Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Airam-FFA's Page

Latest Activity

Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy I replied yesterday but my post hasn't appeared. I took the meds for 8 weeks until the end of January. I didn't notice any easing of my symptoms. I have another prescription to continue the treatment but I am reluctant to do so…"
yesterday
Airam-FFA replied to Jess's discussion Help with finding a doctor-CARF referral list in the group Frontal Fibrosing Alopecia
"Hi Jess I had The biopsy before Christmas. The doctor was going to do it in the middle of my head on the edge of my hairline, but I asked for it to be more to the side do it would be less visible if I lost more hair. I must admit that I cried…"
Wednesday
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Carol J Thank you for this - very informative. I did buy a couple of AIP books and as it was just before Christmas, I didn't have time to take it all in as the diet is very drastic. The books are still beside me on my bedside table - your…"
Wednesday
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Carol J and Temmelou I would also be interested in hearing more about the diet and essential oils. Like you I am just using Clobetisol on my hairline when it itches. I have a prescription for Hydrocloroquine but am reluctant to use it due to…"
Tuesday
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy It is good to read that your symptoms are subsiding. Very positive. I have been reading up about Plaquenil - it looks like it is the same as the medication that I have been given in the UK - UK Hydroxychloroquine Sulfate 200mg tablets…"
Monday
Airam-FFA replied to Dragon&Fox's discussion Low Dose Naltrexone in the group Frontal Fibrosing Alopecia
"Let me know how you get on. Different things work for different people. xOx"
Apr 20
bibby replied to Airam-FFA's discussion i-grow laser treatment
"This is modern day technology snake oil."
Apr 19
Airam-FFA replied to Airam-FFA's discussion i-grow laser treatment
"I won't be getting it :)"
Apr 19
Airam-FFA replied to Airam-FFA's discussion i-grow laser treatment
"Many thanks. I won't be buying this even on 180 days try out. :) xOx"
Apr 19
Alo-mom replied to Airam-FFA's discussion i-grow laser treatment
"Please do not waste your money. "
Apr 19
Return_life replied to Airam-FFA's discussion i-grow laser treatment
"complete scam and btw it was even made for Alopecia aerata"
Apr 18
Airam-FFA replied to Dragon&Fox's discussion Low Dose Naltrexone in the group Frontal Fibrosing Alopecia
"I had never heard of it but have just looked it up - side effects rather worrying :/"
Apr 18
Airam-FFA posted a discussion
Apr 18
Airam-FFA replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"In the UK Lucinda Ellery have opened a couple more but agree, if they could work with beauticians and hairdressers it would make the system more available for many others. I guess eventually others will provide a similar interlace system so would…"
Apr 12
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"I was put on meds that can damage your eye sight but they didn't warn me about having an eye test first!!!!! Took the meds for 8 weeks. Have decided that risk is too high. It is one thing losing my hair but NO WAY is it worth risking my eye…"
Apr 4
Airam-FFA replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"Just seen this: https://www.facebook.com/bbcnews/videos/10154641177415787/ Henna Tattoos to cover hair loss. Would be a cover for partial hair loss too. When the wind blows my fringe, my hair loss would be not so noticeable. xOx"
Apr 3

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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