Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Liz on May 25, 2014 at 6:28am

Hi. I had 3 friend requests this morning 2 of whom had written their email addresses for me to email some pictures to. Unfortunately as soon as I had accepted the friend requests the email addresses disappeared :o( Please could those who want pictures message me their email address again.

MJ, if you request me as a friend and then message me privately the message stays private. 

Thanks xx

Comment by silversurfer on May 25, 2014 at 6:02am
Liz I. Would love to see your pics especially of the clip on before and after . I am about to get a wig as I am now not going out unless I can wear a hat as I am so self conscious about my Hairloss sandra
Comment by Classical Anne in NC mountains on May 24, 2014 at 8:26pm

Wow, Jules!  I never imagined you could keep it on that long!  Very encouraging!

Liz, I will leave a message on your profile page, if you really don't mind sending me pics.  You are so kind to offer.  And I am so glad to know just how happy you are with all your new hair!  Thanks!

Anne

Comment by MJ on May 24, 2014 at 7:16pm
Liz, i am interested in seeing pics. It is so good to hear that you are happy. It gives me comfort to know there are options down the road. If I put my email address in this post, will it be out on google as well? Is there a way to privately message you with it? MJ
Comment by Liz on May 24, 2014 at 6:30pm

Hi ladies. I have a clip on fringe, half wig and full wig. I am happy to send  before and after pictures to anyone who is interested in how they work, what they cover and how they look. I love my clip on hairpiece. For me it has changed my life and would recommend it. I no longer post pictures on here because once posted they show up in any google image search but I'm happy to email to anyone who is interested ;o) 

Comment by Jules UK on May 24, 2014 at 5:39pm
Hi Classical Anne (I love your name!). I felt exactly as you do about removing hair pieces / wigs at night. This is why I'm particularly grateful to Pam for finding Rob. My new hair is brilliant through sleep, washing and drying. I really am unaware that I'm wearing anything false. I just rub in a leave in hair serum before blow drying. I haven't yet removed it - I'll do that when my hairdresser next calls in June. But Rob said that the skin underneath should not look dry or wrinkled. Then I'll re-attach them with wig tape. The hairpieces stick to my smooth bald bits but as yet, I can cover them with my own hair so any small gaps don't matter. I hope you can sort out something similar. X
Comment by Classical Anne in NC mountains on May 24, 2014 at 10:50am

Questions about WIGS - I've been following the discussions and have 2 questions. I have not yet begun even looking for a wig, but these 2 thoughts pop up every time I think about it.

What is meant when anyone says 'it will last 6 months' [or whatever timing].  What exactly happens that tells you it's the end of that piece's useful life?

And something I've not  heard anyone mention: what does your head/hair look like when you remove it at night [your hair, not your head!].  Are you embarrassed to face your husband or partner?  I think from the very beginning my sadness was not so much for me and my hair as it was for my sweet husband, to wake up with an old balding lady.  He is very supportive, and would deny that it bothered him at all.  But  I think, of course he would at least inwardly wince.

Right now, my hair loss is not visibly significant, so I don't need a hairpiece.  But the texture of my hair has changed to the point that I'd probably look better in a wig than anything I'm able to do with my hair.

Comment by Marian on May 23, 2014 at 8:32pm
Rita
Yikes just checked. There goes my back up plan. We may have to go to England.
Comment by April on May 23, 2014 at 4:14pm

Pam, does this hairpiece stick to the head?  If so, would you have to shave off any stray hairs in order to apply it?  My hair loss is all right smack in the middle, front of my head.  Do you think a hairpiece would work for me?  Not to that stage yet, but just preparing myself.  Thanks!

Comment by Rita - Canada on May 23, 2014 at 3:38pm

May be a good idea to just check/enter the Continental Hair reviews, then choose

Continental Hair topper HerAlopecia.  Can't hurt to be aware of any pushy salespeople.

 

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