Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by claire on March 22, 2014 at 1:13pm

Thank you Celia for your wonderful hospitality, greatly appreciated. It was also good to meet everyone and to share our experiences. All the best to everyone. Claire.

Comment by Celia on March 22, 2014 at 12:47pm

Ladies - thank you very much for making the journey today and for your great company.  I think we all gained from meeting up again and it was lovely to meet the 'newbies' ! Seriously I do value your friendship and the info and inspiration you bring to our albeit short get togethers.  Thanks to the knights in shining armour who delivered a couple of you to the door and also to the knight who waited at Paddington.  Hope you all got back safe and sound.  Stay in touch !

Comment by claire on March 21, 2014 at 1:34pm

Celia, forget the last request just checked on your area and see you have already given it to one of the other members-so I have all I need for tomorrow. Thanks.

Comment by claire on March 21, 2014 at 1:23pm

Hi Celia,

Just wondered if it might be a good idea if you gave me a telephone number just in case my sat nav fails me. Looking forward to seeing you all tomorrow. Claire.

Comment by Celia on March 21, 2014 at 8:23am

We'll make a summer plan, Pauline, for another get together.  And hopefully Cathy too. X

Comment by Pauline on March 21, 2014 at 7:43am

Wish I could join you also - hopefully next time - P x

Comment by Sam on March 21, 2014 at 1:12am
Haha, if only an upside picture were our only problem... Jealous of you ladies meeting in the Uk... Next time I get back to England, I will definitely try to round up another gathering :)
Comment by Anne Louise on March 20, 2014 at 10:00pm
Meme I'm glad I could provide a giggle! Looks like I will provide plenty more laughs, which I know I sure could use more of, because this picture is here to stay. I have it right side up in my photo section but there is nothing I can do about the profile pic. Can't delete the darn thing or even replace it. Tried on both my tablet and computer with no success. I give up.
Comment by Meme on March 20, 2014 at 1:22pm

I liked the photo Anne, it made me giggle.

 

Comment by Celia on March 20, 2014 at 11:24am

Anne - go to settings then my page.  Let us see you the right way up !

 

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