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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi. Tomorrow I have an appointment with Dr T at Guys hospital. He has asked to see me, my mum (who also has FFA) and my son. I'll let you all know how we get on.
Jess I took the oral steroid prednisolone. It's difficult to say if it made any difference because there is no particular pattern to this condition but it did make my skin lovely which led me to believe that it probably minimizes any inflammation in/on the body.
xx
I'm not sure how to reply to Deb directly about the FFA fact sheet you have developed but I would appreciate a copy. Thanks very much for putting it together, Brooke (brooke@peak.org)
has anyone that tried the oral steroid prednisolone felt that it made a difference?
Hey All, I'm wondering if anyone knows of a doctor in the Denver area that specializes in FFA. My sister who lives in Portland was diagnosed 2 years ago. I think I have FFA as well as my hair is receding.
Debs, I would also love to see your fact sheet! I think I sent you a friend request...or at least I tried :). I have a call set up with Dr. T on Thursday...so hopefully can be part of the research! Thank you!
Hi Rita, Of course, I will be most happy to. I really have tried so many different options and seen numerous doctors, some of which have published a lot on LPP (I have two forms of LPP: FFA as well as the 'classic' LPP elsewhere on my head; my FFA is most obvious and active). It has been such a journey. I am travelling at the moment but will write a detailed account of all the treatments I have tried, length of treatment etc., as soon as I am back home in London in a few weeks. It is not a happy ending unfortunately as nothing so far has seemed to work...
Catherine, I for one, would be very interested in the treatments you've tried and length of time you tried each as well as the country you received the prescription from. I am sure we would all very much appreciate this information, please and thanks.
Debs, I would love your fact sheet too (have sent you a friend request). Thank you so much! I have tried so many different treatments over the last year, and seen many doctors in the States, the UK and France. If useful for you all, I will happily summarize everything I have tried...
Debs - great idea about the fact sheet. I'd very much like one, please. Have sent you a friend request.
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