I am very interested to hear what kind of drugs that was used in your cocktail. How long did you take it before your FFA got stable.
I have been on Plaquenil and antibiotics for a year and Finasterid for 6 month, Still not any…"
Comments from me in Sweden.
Since August last year I am om Plaquenil, Finasteride, Antibiotics and Seratonin.
No sideeffects at all and no weight gain but still very red on the scalp and progression very slow.
Thank you for posting the link. They have a huge range of headgear plus also a UK website which saves on import duties.
I like the idea of the headbands - I often work in a hot kitchen so wearing one of these would maybe stop my…"
"Hi, I saw my derm 2 weeks ago and I asked this question he said in some cases about 3 yrs but of course everyone is different, I'm currently taking Hydroxychloroquine 2 x daily and my derm said that this appears to have slowed the progression…"
"I have been on Humira since December 1, 2016, self-injections every other week after taking Plaquinal over four years. I continue to have lab work done on a regular basis, every three months. I can't see any improvement but…"
I was recently diagnosed with FFA. My dermatologist has been giving me steroid shots and topical liquid for several months but only recently did a biopsy which diagnosed me with FFA. At that time I changed dermatologists…"
"i don't think it is that rare as my hairdresser/wig specialist has a booming clientele. She deals with FFA, all Alopecia's and chemo hair issues. She has several FFA clients. Glad the haircuts are good. Hang in there."
"Yay!!!! I am so happy for you! It is amazing how a great haircut can make all the difference in the way you feel- I also went 2-3 inches shorter a couple of weeks ago, it is still a bob and I have to pin it over my ears when I "go out in the…"
Haircut was a success! I'm very happy! My dear stylist is on this rollercoaster with me bless her heart. I told her I didn't want to see or feel my hair. When the wind blows I want to be able to shake my head and have the hair…"
My name is Agneta Ryden and I live in Sweden. born 1947. Nine month ago I was diagnosed with Frontal Fibrosing Alopecia (a variant of Scarring Alopecia).I was devastated and got deeply depressed. However, as the progression is very slow I gradually felt calmer. I´m on medication for a long period (tetracyclin and Plaquenil). The medicaation will not cure the desease but hopefully halt the progression.
I would like to come in contact with other members who are suffering from FFA.
As FFA is very rare, it is difficult to find people who suffer from this disease in Sweden, as population is to small.
Do you have alopecia?
Are you age 18 or older?
Yes - I am 18 or older
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