Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Debs on September 23, 2013 at 10:09am

Hi Terry, thank you very much for your info. I have never had much hair on my arms of legs, I have never needed to get my legs waxed for instance and use to just shave them once a week to keep them completely smooth. My eyebrows just fell out about 3 years ago - that said, I do have some eyebrow hair just not enough to look groomed.

At my age, 50 years, I have found that in the past 2 years I have only been menstruating about once every 6 months. However since July I have found I am back to menstruating once a month!!! There are 2 possible causes; I started juicing back in July and using Dr Weil's anti-inflammatory diet, I started plaquenil in March. I have also found that the skin on my body (arms/legs) is not dry any more and my hands look 'younger'. I think my improved diet is most likely the reason but maybe some other ladies have these symptoms that are using plaquenil.... whatever the cause I am quite happy with it. XXXX

Comment by Celia on September 23, 2013 at 3:42am

I have had an e mail from mobrsb - I haven't opened it - was not sure if it is from one of you or a spoof....if anyone emails me please refer to the get together in the title then I will know it is safe to open it - thanks !

Comment by Celia on September 22, 2013 at 8:25am

Thank you for messages re our get together. My e mail address is celiareeve@hotsmail.com for those of you needing directions. If you e mail me then I will send info, rather than here. Hope that's OK. So - the 9th October is the date and I hope that Paula can make that one ! So we are Julie, Sammi, Paula, Polly, Caroline, Pam, Debs and hopefully Heidi if she gets a message. Have a good rest of the weekend ! x

Comment by Caro UK on September 21, 2013 at 9:16am

Hello Celia. Thanks so much for the invitiation. Yes the 9th October is good for me as well. In fact it's perfect as I am not working that week! Really looking forward to seeing everyone again.

Comment by Pam on September 21, 2013 at 5:10am

I could do Oct 2nd, 3rd, and possibly the following week too, but will let you decide a date and then see if I can make arrangements to join you.

Comment by Debs on September 21, 2013 at 4:58am

Hello Celia, thanks very much for organising us UK ladies again. I can do the 9th Oct the other dates are OK for me too.

Comment by Celia on September 19, 2013 at 5:47pm

Hope also to hear from Caro ! Trying not to get in a muddle with this ! x

Comment by Celia on September 19, 2013 at 5:42pm

Hello - regarding our get together....my suggested dates were - 2,3,4,9,10,11th October - so far :-

Julie 3,9,10
Sammi 3,4,9,10
Paula 9, but best for her are Fridays - ie 4,11th
Polly 2,4,9
So at the moment the best date looks to be the 9th unless anyone has a better idea ? I hope that we can make this work. I don't know how to contact Heidi as she doesn't log on very often but hope to hear from Liz and Debs.
Best wishes !

Comment by Pam on September 19, 2013 at 3:41pm

Thank you Kath for passing on information about your hairpiece - I am very grateful.

Comment by Celia on September 19, 2013 at 11:40am

Thank you Sammi for your response. Will keep posting as I get replies then I will post my e mail here so you can contact me to give directions - don't want to post directions on the forum ! x

 

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