Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Chrisy, MA USA on August 14, 2013 at 2:55pm
Thank you Deb! Is clobetasol and dermovate the same thing??
Sorry I have so many questions....
Comment by Annie on August 14, 2013 at 2:20pm

Linda, the foam version of Rogaine won't drip when you apply it. It also has less alcohol, which makes it less irritating.

Comment by sammi on August 14, 2013 at 1:54pm

Pam regaine (uk) has really helped the fullness of my hair and I can't praise it enough! Dr Harries, my derm asked me to try it and my fringe area has thickened especially when I compare photographs of course it hasnt help the bald areas but I intend to contine using once daily, hope this helps Sammix

Comment by christiekd on August 14, 2013 at 12:48pm

Linda, if you want to try it on your eyebrows, just use a q-tip to apply the Rogaine. It doesn't drip at all because the cotton on the q-tip absorbs some of the solution. I find Rogaine has helped my eyebrows the most.

Comment by Pam on August 14, 2013 at 11:37am

Thank you Annie for your comments on using Rogaine. Also thank you to everyone else for such helpful advice. I am going to Trendco in London tomorrow to have a consultation (thanks again to all your advice and lovely pics of the new wig!) - it has taken me a lot of courage to get to this stage, and all your support has helped tremendously.

Comment by Annie on August 14, 2013 at 11:26am

Alice, the Rogaine has regrown most of the wispy hairs around the sides of my face that I thought the FFA had taken as well as thickening up areas around the bare spots. I've had the best results on the right side of my face where the FFA hasn't been quite as aggressive. It's true that you can't regrow hair in the scarred areas, but, for whatever reason, the hair follicles next to the sides of my face haven't scarred over. I decided to try Rogaine because of all the postings I've read about, the ones using it have had the best results of slowing down the progression of FFA. The derm that diagnosed me said Rogaine wouldn't help, but the one I went to for a 2nd opinion said I should try it. He suggested the 5% solution generic version. I get the foam version at Sam's in the US for about $34 for a 4-month supply.
Also, the new hairs that are coming in are the same color as the surrounding hairs and a little finer in texture.

Comment by Debs on August 14, 2013 at 9:44am

Chrisy, I don't get any itching either but my derm has asked me to use it, it is another way of trying to get the inflammation under control. I use disposable plastic gloves when handling Dermovate because it is very powerful and I don't want to get it on any other part of me, or indeed anybody else or my pets. xxx

Comment by Chrisy, MA USA on August 14, 2013 at 9:19am
May I ask what is the purpose of clobetesol? My derm prescribed clobetesol shampoo for the itching part but I only used it once bc I don't really have any itching. Does it help to calm down the inflammation as well??
Comment by christiekd on August 14, 2013 at 7:35am

About Benadryl - I sometimes have trouble sleeping as well, so I will break a pink benadryl pill in half and take a half a dose. This is enough to get me through. I also don't feel so bad taking a sleep aid.

For Rogaine - I think that in combination with our other meds, it is beneficial to use rogaine. When you can calm the inflammation with clobetesol, there are hair follicles that haven't burned out yet and scarred over, and the rogaine helps those hairs to grow back.

Comment by Pam on August 14, 2013 at 3:15am

Regarding Rogaine - I have been told that it is not really effective for alopecia? If it was, surely everyone would be using it? I bought some in desperation, but haven`t used it, as my dermotologist said it was unlikely to be of any use. Any feedback on this?

 

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