Comment

Comment by Sad in chicago on February 27, 2015 at 2:41pm

Brenda, are you in Chicago too?  I wear a beautiful piece I got at J. Krause in Skokie, nowhere near $2000, but excellent quality base and European real hair.  My hairdresser who colors and cuts my hair to go with the piece says it is the best she has seen.I cannot go without a piece anymore.  I did for about a year and a half, but felt it too stressful (wind, weather, always fussing)

Comment by Nancy79 on February 27, 2015 at 8:08am

My dermatologist want to give me kenalog injections. Has anyone experienced bad side effects from this treatment and has anyone had success with this treatment.

Thank you for our input. Nancy

Comment by Brenda, IL US on February 26, 2015 at 10:32pm

This was my hair last spring.  I've lost more since then.  At least 2" all around my face and an inch above my ears.  I have a great stylist that makes my haircut work until the wind blows.  If you were commenting on my picture i thank you Sad in chicago.  My derm gave me info on a great wig maker in Chicago.  She said it would cost over $2000.  I'll just wear a hat.

Comment by Sad in chicago on February 25, 2015 at 5:17pm

your picture is lovely.....do you wear anything or is that your real hair?  If so, I am very jealous, as it looks so full and healthy.  If not, great piece!

Comment by Mandy on February 25, 2015 at 5:11pm

Hi Folks, I haven't been on for sometime but felt that I should post an update. It's been 17 months since finding out I had FFA and I've been on the same journey as many of you... Check out my old posts it's all there... Medication, health, holistic therapies etc.
Today... I have not lost anymore hair and my eyebrow lose seems to have slowed too! I feel very positive that my FFA maybe burning out... Fingers crossed.
I eat healthy, exercise, and stopped all medication within the first 6 months of my diognosoies. I had councelling over a year ago which helped me come to terms with my FFA and learn to love life again. I strongly believe that stress was a big factor for me and when I learnt to let my worries go the hair lose seemed to slow down!
I wish you all the best on your own personal journeys xxx

Comment by Celia on February 23, 2015 at 12:42pm

Apologies - senior moment - I meant near the Beaconsfield junction on M40 for a get together in a few weeks time - hope all who came last time are well.x

Comment by Brenda, IL US on February 22, 2015 at 5:18pm

I don't know how to get my sideways picture deleted from here.  Bad lupus brain fog day.

Comment by Brenda, IL US on February 22, 2015 at 5:06pm

Donna i just ordered Cedarwood.  I didn't know Rosemary would help.  I'll have to order it next time.  I'm still using Clobetasol but i continue to have inflammation and itching.  I've lost a lot more hair in the last year but it doesn't bother me as bad as it did before i had my eyebrows tattooed.

Comment by Donna on February 22, 2015 at 4:36pm

Deb I saved your post from Nov 26 as the idea of autoimmune and using Rosemary and Cedarwood essential oils really appealed to me. I finally got around to purchasing the oils. I have been using clobetasol but still have inflammation and hair loss and want to get away from that. Exactly how do you apply the oils when treating active inflation. If you wanted to private message me send email to dthrasher@shaw.ca.

Comment by Celia on February 22, 2015 at 11:41am

Hi Pam and all others who met up here last year.  I am still around and keeping active !  I would like to try to get 'local'  friends' over again soon if you would all be happy with that idea - I know I would !

I have email addresses for most people in the group who got together last year but would like to invite others who are close enough to the Beaconsfield junction on M25 to message me with your e mail address then we can make a plan. x

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