Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Latest Activity

Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Jo I feel for you and know what you mean about the tears, the lows and also trying to find the positives and humour. Big hugs xOx"
Jun 2
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Leigh I try to find and hang on to any positives that I can find. Keeping busy and trying not to focus on my receding hairline. :) oXo"
May 17
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Leigh I had the scalp biopsy - the thought of it was worse that the actual procedure. Though I wonder if it was really necessary. I am not sure about the injections - I read on here that they were painful and not very effective. I told my…"
May 16
Airam-FFA replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Hi Leni, I had several courses with an acupuncturist just after I was diagnosed with FFA - Nov 2016. I have stopped them at the moment due to cost. I am going to focus on the AIP Diet and develop my willpower to see it through. I will keep you…"
May 15
Airam-FFA replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Hi Sad in Chicago You mustn't just shut up. We have an issue that is very real, and traumatic - and yes there is a very wide spectrum on the traumatic scale - nonetheless it is something that none of us thought we would have to deal with. I…"
May 10
Airam-FFA replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Hi Leni What you say about the foods is of great interest to me. I bought a couple of AIP books at new year, but still haven't got round to putting the diet into action as it is very restrictive at first. However, my scalp has become much more…"
May 10
Airam-FFA replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Hi Leni I have those nightmares. Just want the loss to stop. I am able to hide the loss for the time being but my hairline is NOT stopping receding. It won't be many months before my fringe won't cover the loss anymore. I saw a young…"
May 10
Airam-FFA replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Does anyone know of any research into FFA that suggests why the hair loss for FFA affects the front of the hairline? It seems strange that hairloss isn't all over the head. I have wondered if my own FFA was triggered by stress and using the…"
May 8
Airam-FFA replied to AnnieMay's discussion Still new to FFA. What are three positive things you do to help you look and feel better about YOU in the group Frontal Fibrosing Alopecia
"Hi Mel Your post is so positive. I wish you strength for all you are going through. Life is so tough at times. Thinking of you and wishing you well. xOx"
Apr 30
Airam-FFA replied to AnnieMay's discussion Still new to FFA. What are three positive things you do to help you look and feel better about YOU in the group Frontal Fibrosing Alopecia
"Hi AnnieMay I am constantly assessing other people's hairline to convince myself that my loss isn't 'too bad'; I try to also keep busy so as to not focus completely on my appearance, and I hang on to any positives that I can…"
Apr 30
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy I replied yesterday but my post hasn't appeared. I took the meds for 8 weeks until the end of January. I didn't notice any easing of my symptoms. I have another prescription to continue the treatment but I am reluctant to do so…"
Apr 28
Airam-FFA replied to Jess's discussion Help with finding a doctor-CARF referral list in the group Frontal Fibrosing Alopecia
"Hi Jess I had The biopsy before Christmas. The doctor was going to do it in the middle of my head on the edge of my hairline, but I asked for it to be more to the side do it would be less visible if I lost more hair. I must admit that I cried…"
Apr 26
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Carol J Thank you for this - very informative. I did buy a couple of AIP books and as it was just before Christmas, I didn't have time to take it all in as the diet is very drastic. The books are still beside me on my bedside table - your…"
Apr 26
Airam-FFA replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi Carol J and Temmelou I would also be interested in hearing more about the diet and essential oils. Like you I am just using Clobetisol on my hairline when it itches. I have a prescription for Hydrocloroquine but am reluctant to use it due to…"
Apr 25
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy It is good to read that your symptoms are subsiding. Very positive. I have been reading up about Plaquenil - it looks like it is the same as the medication that I have been given in the UK - UK Hydroxychloroquine Sulfate 200mg tablets…"
Apr 24
Airam-FFA replied to Dragon&Fox's discussion Low Dose Naltrexone in the group Frontal Fibrosing Alopecia
"Let me know how you get on. Different things work for different people. xOx"
Apr 20

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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