alot of bone broth which is…"
Thursday
diana liked Liz L's discussion Counselling?! We are our own!
Thursday
Liz L commented on Celia UK's group Frontal Fibrosing Alopecia
"Minter- Thank you for your thoughts on the lucinda ellery system, it does seem to be a great solution.For me, the hair loss is so advanced that I would also need the top mesh and a parting and side pieces so quite extensive.I would need a LOT of…"
Wednesday
Liz L commented on Celia UK's group Frontal Fibrosing Alopecia
"Reading a post from @Minter about the Lucinda Ellery system, curious about why you feel it didn't work for you? I met with them last week, it looked like an effective system although I don't think for me because of the relatively high…"
Jan 10
Liz L updated their profile
Jan 10
Liz L replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Thank you. This forum has been a real turning point for me, I always thought I should get counselling but I don’t know where to look, Bur after reading pretty much all of the discussions in this group I finally feel that they are people who…"
Jan 7
Halfbakedwho replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"this is an amazing, important thread. Thank you so much. I want to take the time to read everything here. I am a psychotherapist myself, but it doesn't take away from needing A LOT of support myself as I trudge through this. Again thank…"
Jan 7
Liz L replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"Hi Rachel,Me too, super sensitive skin and very prone to allergies, food intolerances. Since stopping eating dairy the eczema I had all my life has disappeared. I'm also gluten free now and feel much happier, less bloating, skin a lot calmer.Liz"
Jan 7
Liz L replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Further to my above post:I did have a consultation at Lucinda Ellery in London last week and while it looks like a very natural solution I don't think I will be taking that route as I feel it is high maintenance with 6 weekly visits to…"
Jan 7
Claire Julia liked Liz L's discussion Counselling?! We are our own!
Jan 4
Liz L replied to Christi Q.'s discussion MAKEUP WITHOUT SPF/SUNSCREEN? in the group Frontal Fibrosing Alopecia
Jan 3

Profile Information

Relationship Status:
Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Just diagnosed ( twice) with probable frontal fibrosing alopecia !

Only went to doc for skin check up! Mentioned recent hair loss as an after thought- WHAT a bombshell!

Waiting for biopsy to confirm for sure then will start looking at what can be done. 

Down in the dumps at the moment.

Liz

Comment Wall (2 comments)

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At 1:08pm on January 3, 2014, LeslieAnn Butler said…

Take care of yourself and if you have any questions, I am here.

At 1:03am on January 3, 2014, LeslieAnn Butler said…

Hello and welcome!

I'm sorry you're down in the dumps. You will get a lot of support here!

Leslie Ann

 
 
 

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