Comment

Comment by ElleMN, USA on December 27, 2013 at 5:09pm

Thanks Debs!

Comment by Annie on December 27, 2013 at 2:40pm

I was just looking at how many have signed up on this website.  It's now at 117.  I was the 50th member to sign up in late March, 2013.  I don't believe this disease is nearly as rare as doctors think.  I think there are a lot of women who don't have any physical pain, and just accept the hairline recession as part of the aging process. 

Comment by Debs on December 27, 2013 at 12:30pm

Ellen I bought mine for just £24, i use it on my face too as an anti ageing treatment, you can use it any where on your body. The 0.5mm needle is suitable for our faces/scalp, you only use it 2/3 times a week, I run mine over my face, the skin where I have lost hair and into my hairline for about 3cm. I think it is worth trying as a non drug option. It compliments any of our drug options. It will encourage collagen production and does stimulate a healing response of course as with other options it will work for some people and not others I know my hair loss stopped in my brows and eyelashes after they were tattooed because of this effect.

Comment by ElleMN, USA on December 27, 2013 at 12:12pm

To Debs and anyone else using a dermaroller; just wondering how it's going? I'm checking them out on Amazon and wondering if it's worth the money. What I'm most interested in is improving the texture of the skin on my forehead where the hair has fallen out. Any comments would be helpful.

Comment by Debs on December 26, 2013 at 8:51am

Deleted emails by mistake.... Apologies to several ladies I just accidentally deleted some of your emails in my private email address.

Can u please resend if you have emailed in the last 24 hours

Comment by Celia on December 25, 2013 at 4:10pm

I wonder if Dr Harries' previous questionnaire results might become part of the research being spearheaded by Dr T ? I think Dr H's research may have had insufficient funding.  I have asked him for updates on my last 2 visits but no conclusive thoughts.

Kath - I am so sorry that your derm stopped seeing you after she thought the hydroxy wasn't working. The hydroxychloroquine does not work for me in that I still lose hair, still red etc.  I don't understand how you can be written off.

I am taking antibiotics. No effect. I know that one of our group recently posted that she was considered to be now free of FFA - I have not heard of this happening before - I hope that is still going strong.  Hope for some good news in 2014 !

Comment by Jodie UK on December 25, 2013 at 6:10am

Merry Christmas to all xxx

Comment by Kath UK on December 24, 2013 at 5:08pm

Merry Christmas to everyone. xx

Comment by Celia on December 23, 2013 at 5:22pm

Happy Christmas everyone ! XX

Comment by Kath UK on December 20, 2013 at 6:05pm

Celia - I guess I'm just getting on with my life!!  I haven't had a derm since September when she told me that the hydroxychloroquine hadn't worked for me and I might as well stop taking it.  She said that any other medication she had to offer would come with risks of side effects and weren't guaranteed to stop the FFA.. I told her I didn't want to risk drugs that could cause side effects. and she said that in that case she didn't need to see me again.

I guess I've just had to accept that for me the FFA will have to run its course.  It's bound to burn out some time!!

I use dermovate if my scalp gets irritated and I'm trying to be as fit and healthy as I can and get on with doing the things I enjoy.  The hairpieces are a great help in looking as good as I can.

How are things going for you with Dr Harries?  Are you OK with the hydroxy?  I think I rremember you saying you were considering taking an antibiotic and possibly an anti histamine too.  How's that going?

xxx.  

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