For the reasons that Beez gives, I decided not to accept any treatment that would disfigure my head further; damage my eyesight etc etc. I use a scalp shampoo and ointment a couple of times a week to help with the itching and hair loss - but…"
I think that unless we are really fortunate, none of the treatments give very positive results :(. I was diagnosed a year ago, although, I believe that I had had the hair loss for a few years before that, but my hair loss seems…"
"Hi all, just found and joined this group. I thought I was the only one having to put up with nhs. Had very similar experiences. When sent for 2nd opinion, waited 3 months and ended up with original dr. Then had to wait another 3 months to finally…"
I too had Acupuncture and Chinese Herbs when I was first diagnosed. But I don’t go anymore as I can’t justify the cost at the moment.
Dr David Fenton at Guy’s is the specialist who I found to be the most informative…"
Oh my goodness, this is indeed a nightmare! It's like being stuck in a surreal alternative dimension... I started to think that if I could go private I'd get better care. But in my case the specialist I want to see is only NHS,…"
I wish you every luck with getting to see a specialist dermatologist. I practically had to beg my GP to refer me. At first they actually asked me if I could afford to pay to see the specialist who I wanted to see in London; then they…"
"I share your pain! It seems to depend on postcode / local healthcare provider..your experience sounds really frustrating and probably only too common.
For me, we have Community Dermatology in my area which is shambolic. Four cancelled appointments,…"
I have also seen Dr Fenton and have a different treatment. I don’t live in London so only managed to get a referral to see David Fenton after several requests to my own GP and Dermatologist. My treatment now has to go via my own…"
Does anyone know why there is such a high turn-over of specialist Dermatologists in the UK NHS? (National Health Service)Since been diagnosed with this crappy condition, I have seen four different Drs each time I have an appointment! I did see the last lady twice, she seemed to know what she was talking about and I thought, that FINALLY, I was going to get some consistency, and someone with knowledge of the condition and MY History.BUT NO! My appointment this time was with another new Dr! He…See More
"Hi Jules Australia
We understand your need to vent. It does get rid of some of the frustration that goes with this crappy condition, so don’t apologise for venting.
I am eagerly awaiting the publication of the results of the research that…"
I have been using the Clobetasol shampoo and ointment for over a month. The hair thinning and loss continues but I will continue with this daily shampoo treatment until I see the Derm. again in Nov. I don't know if my hair would have…"
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