I had the scalp biopsy - the thought of it was worse that the actual procedure. Though I wonder if it was really necessary. I am not sure about the injections - I read on here that they were painful and not very effective. I told my…"
I had several courses with an acupuncturist just after I was diagnosed with FFA - Nov 2016. I have stopped them at the moment due to cost.
I am going to focus on the AIP Diet and develop my willpower to see it through. I will keep you…"
"Hi Sad in Chicago
You mustn't just shut up. We have an issue that is very real, and traumatic - and yes there is a very wide spectrum on the traumatic scale - nonetheless it is something that none of us thought we would have to deal with. I…"
What you say about the foods is of great interest to me. I bought a couple of AIP books at new year, but still haven't got round to putting the diet into action as it is very restrictive at first. However, my scalp has become much more…"
I have those nightmares. Just want the loss to stop. I am able to hide the loss for the time being but my hairline is NOT stopping receding. It won't be many months before my fringe won't cover the loss anymore. I saw a young…"
"Does anyone know of any research into FFA that suggests why the hair loss for FFA affects the front of the hairline? It seems strange that hairloss isn't all over the head.
I have wondered if my own FFA was triggered by stress and using the…"
I am constantly assessing other people's hairline to convince myself that my loss isn't 'too bad'; I try to also keep busy so as to not focus completely on my appearance, and I hang on to any positives that I can…"
I replied yesterday but my post hasn't appeared.
I took the meds for 8 weeks until the end of January. I didn't notice any easing of my symptoms. I have another prescription to continue the treatment but I am reluctant to do so…"
I had The biopsy before Christmas. The doctor was going to do it in the middle of my head on the edge of my hairline, but I asked for it to be more to the side do it would be less visible if I lost more hair. I must admit that I cried…"
"Hi Carol J
Thank you for this - very informative. I did buy a couple of AIP books and as it was just before Christmas, I didn't have time to take it all in as the diet is very drastic. The books are still beside me on my bedside table - your…"
"Hi Carol J and Temmelou
I would also be interested in hearing more about the diet and essential oils.
Like you I am just using Clobetisol on my hairline when it itches. I have a prescription for Hydrocloroquine but am reluctant to use it due to…"
It is good to read that your symptoms are subsiding. Very positive. I have been reading up about Plaquenil - it looks like it is the same as the medication that I have been given in the UK - UK Hydroxychloroquine Sulfate 200mg tablets…"
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