Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Jen on April 22, 2014 at 6:08pm

Hi Everyone,

I was looking on line at the lace hairpieces for sideburns and wondered if this (cut to fit)  would be a solution for areas around the face where the hairline has receded. I am also wondering if anyone has tried any small hairpiece attachment and was satisfied. 

Warm regards,

Jen.

  

Comment by Kath UK on April 22, 2014 at 5:25pm

Debs - I've been following your eyebrow tattoos information with interest as I'm now thinking of having it done. (I find that penciling in my eyebrows every day and checking all the time to make sure they are OK is a real bore).  You seem to have had a great success with your tattoos but there's no way I can get to your lady in Chertsey so I guess I will have to look around Edinburgh and see if I can find somebody good up here.  How long did your tattoos last?  Did it hurt and do you know if there is any qualifications that I should look for in a semi-permanent cosmetic tattooist?   I'd be really grateful for any info.

Comment by Debs on April 22, 2014 at 3:43pm
Very happy, had my eyebrows topped up this morning, had semi permanent makeup last January, still looked nice but the tattoo fades a little and you do need to get them topped up. I want back to the fantastic Belinda Hayle in Chertsey, Surrey. She has worked wonders again. Thoroughly recommend Belinda to any ladies that want to stabalise the appearance of eyebrows/eyelashes. It's a huge confidence boost.
Comment by Brenda, IL US on April 22, 2014 at 9:21am

Hi Jess.  My derm said the follicles were inflamed almost to the crown.  That was very hard to hear.  The itching has started on the top of my head too.  Alice i havent grown any hair on the sides.  I have some new growth on top but not where its scarred.  Its strange that i never had any inflammation on the sides or itching but the hair started falling out there first.  Has anyone ordered a wig or head cover from tlc?  

Comment by Alice on April 22, 2014 at 8:20am

Rogaine users - did you get any new growth on the sides, where the hair is very thin but the scalp does not look inflamed? I'm finally seeing new growth but it's all on top. Naturally, I'll take what I can get but was hoping to see some new hair on the sides. 

Comment by Debs on April 22, 2014 at 2:02am
Mandy, hair transplants will reactivate FFA, regardless of whether our FFA is active or not this is not an option unfortunately. The 3 derms that attended the CARF conference in London November 2013 we quite clear on this.
Comment by Liz on April 21, 2014 at 4:50pm

Hi Jess. I can tell if mine is still active by doing a gentle hair pull. The hair will come out in the active area with no difficulty or pain. 

x

Comment by Mandy on April 21, 2014 at 4:14pm
Hi Jess, my Derm looks a my scalp at every appointment under a small hand held micro scope... He explained that my FFA was active and that he could tell this because my scalp was pink and some of the hair follicles were enflamed... My FFA goes back about 2 inches and is in a small circle at the front of my head... At the moment I have lost about 1cm at the front headline and about 1.5 cm at each temple.
I am no longer taking medication but use a topical very occasionally if I get any itchiness! The belief is that you can not have a transplant until the FFA has burnt out.
Comment by jess on April 21, 2014 at 3:20pm

How can you tell if the FFA is still active?  Brenda, you said your doc said your FFA went to the crown of your head.  Is your scalp just red in appearance?  What does active FFA look like?  Has anyone known someone that has had a hair transplant?

Comment by April on April 20, 2014 at 1:16pm
Wonderful comments and tips everyone! I am going to go find some nice headbands:) Happy Easter!
 

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