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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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I've been reading some of your posts about starting cellcept. I'm having a hard time understanding the logic of taking an immunosuppressant when there's still the idea that FFA might be an autoimmune issue. Call me crazy - but it just doesn't make sense to me. Course I'm not a doctor ;) For myself, I've decided not to take an oral meds for my FFA. I continue to work on my diet and supplements along with a topical prescription and Rogaine. Plus working out and keeping my stress levels in check. My naturopath has me doing a treatment a couple times a week (when I remember) of almond oil with Rosemary oil drops added to it. Seems to keep the scalp irritation at bay.
This post is to C. I went to the derm today and they want me to take cellcept also. what dosage were you prescribed?
Hi Jess, they say I need to take twice a day 200mg, so that's a high dose.
I still have not heard back from them yet, which gives me more time to think it over though.
Pam, I aldo hsve redness and itching while on plaquenil and have cut my dose to see if it makes any difference. If not, I plan to discontinue it.
Catherine and Rebecca, do you know whether cyclosprine comes in a topical form? I believe it's the same dtug that is in the Restasis drops I use for dry eyes. I'm much more inclined to try something that is not systemic.
Thanks Rebecca.
Hi Rebecca, I will probably start a course of Cyclosporine this week, and I was told that I will need regular blood tests. How often do you have your bloods checked? I was also wondering how long you think you will be on the drug (I see your doctor said you could take it long term)? My doctor has suggested that I take Cyclosporine for 6 months then switch to Cellcept.
Thank you so much! Catherine
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