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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Message for Mary from Amersham - I just saw that you have joined our merry band - welcome ! You are very close to where I live and we are having a get together near Beaconsfield this Thursday - you are very welcome to join us ! If you can figure out how - send me your e mail as a message on this site - into my inbox and I'll give you directions if you would like to come on Thurs.
Hi all, I wanted to let you know about my latest endeavor to try to lessen the inflammation caused by my ffa. I saw a lecture regarding inflammation / weight loss on a PBS station with nutrition specialist JJ Virgin. On her diet plan you take 7 high inflammatory foods out of your diet for 3 weeks (dairy, gluten, corn, sugar & artificial sweeteners, soy, peanuts, & eggs) then start adding them back into your diet one at a time to try to figure out which ones are causing problems. I've been taking plaquenil for over a year, and it has helped, but it has not slowed down my fffa symptoms as much as I like. Anyway, I decided to try JJ Virgin's diet plan. After all, I can do anything for three weeks. I started to tell a difference in my joint aches & pains after only three days. Two weeks into the diet I could see that my scalp was less pink in the areas affected by the ffa. I think it's probably too early see any difference in the hairloss, but I'm encouraged. Today is my 21st day on the diet. I honestly feel better, plus I've lost 7 pounds! I have my 6 month appointment with my doctor next week, so I'll let you know if he notices any improvement in my ffa.
Liz, I have noticed that the hair I have left on my arms, which used to be quite hairy, is very fine and sticks out every which way. Some of it looks like it has been singed. The hair left on my legs, mostly around the knee, does not look like this. Go figure.
Some interesting questions out there right now.
FLU - I had my injection last week and actually forgot about it til it popped up here. I am high-risk and required to have the shot every year. For me, no connection with my FFA. Been regular with the flu shots since long before the FFA set in.
FRIZZ - I really hate it! I have naturally curly hair which I've worked hard to tame all my life. But this is a lot more frizz than curl, and I do not like it! Terry, I will look for Elvive. Thanks.
ARM HAIR [who knew this would ever be a topic of conversation?] I lost every single hair on my arms, and can even see the million tiny depressions where the follicles died. But since I began using Rogaine on my eyebrows [not my hair], I've gotten about a dozen very fine blond hairs on my right arm, but not my left. Go figure! And though they've thinned, I've still got plenty to shave on my legs. Where's the justice in that?!
JEN - my heart aches for you. I hate that you are losing hair so rapidly, especially as a young mom with so much else in your life. I've got 2 different opinions on giving up at this point. Yes, 6 months is too early to abandon all hope, though it may be time to seek a different combination of treatments. On the other hand, if it's going so extremely that you know you'll be into a wig very soon, then I would say, "Let it!" You don't need added stress in your life, which undeniably exacerbates the FFA and any other health problems you may have. Maybe dropping all the treatments, and finding a wig you really feel good in, is the way to go, and may even serve to slow the stress-induced loss. I wish you comfort and self-confidence again.
Has anyone elses arm hairs gone frizzy too? I'm not particularly hairy and less so since I've had FFA but the hairs I do have on my arms look like they've been singed. They are almost zigzag
I'm having the same problem with my hair that so many of you are having. The hairs around the areas where I have the ffa are wispy, curly, and full of electricity. I suspect these hairs have been damaged by the ffa and just haven't completely fallen out yet (lovely thought). It also seems like the rogaine foam contributes to my frizziness. My hair is naturally straight, so I'm always fighting it. My hairdresser showed me how to rub a tiny bit of argan or vitamin e oil on my fingers and lightly coat those flyaway hairs. This trick has worked wonders for me. I even keep a bottle of argan oil at work for humid days.
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