Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Celia on March 20, 2014 at 11:22am

Anne - go to the option that says My Page.  Take it from there.

Comment by Celia on March 20, 2014 at 11:20am

Oh dear !  Not had that prob before. Unsure why you can't delete it ! Try again - go through all the options - got to be possible.

Comment by Anne Louise on March 20, 2014 at 11:11am
C I have tried editing the photo. On the edit part the pic is right side up, there are no options to turn it around. I can't even delete it. I tried uploading different pic but it won't allow it. Looks like I'll be the yoga gal of our group!
Comment by Celia on March 20, 2014 at 9:49am

Looking forward to seeing you again, Polly.  I am sorry not to collect you from the station but my knight is on a Crusade right now or he would have picked you up as last time.  Safe journey, thanks for making the trip.  It's easy for me - just sit here and wait for you lovely ladies to arrive ! x

Comment by Polly UK on March 20, 2014 at 7:55am
Ha ha, my knight is escorting me to Paddington station (I'm not very confident getting across London) and will spend the day in London. Look forward to seeing everyone and thank you Celia for the invite and kind hospitality xx
Comment by Celia on March 20, 2014 at 7:04am

Knights are good aren't they - another knight is delivering his damsel here then off to the local hostelry.  See you on Sat - I have sent you an e mail on this site.

Comment by Valerie on March 20, 2014 at 6:56am

My knight in shining armour (husband) has said he would drive me down and visit the golf course! So look forward to meeting you all. Thank you for the invite and support shown so far. See you Saturday. 

Comment by Celia on March 20, 2014 at 6:45am

Anne - go into your settings and edit your photo.  Sorry you ended up in a Yoga position - a rush of blood to the head can be good for you..............

Sorry you can't make it, Valerie, but stay in touch.

Comment by Valerie on March 20, 2014 at 5:00am

Really appreciate the invite to lunch/meet up but sadly hadnt realised how far down the M40 you were. Very interested in support group meetings so please keep me informed. 

Comment by Anne Louise on March 19, 2014 at 10:25pm

I'm very annoyed with this site!  I tried posting a new discussion and after writing a ton I clicked "add" and it disappeared.  Then I decided to add a picture to my profile, and as you can see it's upside down.  I can't replace it or turn it around.  I think it's time to call it a night.

 

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