Thank you for posting the link. They have a huge range of headgear plus also a UK website which saves on import duties.
I like the idea of the headbands - I often work in a hot kitchen so wearing one of these would maybe stop my…"
"Hi, I saw my derm 2 weeks ago and I asked this question he said in some cases about 3 yrs but of course everyone is different, I'm currently taking Hydroxychloroquine 2 x daily and my derm said that this appears to have slowed the progression…"
"I have been on Humira since December 1, 2016, self-injections every other week after taking Plaquinal over four years. I continue to have lab work done on a regular basis, every three months. I can't see any improvement but…"
I was recently diagnosed with FFA. My dermatologist has been giving me steroid shots and topical liquid for several months but only recently did a biopsy which diagnosed me with FFA. At that time I changed dermatologists…"
"i don't think it is that rare as my hairdresser/wig specialist has a booming clientele. She deals with FFA, all Alopecia's and chemo hair issues. She has several FFA clients. Glad the haircuts are good. Hang in there."
"Yay!!!! I am so happy for you! It is amazing how a great haircut can make all the difference in the way you feel- I also went 2-3 inches shorter a couple of weeks ago, it is still a bob and I have to pin it over my ears when I "go out in the…"
Haircut was a success! I'm very happy! My dear stylist is on this rollercoaster with me bless her heart. I told her I didn't want to see or feel my hair. When the wind blows I want to be able to shake my head and have the hair…"
"illustr8r, good luck with your haircut today, I am sure it will come out wonderful!
Sad in Chicago, I feel so bad that you have to deal with all these clips and tapes, it sounds like a nightmare :-( this disease is so unfair. I am…"
"I have found that cutting it pretty short and having pieces that blend in and cover the front and sides of your head are best. If it gets too long the stuff sticking out is unruly and doesn't blend so well -- at least for me. I have…"
My name is Agneta Ryden and I live in Sweden. born 1947. Nine month ago I was diagnosed with Frontal Fibrosing Alopecia (a variant of Scarring Alopecia).I was devastated and got deeply depressed. However, as the progression is very slow I gradually felt calmer. I´m on medication for a long period (tetracyclin and Plaquenil). The medicaation will not cure the desease but hopefully halt the progression.
I would like to come in contact with other members who are suffering from FFA.
As FFA is very rare, it is difficult to find people who suffer from this disease in Sweden, as population is to small.
Do you have alopecia?
Are you age 18 or older?
Yes - I am 18 or older
Comment Wall (1 comment)
You need to be a member of Alopecia World to add comments!
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
AlopeciaWorld.com: It's hair loss support at its best!