Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Pam on March 12, 2014 at 3:03am

I had my eyebrows tattoed in December just before Christmas, and they are a bit too severe, rather too hard, dark, arched and straight and angled, and I think it makes me look a bit like a Angry Bird!! I now spend my time being far more aware of various different eyebrow shapes than before I had them done, but its too late!

I wish that I had been to someone like Caro, who had spent more time showing me different eyebrow shapes beforehand. Now that I have had them done I am stuck with them - at least until they fade.

However, on the positive side, it is great to have eyebrows that just stay there, and don`t wash off, and they probably look better than my own attempts at pencilling them in.

Also, I have just come back from a cycling holiday in Vietnam where it was very hot and sticky, and it was great to be able to wear a cycling helmet in those conditions, and swim, and not worry about my eyebrows disappearing! (Very pleased to say that my new hairpiece survived well too!! It was quite a test!).

Comment by Caro UK on March 11, 2014 at 7:06pm

Anne, I've lost most of my eyebrow hair and had my eyebrows tattooed last year by a cosmetic/medical tattoo artist. I had a consultation beforehand where the proceedure was explained to me, I was able to see photographs of different eyebrow shapes and we discussed what "look" I wanted to achieve. I'm thrilled with the results! Yes, it was expensive but definitely worth it. My new brows look really natural and it's great to be able to get up in the morning without having to mess about pencilling them in. I've had my brows "topped up" once since I originally had them done. Local anaesthetic cream was applied before the proceedure and I hardly felt a thing. It's important to keep the treated area clean and dry for a few days afterwards and I was given ointment to apply to reduce any inflammation but I had no problems at all. As C says, you need to use sunscreen on them and they gradually fade over time but then you just go to get a "top up".

Comment by Jules UK on March 10, 2014 at 3:48pm
I will be participating in a telephone conference on Wed evening for the Hairloss PSP (Priority Setting Partnership). The first meeting will be on May 1st. There's more info on the Alopecia UK website under Getting Involved. There will be a survey for anyone interested (ie. all of us!) to complete, in due course. Will keep you posted. X
Comment by Pauline on March 10, 2014 at 12:55pm

Anne, I had my brows tattooed back in December and felt so good about it that I have been back to have permanent eyeliner done too!  I had this done at a salon local to me http://www.hdbeauty.co.uk/ and cannot praise Rachel high enough - although might not be convenient for you ladies living in the south of England!  However, the whole experience has definitely restored a bit of confidence in me as far as my looks go and I do not seem to dwell so much on the hair loss!  The eye liner was a little bit more uncomfortable than the eyebrows (which I hardly felt at all!).  I went for the natrual brush strokes on my brows and a slightly smokey effect for the eyeliner which is yet to heal but I am pleased with already!  P :-)

Comment by Celia on March 10, 2014 at 11:57am

Go for it Anne ! I was recommended the person who did mine by Debs - it was about 15 months ago now so maybe due a little top up soon.  I had to use Vaseline on them for a week or so and not get them wet for a week if I remember correctly.  I use sunscreen on them as they do fade eventually.   They were quite dark to begin with but once they are healed that soon softens in colour.  I found the process not painful but I was aware even with the anaesthetic, of a kind of being scratched, but ALL WORTH IT !  I hope you get on OK. 

Comment by Anne Louise on March 10, 2014 at 11:17am
I have a consult for this Thursday to look into getting my eyebrows tattooed. I am wondering what questions/concerns to bring up. I have plenty of my own but thought I would ask the wonderful ladies on this forum.
Comment by christiekd on March 6, 2014 at 4:35pm

I meant "eyebrows" in my last post.  Sorry!  :-\

Comment by Rita - Canada on March 6, 2014 at 4:35pm
Thanks Annie & Christie, will purchase, believe only available online.
Comment by Annie on March 6, 2014 at 4:28pm

It does take a few tries to get the hang of applying SmartBrow.  You want to make sure you get it right while it's still wet because it won't blend after it dries.    You can go online to see a demonstration on how to apply it.

Comment by christiekd on March 6, 2014 at 4:19pm

I use SmartBrow as well.  I think it is the best product for eyelashes.  I have one eyebrow that is more thinned than the other one.  So, I just use the SmartBrow and then add a little powder to the thinner eyebrow.  This works great because the gel is still a little wet and it sticks very well and stays in place (I work out a lot and can even wipe the sweat and it stays on).  I use a very thin brush for the powder so it looks very natural. 

 

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