Agneta
  • Female
  • Sollentuna
  • Sweden
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Latest Activity

Agneta replied to illustr8r's discussion Have you heard of Platelet-rich plasma (PRP) therapy? in the group Frontal Fibrosing Alopecia
"Hi illustr8r  I started with PRP injections 18 months ago because I was so extremely desparate. It is extremely costly to do this and IT DID NOT HELP ME AT ALL so it was really a waste of money. Good Luck! Agneta"
Nov 3
Agneta commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Jules, Thanks for your long and very personal answer. I do admire your for your brave decision not to use any medication. When I was diagnosed I googled on this condition and saw so many women with practial no hair at all on the front, just some…"
Nov 3
TMB left a comment for Agneta
"Agneta...you are in the right place here in AW. I am recently new to the website but have found much comfort in reading the trials and tribulations of other who suffer with various forms of Alopecia. I have AA and have had it for years. Am dealing…"
Oct 7

Profile Information

Relationship Status:
Married
About Me:
Hi
My name is Agneta Ryden and I live in Sweden. born 1947. Nine month ago I was diagnosed with Frontal Fibrosing Alopecia (a variant of Scarring Alopecia).I was devastated and got deeply depressed. However, as the progression is very slow I gradually felt calmer. I´m on medication for a long period (tetracyclin and Plaquenil). The medicaation will not cure the desease but hopefully halt the progression.

I would like to come in contact with other members who are suffering from FFA.

As FFA is very rare, it is difficult to find people who suffer from this disease in Sweden, as population is to small.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 1:39pm on October 7, 2017, TMB said…
Agneta...you are in the right place here in AW. I am recently new to the website but have found much comfort in reading the trials and tribulations of other who suffer with various forms of Alopecia. I have AA and have had it for years. Am dealing with it and still searching for the cure. There is lots of ind
Information on AW about FFA. You just need to search frontal fibrosing alopecia. You will find many others who suffer with this condition. All the best to you :)
At 7:22pm on December 30, 2016, Larry Barbee said…

Welcome to the group, Agneta. I hope you'll find some people with FFA, and anything else you may need.

God bless,

Larry

 
 
 

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