Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Latest Activity

Airam-FFA replied to LVL's discussion Has anyone had/tried cortisone shots to scalp? in the group Frontal Fibrosing Alopecia
"Hi LVL For the reasons that Beez gives, I decided not to accept any treatment that would disfigure my head further; damage my eyesight etc etc. I use a scalp shampoo and ointment a couple of times a week to help with the itching and hair loss - but…"
35 minutes ago
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Halfbakedwho I think that unless we are really fortunate, none of the treatments give very positive results :(.  I was diagnosed a year ago, although, I believe that I had had the hair loss for a few years before that, but my hair loss seems…"
yesterday
NA replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi all, just found and joined this group. I thought I was the only one having to put up with nhs. Had very similar experiences. When sent for 2nd opinion, waited 3 months and ended up with original dr. Then had to wait another 3 months to finally…"
Dec 2
Airam-FFA liked Donna's discussion Clobestatol
Dec 2
Airam-FFA replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi Katherine I too had Acupuncture and Chinese Herbs when I was first diagnosed. But I don’t go anymore as I can’t justify the cost at the moment. Dr David Fenton at Guy’s is the specialist who I found to be the most informative…"
Nov 27
Katherine replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi there Oh my goodness, this is indeed a nightmare! It's like being stuck in a surreal alternative dimension... I started to think that if I could go private I'd get better care. But in my case the specialist I want to see is only NHS,…"
Nov 27
Airam-FFA replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi Katherine I wish you every luck with getting to see a specialist dermatologist. I practically had to beg my GP to refer me. At first they actually asked me if I could afford to pay to see the specialist who I wanted to see in London; then they…"
Nov 25
Katherine replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"I share your pain! It seems to depend on postcode / local healthcare provider..your experience sounds really frustrating and probably only too common. For me, we have Community Dermatology in my area which is shambolic. Four cancelled appointments,…"
Nov 23
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi yummymummy I have also seen Dr Fenton and have a different treatment. I don’t live in London so only managed to get a referral to see David Fenton after several requests to my own GP and Dermatologist. My treatment now has to go via my own…"
Nov 21
Airam-FFA added a discussion to the group Frontal Fibrosing Alopecia
Thumbnail

Turn Over of Specialist Dermatologists!

Does anyone know why there is such a high turn-over of specialist Dermatologists in the UK NHS? (National Health Service)Since been diagnosed with this crappy condition, I have seen four different Drs each time I have an appointment! I did see the last lady twice, she seemed to know what she was talking about and I thought, that FINALLY, I was going to get some consistency, and someone with knowledge of the condition and MY History.BUT NO! My appointment this time was with another new Dr! He…See More
Nov 21
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi illustr8r Wouldn’t it be amazing if they could find a trigger to halt the FFA. Something is triggering it in the the first place so why not something to trigger burn-out. That is all I want. xOx"
Nov 5
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Jules Australia We understand your need to vent. It does get rid of some of the frustration that goes with this crappy condition, so don’t apologise for venting. I am eagerly awaiting the publication of the results of the research that…"
Nov 5
Airam-FFA replied to Minter's discussion Hormone Therapy/ Menopause in the group Frontal Fibrosing Alopecia
"Hi Minter I have just read this article about Maca - this might help ease your symptoms in place of HRT: https://www.chocandjuice.com/blogs/choc-juice/how-maca-can-help-balance-your-hormones xOx"
Oct 26
Airam-FFA replied to Marytee's discussion Results of Research at Guys Hospital for FFA, any results?? in the group Frontal Fibrosing Alopecia
"Hi Mary I understand that they are presently working to validate the results of the research. Like you I am very eager to learn of their findings. Hopefully, it will not be too much longer. xOx"
Oct 15
Airam-FFA replied to Halfbakedwho's discussion Update from me in the group Frontal Fibrosing Alopecia
"Hi Donna I have been using the Clobetasol shampoo and ointment for over a month. The hair thinning and loss continues but I will continue with this daily shampoo treatment until I see the Derm. again in Nov. I don't know if my hair would have…"
Oct 9
Airam-FFA replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
Oct 9

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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