Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Friends

  • Terri

Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Latest Activity

Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Christi Q I will post after my visit. oXo"
Aug 12
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Not sure about this drug either - this also sounds like it has horrendous side effects: https://www.drugs.com/cdi/tacrolimus.html I have come to the conclusion that the loss of my hairline is the better scenario After nine months of asking, I have…"
Aug 11
Airam-FFA and Terri are now friends
Aug 3
Airam-FFA replied to Kat's discussion UK: GP letter as medical proof for passport photo & airport security with headband? in the group Frontal Fibrosing Alopecia
"That is just so awful to have to go through. It is so unnecessary to have to remove your hair band. Muslim ladies won't be asked to remove their head covering and their scarves cover up so much more. This is discrimination and should not be…"
Jul 21
Airam-FFA replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"Third time of trying to post this: I asked Dr Christos about any links he might have come across with SPF creams and FFA. He forwarded this link about research into this topic: https://www.ncbi.nlm.nih.gov/m/pubmed/27614082/ oXo"
Jul 19
Airam-FFA replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"I was in Holland and Barratt today - Health Food shop in the UK - they have quite a lot of different shampoos, beauty products etc. I didn't have time to investigate what the ingredients of the products were, but, I will look into it in the…"
Jul 19
Airam-FFA replied to smiletome's discussion FFA burns itself out - has anybody reached this stage? in the group Frontal Fibrosing Alopecia
"Hi Pauliegirl I think that the SPF together with an autoimmune condition could well be the trigger. I am going to stop using the face creams that contain SPF (I have been using Moisturisers with SPF for as long as I can remember - all year round).…"
Jul 19
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
":)"
Jul 14
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"Hi Linda Thank you for posting the link. They have a huge range of headgear plus also a UK website which saves on import duties. I like the idea of the headbands - I often work in a hot kitchen so wearing one of these would maybe stop my…"
Jul 13
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"What does a Buff Half Headband look like? xOx"
Jul 12
Airam-FFA replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"I wasn't aware that I had Vit D deficiency - on holiday in the Med I usually sunbathed for an hour or so before breakfast without any suntan lotion, so that I could absorb Vit D. Then after breakfast 9:30/10am I would put on the once per day…"
Jul 10
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"I know what you mean about the part/half stage. I sometimes think that it would be better if the FFA had reached its stopping point so that I would know what I eventually have to deal with. xOx"
Jul 5
Airam-FFA replied to Beez's discussion random thoughts in the group Frontal Fibrosing Alopecia
"I think it is probably a combination of factors which is probably different for different people - but all has the same end result - autoimmune issues that affect the hair follicules. It is a shitty condition whatever the cause. oXo"
Jul 2
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"I don't really know about 'burn-out'. I assume the hair loss will stop progressing at some point (hopefully before it ALL falls out!). I wonder if anyone on this site is able to let us know if they have reached…"
Jul 2
Airam-FFA replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"I agree with you about the medication and am trying to learn to live with my increasing loss along my hairline. I would love to know when burn out will occur. Best wishes oXO"
Jun 29
Airam-FFA replied to Beez's discussion random thoughts in the group Frontal Fibrosing Alopecia
"Hi Béez I have coloured my hair since a teenager. I am not sure if this has had any effect in FFA - as why would we just (initially)lose hair along the hair line and not all over our heads. I wonder if sun creams are a more likely cause, as…"
Jun 29

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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