Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Annie on October 22, 2013 at 11:35am

PJ, I'm so excited for you!  It's just the kind of good news we all need to hear.

Did anyone else see the Today Show this morning regarding research in cloning hair follicles?  It's in the experimental stage (with rodents), but it sounds hopeful.  Transplanted cells clump together & cause the skin to grow new hair follicles.  I'm wondering if this might be an option when the ffa is no longer active.   

 

Comment by ElleMN, USA on October 22, 2013 at 10:28am

Congrats PJ! That is great news!

Comment by Celia on October 22, 2013 at 9:17am

Great news PJ !  XX

Comment by Pam on October 22, 2013 at 3:15am

Great news for PJ that her FFA has stopped! Lucky you, I am so pleased for you. It`s what all of us would like to hear, so it gives us hope.

Comment by Debs on October 22, 2013 at 2:50am

Congratultions PJ. I am delighted for you.

Can you confirm what you did? Was it just steriod injections? Did you use any supplements eg turmeric etc..

Comment by PJ - MN, USA on October 21, 2013 at 10:22pm

I saw my Derm Dr today. She had some unbelievable news for me. She said my FFA has stopped!!. Hard to believe when you feel like your hair is thinner and your scalp still itches. She said that is because regrowth will take some time and my scalp is going back to "normal". I guess she based this on no inflammation or redness, something with the hair follicles and the hair regrowth. I requested copies of my medical records to make sure I understood correctly everything she was saying and to see again that she really said that. She was running late on apts and in a hurry, so didn't get to talk to her long. I do think I got treatment early which must have helped. I did not take a lot of meds that a lot of you on this website are using. I do think the steroid injections were a big help. I didn't get to ask if FFA can return, does anyone here know?  Hopefully she is right and I'm done with this!  So don't give up everyone - there is hope. I'll keep you posted if something changes.

Comment by Celia on October 20, 2013 at 5:12pm

Maddy - at the top of the page on the right hand side you will see your name  - beneath that - click onto settings and upload a photo that you will have stored on your computer.  This will appear when you write a post instead of the blue/blank sihouette you have there now - hope this helps.

Comment by Maddy, California, U.S. on October 20, 2013 at 1:46pm

Hi Jen,

No, not too much to ask at all :). She just opened a new studio called "Wig and Hair Therapy Studio in Newport Beach, CA. She worked for many years at "Wiggin Out" salon, also in NB. She was the main person that did the wigs and hairpieces there, but it was not her own salon. Anyway, now she has her own. You can look at the Wiggin Out Hairpiece videos on that site...that is her in the videos. Anyway, you can see some of the hair pieces here:http://www.wiggin-out-salon.com/Hairpieces---Hair-Pieces.html

I bought two hair pieces from her and they are beautiful, but I haven't done much with them yet. It takes time in the beginning to get used to putting them on and styling them and all that. I haven't taken the time to do it yet. I think I will give her a call and set up a consultation (which comes free with a hairpiece/wig purchase). If I knew how to post a picture on this site, I'd take photos of mine and put them up. I will try to figure that out.

Comment by Jen on October 19, 2013 at 5:04pm

Hi Maddy,

This may be too much to ask but does the ex-wig maker have a site with pictures of her work?  I am interested in seeing her partial pieces.

Regards,

Jen.

Comment by Celia on October 19, 2013 at 3:38am

There is a comment from T on the top of this page on the discussion initiated by Katy M about Some questions from another newcomer......... hope this helps.

 

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